Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac And Intestinal Narrowing?

laughs2loud

By laughs2loud
in Related Issues & Disorders

Recommended Posts

laughs2loud Newbie
laughs2loud
Posted

Hi all,

I'm currently in the hospital with an inability to eat anything at all (even gluten-free foods), and my doctor told me that my small intestines narrow so much at one point, it is impossible for food to pass through. He says this is due to Celiac disease, and my recovery. Has anyone ever heard of this? I have to have surgery to correct this problem, and i'm pretty freaked out about it. Still, I haven't heard of anything like this...but I suppose celiac is a sneaky jerk-face sometimes.

Anyone?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted
Hi all,

I'm currently in the hospital with an inability to eat anything at all (even gluten-free foods), and my doctor told me that my small intestines narrow so much at one point, it is impossible for food to pass through. He says this is due to Celiac disease, and my recovery. Has anyone ever heard of this? I have to have surgery to correct this problem, and i'm pretty freaked out about it. Still, I haven't heard of anything like this...but I suppose celiac is a sneaky jerk-face sometimes.

Anyone?

This is serious but try not to freak out to much. The doctors have caught it and you should be fine after your surgery. I don't think that this would be highly unusual. Celiac can cause some nasty damage and sometimes when scar tissue forms over and over again it can form a stricture or a narrowing. I have had severe adhesions which are the same sort of thing, scar tissue that forms in places it shouldn't wrapping around and joining things they shouldn't. Any abdominal surgery is uncomfortable afterwards for a bit, how long depends on how quickly you heal and what type of procedure they are doing to free the area up. I hope everything goes well and that you recover quickly and don't forget to write celiac - gluten free in big red letters on your forehead.

confusedks Enthusiast
confusedks
Posted

I want to second what the above poster said, MAKE SURE THEY KNOW YOU ARE GLUTEN FREE! I got so sick in the hospital because they gave me oral meds with gluten in them...then had to push anti-nausea meds through my IV! It was ridiculous! Also, do you have anyone who can bring you food? This is really important. No matter what the nutritionist said, I still got Corn Flakes and Rice Krispies (didn't eat them...but they gave them to me.)

Good luck and I am sure whatever you end up doing will work out! Our thoughts are with you! Keep us updated.

Kassandra :)

laughs2loud Newbie
laughs2loud
Posted
  • Author

Thanks everyone!

I have been very careful with the foods they are giving me. It's been easy since I've not eaten very much since sunday. They've given me the packet of the broth they brought me, it is specifically gluten free. And today they gave me salmon with rice and asparagus, no sauce. I can't eat much, but I'm making sure it's gluten free, or I won't touch it.

In addition to the intestinal fun, I also have a liver adenoma, thanks to our Friend celiac disease and birth control, I am told. My body just doesn't want to relax!

I'll keep you all posted, but thank you for the quick responses!

Amy

cyberprof Enthusiast
cyberprof
Posted
Thanks everyone!

I have been very careful with the foods they are giving me. It's been easy since I've not eaten very much since sunday. They've given me the packet of the broth they brought me, it is specifically gluten free. And today they gave me salmon with rice and asparagus, no sauce. I can't eat much, but I'm making sure it's gluten free, or I won't touch it.

In addition to the intestinal fun, I also have a liver adenoma, thanks to our Friend celiac disease and birth control, I am told. My body just doesn't want to relax!

I'll keep you all posted, but thank you for the quick responses!

Amy

I too have a liver tumor from birth control pills and/or some unknown reason. I also have Focal Nodular Hyperplasia (benign tumors) in my liver and angiomyolipomas in my kidneys, also benign. My doc doesn't think that I need surgery, although they are following them.

You don't have to have surgery on your liver, do you?

Best of luck and I hope you feel better soon!

~Laura

laughs2loud Newbie
laughs2loud
Posted
  • Author

Ok, apparently I don't need surgery now. CT scan and MRI were wrong according to the endoscopy. Still can't eat, and I'm still in the hospital.

I hate this.

But no, no Surgery on the liver stuff. That's just watch and wait.

