Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Book At B & N

tallfran

By tallfran
in Publications & Publicity

Recommended Posts

tallfran Apprentice
tallfran
Posted

I saw this book at B & N this evening, picked it up, and read as much as possible in the slightly less than 3 hours I was there.

I know there is a lot of bitterness on this board about failures in diagnosis, being told "it's all in your head, etc.

The introduction chapter features a woman with Celiac Disease, who was misdiagnosed for many years. There are many other examples in the chapters I managed to read while I was there (not of Celiac Disease, but of other misdiagnoses, and how they happen. It is an excellent and interesting read; I recommend it highly, though I don't plan on buying it. Maybe your local library will have a copy soon. I'll finish it the next time I'm at B&N (one of my favorite places!) :D

Fran

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


TestyTommy Rookie
TestyTommy
Posted
I saw this book at B & N this evening, picked it up, and read as much as possible in the slightly less than 3 hours I was there.

I know there is a lot of bitterness on this board about failures in diagnosis, being told "it's all in your head, etc.

The introduction chapter features a woman with Celiac Disease, who was misdiagnosed for many years. There are many other examples in the chapters I managed to read while I was there (not of Celiac Disease, but of other misdiagnoses, and how they happen. It is an excellent and interesting read; I recommend it highly, though I don't plan on buying it. Maybe your local library will have a copy soon. I'll finish it the next time I'm at B&N (one of my favorite places!) :D

Fran

So what's the name of the book????

tallfran Apprentice
tallfran
Posted
  • Author

Sorry, it's "How Doctors Think" by Jerome Groopman, MD . I put it in as a subtitle, but maybe it didn't show up on your computer.

Fran

jkmunchkin Rising Star
jkmunchkin
Posted

I actually was supposed to go to a discussion being held with Mr. Groopman last month about this book, but unfortunately I didn't make it. I've heard it's very interesting.

debbiewil Rookie
debbiewil
Posted

I have the book and I've read it. Actually, I don't think it told me anything I didn't know, it just confirmed things that I've thought for years. Like doctors don't believe patients tell the truth, if it doesn't seem to match with the diagnosis or idea that the doctor already has. So if you say, have liver disease, and the doctor thinks it's because you are an alcoholic, he's already made up his mind and isn't going to test for anything else. And if you tell him you're a life-long teetotaler, he's still not going to test for anything else, because he thinks you're lying. Some other things like that - doctors don't think of testing for so-called 'rare' diseases even if you have all the symptoms. They're told in medical school that they'll never see a patient with this, so they don't test for it. Well, honestly, no matter how rare it is, if it exists at all, some doctor eventually has to see it, right? So if you have the symptoms for it, the doctor should test for it, but they don't. Anyway, the book did describe typical 'doctor think' and had a couple of suggestions for dealing with it. It wasn't a bad book, but I'm more tempted to bring it to my doctor next time I go in, and point out the things my doc does, and why that's not good medical practice. If I did that though, I probably wouldn't have the doc any longer. LOL

Debbie

  • 2 weeks later...
angelbender Newbie
angelbender
Posted

Jerome Groopman writes articles for The New Yorker Magazine. He posted an article approx 7 years ago regarding Fibromyalgia. Based on his lack of research and closedmindedness, in addition to his response to people who wrote regarding his article (did you get that? lol), I found him to be NOT very openminded thus I quickly looked thru his book and put it down. He had a very nasty attitude. I still read his articles in The New Yorker, but I don't put much merit in them. Just my opinion..........

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. cristiana
      - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

      Ferritin levels. And see what your hemoglobin looks like too, that will tell you if you are anemic? You can have 'low normal' levels that will not be flagged by blood tests. I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial...
    2. Mari
      - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here

      Hi Katht - I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was...
    3. Colleen H
      - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

      Yes thyroid was tested.. negative Iron ...I'm. Not sure ... Would that fall under red blood count? If so I was ok Thank you for the detailed response..☺️
    4. Colleen H
      - Colleen H posted a topic in Coping with Celiac Disease
      0

      Methylprednisone treatment for inflammation?

      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines? Did it work ?? Thank you !!
    5. cristiana
      - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse. But it is important not to stop the treatment. Regarding your problems with anxiety, again that is another symptom of a B12 deficiency. I didn't know...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,879
    • Most Online (within 30 mins)
      7,748
    Peta Dunn
    Newest Member
    Peta Dunn
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      Ibuprofen

      By cristiana · Posted

      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      New here

      By Mari · Posted

      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
    • Colleen H
      Ibuprofen

      By Colleen H · Posted

      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
    • Colleen H
      Methylprednisone treatment for inflammation?

      By Colleen H · Posted

      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines?  Did it work ??  Thank you !! 
    • cristiana
      Ibuprofen

      By cristiana · Posted

      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.