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Question For The Pros

Guhlia

By Guhlia
in Coping with Celiac Disease

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Guhlia Rising Star
Guhlia
Posted

My daughter is finishing the second month of her gltuen challenge. She has white poop which is typically very soft or even diarrhea. I'm assuming that she's suffering from malabsorption. With that assumption, liquid vitamins are generally easier to absorb, correct? If that's true, do you think it would be a good idea to supplement her milk with breastmilk? I'm currently nursing my baby and I've thought about adding a few ounces to Tori's milk to supplement. She's not a very good eater anyway, so I'm afraid she's deficient in a lot of stuff. Because we don't want any of this on her medical records, we can't have her tested for deficiencies. What do you guys think? Even if it didn't help her, would there be any risks with doing this? I'm currently producing enough breastmilk to do this, so there would be no negative effects on the baby.

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Lisa Mentor
Lisa
Posted
My daughter is finishing the second month of her gltuen challenge. She has white poop which is typically very soft or even diarrhea. I'm assuming that she's suffering from malabsorption. With that assumption, liquid vitamins are generally easier to absorb, correct? If that's true, do you think it would be a good idea to supplement her milk with breastmilk? I'm currently nursing my baby and I've thought about adding a few ounces to Tori's milk to supplement. She's not a very good eater anyway, so I'm afraid she's deficient in a lot of stuff. Because we don't want any of this on her medical records, we can't have her tested for deficiencies. What do you guys think? Even if it didn't help her, would there be any risks with doing this? I'm currently producing enough breastmilk to do this, so there would be no negative effects on the baby.

Angie,

Please refresh me. Why is Tori doing a challenge if you can't have her tested for deficiences? Are you doing Entrolabs?

Guhlia Rising Star
Guhlia
Posted
  • Author

We took her off gluten not necessarily because of her, but more because she was glutening me everytime she ate it. I was entirely too sensitive to not get contaminated by all the gluteny impromptu kisses. And at two years old she just wasn't getting it through her head that there were times she couldn't kiss mommy. Anyway, now she's in preschool and eating gluten and she's slightly symptomatic. We have private insurance and can't afford for our rates to go up anymore than they already have. A Celiac kid would definitely skyrocket our rates. We're going to go through Enterolab, we already have the kit and we're doing the full screening, gene testing and all. She's only eating gluten at school, and only at snack time, so we're trying to hold off as long as we can on testing in the hopes that we'll get accurate results. The longer she eats gluten (even gluten light), the more likely it will be that she'll get a positive lab if she has it. There are so many other factors that could be causing her soft stools, especially since she's had cold after cold after cold since she started preschool (as have most of the other kids in her class), that I don't want to rip her back off gluten until we have her tested. I realize that I may end up having to take her off gluten even with negative results, but I want the results to at least have a chance at reading positive. Does any of that make sense? So, yes, we're planning on doing Enterolab, I'm just trying to hold out until she's been eating gluten for a little longer.

Ridgewalker Contributor
Ridgewalker
Posted
My daughter is finishing the second month of her gltuen challenge. She has white poop which is typically very soft or even diarrhea. I'm assuming that she's suffering from malabsorption. With that assumption, liquid vitamins are generally easier to absorb, correct? If that's true, do you think it would be a good idea to supplement her milk with breastmilk? I'm currently nursing my baby and I've thought about adding a few ounces to Tori's milk to supplement. She's not a very good eater anyway, so I'm afraid she's deficient in a lot of stuff. Because we don't want any of this on her medical records, we can't have her tested for deficiencies. What do you guys think? Even if it didn't help her, would there be any risks with doing this? I'm currently producing enough breastmilk to do this, so there would be no negative effects on the baby.

I'm wracking my brains, and I really can't think of any reason why this wouldn't be ok.

Treat it as carefully, and keep it as sterile as you would if you were bottling it for the baby. Other than that, I can't imagine a reason why it wouldn't be good for her.

People's milk is for people, not cow's milk- even though most of us drink it.

Rya Newbie
Rya
Posted

White stools can mean fat malabsorption; other signs of this are floating stools, an awful terrible smell, and maybe a little greasy fluid in the toilet or greasy appearance to the stool. The "but" is breastmilk is more than 50% fat because growing babies need tons of energy and fats are the best way for them to get it. The fats in your breastmilk are easier to digest for a baby, but I don't know how this would affect a potential Celiac.

I don't know if liquid vitamins are more easily absorbed or not. I can find out if you like. What I do know is there is something called MCT (medium-chain triglycerides) Oil that dietitians like to use when fat malabsorption is a problem. You can order this online and maybe a health food store might have it. This would only solve her white stools if you replaced the fat in her diet with this; but what it would do regardless is make sure she is getting enough fats.

Try giving her an age-appropriate multivitamin at night or first thing in the morning, as far away (time-wise) from her gluten snacks as possible and preferably not with any fats if you think that she is in fact malabsorbing these.

If you do decide to use breastmilk, maybe cut the multi-vitamin in half depending on how much milk you give her. Your milk is very nutrient-dense.

This is what I can give you off the top of my head; I'm going to sit down with some books and see what else I can find for you.

Guhlia Rising Star
Guhlia
Posted
  • Author

I've been giving her gummy vites since they're gluten free and that's what I take. They're a kids multi.

JNBunnie1 Community Regular
JNBunnie1
Posted
I've been giving her gummy vites since they're gluten free and that's what I take. They're a kids multi.

I think if you squirt fluid vitamins under her tongue she will absorb them better. Also, breastmilk is a FABULOUS idea! Most people don't like the idea for some reason, but human breastmilk is one of the very best things you can give anyone who's sick.

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jmd3 Contributor
jmd3
Posted

I am not a pro on malabsorption,

but give her as much breast milk as you can provided you don't take away from the baby!! The great thing about breast milk is the more breast milk you use today, the more you will make tomorrow! Keep up your own fluids, and eat an extra healthy snack or two as you will need it to make more milk. It may make your 2 year olds' stools a bit runnier?? Breast milk is for humans!

bakingbarb Enthusiast
bakingbarb
Posted

I don't know if this will help you or not but my daughter and myself drink Emergen-C

Fructose aids in the absorption of the vitamins and these drinks seems to help us quite a bit.

babygirl1234 Rookie
babygirl1234
Posted

does your daughter have celiac disease and was she getting sick from gluten? because if she is then yes she does have celiac disease, some of my kids have celiac disease i had to take Justin to the doctor to get him tested and i got the call yesterday and he went for a scop today and a biopsy so thats Jason Conner Katie And Justin that have it

Guhlia Rising Star
Guhlia
Posted
  • Author
does your daughter have celiac disease and was she getting sick from gluten? because if she is then yes she does have celiac disease, some of my kids have celiac disease i had to take Justin to the doctor to get him tested and i got the call yesterday and he went for a scop today and a biopsy so thats Jason Conner Katie And Justin that have it

She's never been tested. We suspected Celiac a long time ago, but the real reason we took her off gluten is because she's a messy little kid and I couldn't keep her from glutening me constantlyl. It just wasn't worth me being sick all the time.

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