Body's are so confusing! <_<

cyberprof Enthusiast
cyberprof
Posted
Ok, apparently I don't need surgery now. CT scan and MRI were wrong according to the endoscopy. Still can't eat, and I'm still in the hospital.

I hate this.

But no, no Surgery on the liver stuff. That's just watch and wait.

Body's are so confusing! <_<

That's good about no surgery but bad that you're still in the hospital and still in pain. I hope that they figure it out soon.

~Laura

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 2 weeks later...
brenda in northcarolina Newbie
brenda in northcarolina
Posted
Hi all,

I'm currently in the hospital with an inability to eat anything at all (even gluten-free foods), and my doctor told me that my small intestines narrow so much at one point, it is impossible for food to pass through. He says this is due to Celiac disease, and my recovery. Has anyone ever heard of this? I have to have surgery to correct this problem, and i'm pretty freaked out about it. Still, I haven't heard of anything like this...but I suppose celiac is a sneaky jerk-face sometimes.

Anyone?

HI, i see where you wrote that you are in the hospital with narrowing of the intestines is this common for celiac or just something that happened? i am recently diagonised with celiac and dont know much about it , by the way i hpoe you have a speedy recovery!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. cristiana
      - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      14

      Ibuprofen

      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse. But it is important not to stop the treatment. Regarding your problems with anxiety, again that is another symptom of a B12 deficiency. I didn't know...
    2. Jmartes71
      - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      My only proof

      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do...
    3. Scott Adams
      - Scott Adams replied to wellthatsfun's topic in Coping with Celiac Disease
      1

      still struggling with cravings

      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, ...
    4. Scott Adams
      - Scott Adams replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Oh my goodness medication causing pain !!!!

      Many of us with celiac find that the fillers in medications can cause a reaction, and sometimes our bodies just process things weirdly. That "rebound muscle pain" and "burning feet" you described sounds awful and is a huge red flag. It's frustrating enough managing the diet without medication causing setbacks. So sorry you're dealing with this, but you're...
    5. Scott Adams
      - Scott Adams replied to Me,Sue's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Knowing what to do when feeling unwell.

      It's so tough when you're doing everything right and still get hit with it. I'm glad you're figuring out a system that works for you—the peppermint tea and rehydration powders are smart moves. It sounds like you've really learned to listen to your body, and that's half the battle. Sticking to simple, safe food at home is the best way to build yourself back u...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,871
    • Most Online (within 30 mins)
      7,748
    GR82BNTX
    Newest Member
    GR82BNTX
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      Ibuprofen

      By cristiana · Posted

      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do in Northern Cali.So currently without and looking.Im angery that its lightly taken when its extremely serious to the one who has it.My only evidence is a brochure back in the days when I got news letters when I lived at my parents.It was published in 1998.I was diagnosed before any foods eliminated from my diet. Angery doctors don't take seriously when Im clearly speaking.I did write to the medicine of congress and have case number.
    • Scott Adams
      still struggling with cravings

      By Scott Adams · Posted

      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, I promise, but it's okay to sit in the sadness and just vent about how much it stings right now. Thanks for sharing that. Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
    • Scott Adams
      Oh my goodness medication causing pain !!!!

      By Scott Adams · Posted

      Many of us with celiac find that the fillers in medications can cause a reaction, and sometimes our bodies just process things weirdly. That "rebound muscle pain" and "burning feet" you described sounds awful and is a huge red flag. It's frustrating enough managing the diet without medication causing setbacks. So sorry you're dealing with this, but you're definitely on the right track by connecting the dots. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Knowing what to do when feeling unwell.

      By Scott Adams · Posted

      It's so tough when you're doing everything right and still get hit with it. I'm glad you're figuring out a system that works for you—the peppermint tea and rehydration powders are smart moves. It sounds like you've really learned to listen to your body, and that's half the battle. Sticking to simple, safe food at home is the best way to build yourself back up. It's great you can take the time to rest properly. Thanks for sharing what works; it's a big help to others figuring this out too. This article, and the comments below it, may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.