Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Question For The Pros


Guhlia

Recommended Posts

Guhlia Rising Star

My daughter is finishing the second month of her gltuen challenge. She has white poop which is typically very soft or even diarrhea. I'm assuming that she's suffering from malabsorption. With that assumption, liquid vitamins are generally easier to absorb, correct? If that's true, do you think it would be a good idea to supplement her milk with breastmilk? I'm currently nursing my baby and I've thought about adding a few ounces to Tori's milk to supplement. She's not a very good eater anyway, so I'm afraid she's deficient in a lot of stuff. Because we don't want any of this on her medical records, we can't have her tested for deficiencies. What do you guys think? Even if it didn't help her, would there be any risks with doing this? I'm currently producing enough breastmilk to do this, so there would be no negative effects on the baby.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor
My daughter is finishing the second month of her gltuen challenge. She has white poop which is typically very soft or even diarrhea. I'm assuming that she's suffering from malabsorption. With that assumption, liquid vitamins are generally easier to absorb, correct? If that's true, do you think it would be a good idea to supplement her milk with breastmilk? I'm currently nursing my baby and I've thought about adding a few ounces to Tori's milk to supplement. She's not a very good eater anyway, so I'm afraid she's deficient in a lot of stuff. Because we don't want any of this on her medical records, we can't have her tested for deficiencies. What do you guys think? Even if it didn't help her, would there be any risks with doing this? I'm currently producing enough breastmilk to do this, so there would be no negative effects on the baby.

Angie,

Please refresh me. Why is Tori doing a challenge if you can't have her tested for deficiences? Are you doing Entrolabs?

Guhlia Rising Star

We took her off gluten not necessarily because of her, but more because she was glutening me everytime she ate it. I was entirely too sensitive to not get contaminated by all the gluteny impromptu kisses. And at two years old she just wasn't getting it through her head that there were times she couldn't kiss mommy. Anyway, now she's in preschool and eating gluten and she's slightly symptomatic. We have private insurance and can't afford for our rates to go up anymore than they already have. A Celiac kid would definitely skyrocket our rates. We're going to go through Enterolab, we already have the kit and we're doing the full screening, gene testing and all. She's only eating gluten at school, and only at snack time, so we're trying to hold off as long as we can on testing in the hopes that we'll get accurate results. The longer she eats gluten (even gluten light), the more likely it will be that she'll get a positive lab if she has it. There are so many other factors that could be causing her soft stools, especially since she's had cold after cold after cold since she started preschool (as have most of the other kids in her class), that I don't want to rip her back off gluten until we have her tested. I realize that I may end up having to take her off gluten even with negative results, but I want the results to at least have a chance at reading positive. Does any of that make sense? So, yes, we're planning on doing Enterolab, I'm just trying to hold out until she's been eating gluten for a little longer.

Ridgewalker Contributor
My daughter is finishing the second month of her gltuen challenge. She has white poop which is typically very soft or even diarrhea. I'm assuming that she's suffering from malabsorption. With that assumption, liquid vitamins are generally easier to absorb, correct? If that's true, do you think it would be a good idea to supplement her milk with breastmilk? I'm currently nursing my baby and I've thought about adding a few ounces to Tori's milk to supplement. She's not a very good eater anyway, so I'm afraid she's deficient in a lot of stuff. Because we don't want any of this on her medical records, we can't have her tested for deficiencies. What do you guys think? Even if it didn't help her, would there be any risks with doing this? I'm currently producing enough breastmilk to do this, so there would be no negative effects on the baby.

I'm wracking my brains, and I really can't think of any reason why this wouldn't be ok.

Treat it as carefully, and keep it as sterile as you would if you were bottling it for the baby. Other than that, I can't imagine a reason why it wouldn't be good for her.

People's milk is for people, not cow's milk- even though most of us drink it.

