Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Question For The Pros


Guhlia

Recommended Posts

Guhlia Rising Star

My daughter is finishing the second month of her gltuen challenge. She has white poop which is typically very soft or even diarrhea. I'm assuming that she's suffering from malabsorption. With that assumption, liquid vitamins are generally easier to absorb, correct? If that's true, do you think it would be a good idea to supplement her milk with breastmilk? I'm currently nursing my baby and I've thought about adding a few ounces to Tori's milk to supplement. She's not a very good eater anyway, so I'm afraid she's deficient in a lot of stuff. Because we don't want any of this on her medical records, we can't have her tested for deficiencies. What do you guys think? Even if it didn't help her, would there be any risks with doing this? I'm currently producing enough breastmilk to do this, so there would be no negative effects on the baby.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor
My daughter is finishing the second month of her gltuen challenge. She has white poop which is typically very soft or even diarrhea. I'm assuming that she's suffering from malabsorption. With that assumption, liquid vitamins are generally easier to absorb, correct? If that's true, do you think it would be a good idea to supplement her milk with breastmilk? I'm currently nursing my baby and I've thought about adding a few ounces to Tori's milk to supplement. She's not a very good eater anyway, so I'm afraid she's deficient in a lot of stuff. Because we don't want any of this on her medical records, we can't have her tested for deficiencies. What do you guys think? Even if it didn't help her, would there be any risks with doing this? I'm currently producing enough breastmilk to do this, so there would be no negative effects on the baby.

Angie,

Please refresh me. Why is Tori doing a challenge if you can't have her tested for deficiences? Are you doing Entrolabs?

Guhlia Rising Star

We took her off gluten not necessarily because of her, but more because she was glutening me everytime she ate it. I was entirely too sensitive to not get contaminated by all the gluteny impromptu kisses. And at two years old she just wasn't getting it through her head that there were times she couldn't kiss mommy. Anyway, now she's in preschool and eating gluten and she's slightly symptomatic. We have private insurance and can't afford for our rates to go up anymore than they already have. A Celiac kid would definitely skyrocket our rates. We're going to go through Enterolab, we already have the kit and we're doing the full screening, gene testing and all. She's only eating gluten at school, and only at snack time, so we're trying to hold off as long as we can on testing in the hopes that we'll get accurate results. The longer she eats gluten (even gluten light), the more likely it will be that she'll get a positive lab if she has it. There are so many other factors that could be causing her soft stools, especially since she's had cold after cold after cold since she started preschool (as have most of the other kids in her class), that I don't want to rip her back off gluten until we have her tested. I realize that I may end up having to take her off gluten even with negative results, but I want the results to at least have a chance at reading positive. Does any of that make sense? So, yes, we're planning on doing Enterolab, I'm just trying to hold out until she's been eating gluten for a little longer.

Ridgewalker Contributor
My daughter is finishing the second month of her gltuen challenge. She has white poop which is typically very soft or even diarrhea. I'm assuming that she's suffering from malabsorption. With that assumption, liquid vitamins are generally easier to absorb, correct? If that's true, do you think it would be a good idea to supplement her milk with breastmilk? I'm currently nursing my baby and I've thought about adding a few ounces to Tori's milk to supplement. She's not a very good eater anyway, so I'm afraid she's deficient in a lot of stuff. Because we don't want any of this on her medical records, we can't have her tested for deficiencies. What do you guys think? Even if it didn't help her, would there be any risks with doing this? I'm currently producing enough breastmilk to do this, so there would be no negative effects on the baby.

I'm wracking my brains, and I really can't think of any reason why this wouldn't be ok.

Treat it as carefully, and keep it as sterile as you would if you were bottling it for the baby. Other than that, I can't imagine a reason why it wouldn't be good for her.

People's milk is for people, not cow's milk- even though most of us drink it.

