Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help!


Jess07

Recommended Posts

Jess07 Newbie

I was diagnosed during of April of this year, and in the process of getting so sick, I lost nine pounds. I'm already a very naturally skinny person, normally weighing only 92 pounds, so I get very weak, very fast. I missed a lot of school that year, and eventually skipped the last week of school. Because of that, I didn't have to take my finals my freshman year.

I am now gluten free, lactose free, and soy free. I'm not even sure exactly how long this has been affecting since I've been lactose intolerant for 6 years and the gluten only started affecting me very badly 7 months ago, maybe the gluten caused the lactose intolerance?

My weight was down to 83 pounds and a couple of weeks ago I finally made it up to 90 pounds on the dot, and then a week later, it drops down to 86.5 pounds! It's never gone down that much at once!??? :huh:

It's back up to 88.5, but I haven't goe it to go any farther up.

I feel like I'm getting cross contamination at least every weekend, maybe a little exaggerated, :rolleyes: , and an upset stomach most days.

What can I do?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



buffettbride Enthusiast

Maybe you could share what your typical foods are over a course of a few days and we could spot something suspect.

Also, I'm guessing you live with your parents and I'm wondering if your whole house is free of gluten. If not, there's always risks of icky gluten getting into your food.

Food is tricky.

I hope you are feeling better soon.

Daughter-of-TheLight Apprentice

You're probably getting trace gluten is something or other. That happened to my mom. She drank Rice Dream rice milk and it contains barley. :rolleyes: Very annoying. But from my limited experience, that's what's probably happening.

Guest j_mommy

I would defintly start doing a food diary(always keep it with you and keep track of everything that goes into your mouth) and right any sypmtoms you have down on that day as well...I use a little planner book. It helps narrow any problem food down! Much easier than doing an elimination diet.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,159
    • Most Online (within 30 mins)
      7,748

    Greymo
    Newest Member
    Greymo
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Let me hasten to add that if you will be undergoing an endoscopy/biopsy, it is critical that you do not begin efforts to reduce gluten beforehand. Doing so will render the results invalid as it will allow the small bowel lining to heal and, therefore, obscure the damage done by celiac disease which is what the biopsy is looking for.
    • Scott Adams
      This article, and the comments below it, may be helpful:    
    • Scott Adams
      That’s a really tough situation. A few key points: as mentioned, a gluten challenge does require daily gluten for several weeks to make blood tests meaningful, but negative tests after limited exposure aren’t reliable. Dermatitis herpetiformis can also be tricky to diagnose unless the biopsy is taken from normal-looking skin next to a lesion. Some people with celiac or DH don’t react every time they’re exposed, so lack of symptoms doesn’t rule it out. Given your history and family cancer risk, this is something I’d strongly discuss with a celiac-experienced gastroenterologist or dermatologist before attempting a challenge on your own, so risks and benefits are clearly weighed.
    • Greymo
      https://celiac.org/glutenexposuremarkers/    yes, two hours after accidents ingesting gluten I am vomiting and then diarrhea- then exhaustion and a headache. see the article above- There is research that shows our reactions.
    • trents
      Concerning the EMA positive result, the EMA was the original blood test developed to detect celiac disease and has largely been replaced by the tTG-IGA which has a similar reliability confidence but is much less expensive to run. Yes, a positive EMA is very strong evidence of celiac disease but not foolproof. In the UK, a tTG-IGA score that is 10x normal or greater will often result in foregoing the endoscopy/biopsy. Weaker positives on the tTG-IGA still trigger the endoscopy/biopsy. That protocol is being considered in the US but is not yet in place.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.