Rya Newbie

White stools can mean fat malabsorption; other signs of this are floating stools, an awful terrible smell, and maybe a little greasy fluid in the toilet or greasy appearance to the stool. The "but" is breastmilk is more than 50% fat because growing babies need tons of energy and fats are the best way for them to get it. The fats in your breastmilk are easier to digest for a baby, but I don't know how this would affect a potential Celiac.

I don't know if liquid vitamins are more easily absorbed or not. I can find out if you like. What I do know is there is something called MCT (medium-chain triglycerides) Oil that dietitians like to use when fat malabsorption is a problem. You can order this online and maybe a health food store might have it. This would only solve her white stools if you replaced the fat in her diet with this; but what it would do regardless is make sure she is getting enough fats.

Try giving her an age-appropriate multivitamin at night or first thing in the morning, as far away (time-wise) from her gluten snacks as possible and preferably not with any fats if you think that she is in fact malabsorbing these.

If you do decide to use breastmilk, maybe cut the multi-vitamin in half depending on how much milk you give her. Your milk is very nutrient-dense.

This is what I can give you off the top of my head; I'm going to sit down with some books and see what else I can find for you.

Guhlia Rising Star

I've been giving her gummy vites since they're gluten free and that's what I take. They're a kids multi.

JNBunnie1 Community Regular
I've been giving her gummy vites since they're gluten free and that's what I take. They're a kids multi.

I think if you squirt fluid vitamins under her tongue she will absorb them better. Also, breastmilk is a FABULOUS idea! Most people don't like the idea for some reason, but human breastmilk is one of the very best things you can give anyone who's sick.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jmd3 Contributor

I am not a pro on malabsorption,

but give her as much breast milk as you can provided you don't take away from the baby!! The great thing about breast milk is the more breast milk you use today, the more you will make tomorrow! Keep up your own fluids, and eat an extra healthy snack or two as you will need it to make more milk. It may make your 2 year olds' stools a bit runnier?? Breast milk is for humans!

bakingbarb Enthusiast

I don't know if this will help you or not but my daughter and myself drink Emergen-C

Fructose aids in the absorption of the vitamins and these drinks seems to help us quite a bit.

babygirl1234 Rookie

does your daughter have celiac disease and was she getting sick from gluten? because if she is then yes she does have celiac disease, some of my kids have celiac disease i had to take Justin to the doctor to get him tested and i got the call yesterday and he went for a scop today and a biopsy so thats Jason Conner Katie And Justin that have it

Guhlia Rising Star
does your daughter have celiac disease and was she getting sick from gluten? because if she is then yes she does have celiac disease, some of my kids have celiac disease i had to take Justin to the doctor to get him tested and i got the call yesterday and he went for a scop today and a biopsy so thats Jason Conner Katie And Justin that have it

She's never been tested. We suspected Celiac a long time ago, but the real reason we took her off gluten is because she's a messy little kid and I couldn't keep her from glutening me constantlyl. It just wasn't worth me being sick all the time.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Newly diagnosed mam to coeliac 11 year old

    2. - tiffanygosci replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      1

      Celiac support is hard to find

    3. - trents replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

    4. - mamaof7 posted a topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

    5. - Dizzyma replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Newly diagnosed mam to coeliac 11 year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,957
    • Most Online (within 30 mins)
      7,748