Rya Newbie

White stools can mean fat malabsorption; other signs of this are floating stools, an awful terrible smell, and maybe a little greasy fluid in the toilet or greasy appearance to the stool. The "but" is breastmilk is more than 50% fat because growing babies need tons of energy and fats are the best way for them to get it. The fats in your breastmilk are easier to digest for a baby, but I don't know how this would affect a potential Celiac.

I don't know if liquid vitamins are more easily absorbed or not. I can find out if you like. What I do know is there is something called MCT (medium-chain triglycerides) Oil that dietitians like to use when fat malabsorption is a problem. You can order this online and maybe a health food store might have it. This would only solve her white stools if you replaced the fat in her diet with this; but what it would do regardless is make sure she is getting enough fats.

Try giving her an age-appropriate multivitamin at night or first thing in the morning, as far away (time-wise) from her gluten snacks as possible and preferably not with any fats if you think that she is in fact malabsorbing these.

If you do decide to use breastmilk, maybe cut the multi-vitamin in half depending on how much milk you give her. Your milk is very nutrient-dense.

This is what I can give you off the top of my head; I'm going to sit down with some books and see what else I can find for you.

Guhlia Rising Star

I've been giving her gummy vites since they're gluten free and that's what I take. They're a kids multi.

JNBunnie1 Community Regular
I've been giving her gummy vites since they're gluten free and that's what I take. They're a kids multi.

I think if you squirt fluid vitamins under her tongue she will absorb them better. Also, breastmilk is a FABULOUS idea! Most people don't like the idea for some reason, but human breastmilk is one of the very best things you can give anyone who's sick.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jmd3 Contributor

I am not a pro on malabsorption,

but give her as much breast milk as you can provided you don't take away from the baby!! The great thing about breast milk is the more breast milk you use today, the more you will make tomorrow! Keep up your own fluids, and eat an extra healthy snack or two as you will need it to make more milk. It may make your 2 year olds' stools a bit runnier?? Breast milk is for humans!

bakingbarb Enthusiast

I don't know if this will help you or not but my daughter and myself drink Emergen-C

Fructose aids in the absorption of the vitamins and these drinks seems to help us quite a bit.

babygirl1234 Rookie

does your daughter have celiac disease and was she getting sick from gluten? because if she is then yes she does have celiac disease, some of my kids have celiac disease i had to take Justin to the doctor to get him tested and i got the call yesterday and he went for a scop today and a biopsy so thats Jason Conner Katie And Justin that have it

Guhlia Rising Star
does your daughter have celiac disease and was she getting sick from gluten? because if she is then yes she does have celiac disease, some of my kids have celiac disease i had to take Justin to the doctor to get him tested and i got the call yesterday and he went for a scop today and a biopsy so thats Jason Conner Katie And Justin that have it

She's never been tested. We suspected Celiac a long time ago, but the real reason we took her off gluten is because she's a messy little kid and I couldn't keep her from glutening me constantlyl. It just wasn't worth me being sick all the time.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - hjayne19 replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      11

      Insomnia help

    2. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      43

      My journey is it gluten or fiber?

    3. - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      45

      Severe severe mouth pain

    4. - Lkg5 replied to Charlie1946's topic in Related Issues & Disorders
      45

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,098
    • Most Online (within 30 mins)
      7,748

    BothySmithy
    Newest Member
    BothySmithy
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • hjayne19
      Hi @knitty kitty  Just revisiting this to get some help. I found after understanding the extent of my anxiety, my sleep got a little better. Flash forward to a few weeks later I have had a few bad sleeps in a row and I feel desperate for a good nights sleep. I understand worrying about it won’t help but one thing I had tied things too was dairy. Initially when I went gluten free I felt great for the first few weeks then started having some stomach pain. So thought maybe I was lactose intolerant. I started eating lactose free Greek yogurt and that did help take the cramping away I guess. Over the last few months I haven’t eaten it every single day and I went a few weeks without it. The last few nights I did have a small amount with breakfast and noticed that was the only new thing I’ve really added to my diet. I had seen a few other posts about this. Is it possible to still react to lactose free? Would this potentially be a dairy allergy? Or something else. 
    • xxnonamexx
      I have taken the vitamins for a week. Haven't noticed any major changes but I will give it more time to see.
    • knitty kitty
      @Charlie1946,  Sorry I sidetracked your thread a bit.  Apologies. Proton pump inhibitors, like Omeprazole, change the pH in our gastrointestinal systems which allows opportunistic microbes to move in and take over.  Have you been checked for SIBO?  There's a significant link between length of Omeprazole use and SIBO.  I had SIBO, thrush (Candida) and lichen planus and other problems while I was on Omeprazole.  I had to stop taking it.  It was a horrible time, so I understand how painful and frustrating it is.   You change your microbiome (the bacteria and microbes living inside you) by changing what you eat.  They eat what you eat.  Change the menu and you get different customers.   I changed my diet.  I cut out dairy because I was reacting to the casein and lactose.  I cut out all processed foods and most carbohydrates. I ate meat and veggies mostly, some fruit like apples and mandarin oranges.  By cutting out all the excess carbohydrates, lactose, and empty carbs in processed gluten-free foods, the opportunistic microbes get starved out.  SIBO bacteria send chemical messages to our brains demanding more carbs, so be prepared for carb cravings, but don't let the microbiome control you!   The skin and digestive system is continuous.  The health of our outside skin reflects the health of our gastrointestinal system.  Essential B vitamins, like Thiamine B 1 and especially Niacin B 3, are needed to repair intestinal damage and keep bad bacteria in check.  Niacin helps improve not only the intestinal tract, but also the skin.  Sebaceous Hyperplasia is linked to being low in Niacin B 3.  Lichen Planus is treated with Niacinamide, a form of Niacin B 3.   Vitamins are chemical compounds that our bodies cannot make.  We must get them from our food.  If our food isn't digested well (low stomach acid from Omeprazole causes poor digestion), then vitamins aren't released well.  Plus there's a layer of SIBO bacteria absorbing our vitamins first between the food we've eaten and our inflamed and damaged villi that may have difficulty absorbing the vitamins.  So, taking vitamin supplements is a way to boost absorption of essential nutrients that will allow the body to fight off the microbes, repair and heal.   Doctors are taught in medical learning institutions funded by pharmaceutical companies.  The importance of nutrition is downplayed and called old fashioned.  Doctors are taught we have plenty to eat, so no one gets nutritional deficiency diseases anymore.  But we do, as people with Celiac disease, with impaired absorption.  Nutritional needs need to be addressed first with us.  Vitamins cannot be patented because they are natural substances.  But pharmaceutical drugs can be.  There's more money to be made selling pharmaceutical drugs than vitamins.   Makes me wonder how much illness could be prevented if people were screened for Celiac disease much earlier in life, instead of after they've been ill and medicated for years.   Talk to your doctor and dietician about supplementing essential vitamins and minerals.   Interesting Reading: The Duration of Proton Pump Inhibitor Therapy and the Risk of Small Intestinal Bacterial Overgrowth: A Systematic Review and Meta-Analysis https://pmc.ncbi.nlm.nih.gov/articles/PMC12250812/#:~:text=The long-term use of,overgrowth dynamics is less clear. Lichenoid drug eruption with proton pump inhibitors https://pmc.ncbi.nlm.nih.gov/articles/PMC27275/ Nicotinamide: A Multifaceted Molecule in Skin Health and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC11857428/
    • Lkg5
      My sebaceous hyperplasia and thrush disappeared when I stopped all dairy.
    • Charlie1946
      @knitty kitty Thank you so much for all that information! I will be sure to check it out and ask my doctor.  I am just at a loss, I am on my 2nd round of miracle mouthwash and I brush and scrape my tongue and (sorry this is gross) it's still coated in the middle 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.