    konny heigle
    Newest Member
    konny heigle
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
      You are very welcome @Dizzyma. Gastroenterologists are now following this rule in the UK more and more with children, so I am not surprised your daughter is not having an endoscopy.   Switching to a gluten free diet should begin to help, but also, even if you have to have testing done privately, it would be very helpful for you to find out if your daughter has vitamin and mineral deficiencies, which is highly likely,    In the UK tests are generally offered on the NHS for B12 and ferritin, and sometimes vitamin D.  Shortages in these can really cause any anxiety or depression or ramp it up. If you do end up supplementing, make sure your GP is aware as levels do need to be monitored, for example,  too much ferritin can cause huge health issues. Re: anxiety, definitely speak to a GP or another health care professional about this if it is an issue. Hopefully the Coeliac Society of Ireland will also be able to help. Cristiana  
    • tiffanygosci
      EDIT: I did find a monthly Zoom meeting for Celiacs through the Celiac Disease Foundation, so I'll be able to talk with some other people on January 15. And I also found a Celiac Living podcast on Spotify made by a celiac. I feel a little bit better now and I am still hoping I will find some more personal connections in my area.
    • trents
      Welcome to the celiac.com community, @mamaof7! It means for the one celiac disease antibody test that was ordered, she tested negative. However, other tests should have been ordered, especially for someone so young who would have an immature immune system where there would be a high probability of being IGA deficient.  The one test that was ordered was an IGA-based antibody test. It is not the only IGA antibody test for celiac disease that can be run. The most common one ordered by physicians is the TTG-IGA. Whenever IGA antibody tests are ordered, a "total IGA" test should be included to check for IGA deficiency. In the case of IGA deficiency, all other IGA tests results will be inaccurate. There is another category of celiac disease antibody tests that can be used in the case of IGA deficiency. They are known as IGG tests. I will attach an article that gives an overview of celiac disease antibody tests. All this to say, I would not trust the results of the testing you have had done and I would not rule out your daughter having celiac disease. I would seek further testing at some point but it would require your daughter to have been eating normal amounts of gluten for weeks/months in order for the testing to be valid. It is also possible she does not have celiac disease (aka, "gluten intolerance") but that she has NCGS (Non Celiac Gluten Sensitivity, or just "gluten sensitivity" for short) which is more common. The difference is that celiac disease is an autoimmune disorder that damages the lining of the small bowel whereas NCGS does not autoimmune in nature and does not damage the lining of the small bowel, though the two conditions share many of the same symptoms. We have testing to diagnose celiac disease but there are no tests for NCGS. To arrive at a diagnosis of NCGS, celiac disease must first be ruled out. A gluten free diet is the solution to both maladies.   
    • mamaof7
      For reference, daughter is 18 mths old. Was having painful severe constipation with pale stool and blood also bloating (tight extended belly.) Liver and gallbladder are normal. Ultrasound was normal. Dr ordered celiac blood test. We took her off gluten after blood draw. She is sleeping better, no longer bloated and stools are still off color but not painful.    "GLIADIN (DEAMID) AB, IGA FLU Value  0.84 Reference Range: 0.00-4.99 No further celiac disease serology testing to be performed. INTERPRETIVE INFORMATION: Deamidated Gliadin Peptide (DGP) Ab, IgA A positive deamidated gliadin (DGP) IgA antibody result is associated with celiac disease but is not to be used as an initial screening test due to its low specificity and only occasional positivity in celiac disease patients who are negative for tissue transglutaminase (tTG) IgA antibody."   Anyone know what in the world this means. She isn't scheduled to see GI until late April. 
    • Dizzyma
      Hi Trent and Cristiana, thank you so much for taking the time out to reply to me.  My daughters GP requested bloods, they came back as showing a possibility of celiac disease, she advised me to continue feeding gluten as normal and wait on a hospital appointment. When we got that the doctor was quite annoyed that the gp hadn’t advised to go gluten free immediately as she explained that her numbers were so high that celiac disease was fairly evident. That doctor advised to switch to a gluten-free diet immediately which we did but she also got her bloods taken again that day as it made sense to double check considering she was maintaining a normal diet and they came back with a result of 128. The hospital doctor was so confident of celiac disease that she didn’t bother with any further testing. Cristiana, thank you for the information on the coeliac UK site however I am in the Rrpublic of Ireland so I’ll have to try to link in with supports there. I appreciate your replies I guess I’ll figure things as we go I just feel so bad for her, her skin is so sore around her mouth  and it looks bad at an age when looks are becoming important. Also her anxiety is affecting her sleep so I may have to look into some kind of therapy to help as I don’t think I am enough to help. thanks once again, it’s great to be able to reach out xx   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.