Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Help With How I Am Feeling...

blondebombshell

Recommended Posts

blondebombshell Collaborator
blondebombshell
Posted

went to the GI doc yesterday and he has me scheduled for an endoscopy for 3 weeks from now. he told me to get back on gluten to see if when they do the endo if they will be able to tell what my stomach/intestine look like.

as a result of adding this back into my diet i have ITCHY hives everywhere on my calves. could this be DH?

i have never had these itchy bumps. just constipation which caused me to go off gluten, thinking that after having a blood test indicating that i was gluten intolerant that maybe that was it. now that i am putting it back into my diet after being off of gluten for 1 month, i cant handle this!

do you think its celiac? do you think it could be something else?

thanks so much

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted
went to the GI doc yesterday and he has me scheduled for an endoscopy for 3 weeks from now. he told me to get back on gluten to see if when they do the endo if they will be able to tell what my stomach/intestine look like.

as a result of adding this back into my diet i have ITCHY hives everywhere on my calves. could this be DH?

i have never had these itchy bumps. just constipation which caused me to go off gluten, thinking that after having a blood test indicating that i was gluten intolerant that maybe that was it. now that i am putting it back into my diet after being off of gluten for 1 month, i cant handle this!

do you think its celiac? do you think it could be something else?

thanks so much

You are showing a positive reaction to the challenge. That is diagnostic for more intelligent doctors. Your body liked being gluten-free and now it is showing you how much it liked it. Many of us have C for years as the body tries desperately to draw nutrients into our system through an intestine that is not functioning normally. Eventually your intestines will be damaged enough for episodic D and then a life sitting on the toilet. Whether you continue with the challenge is up to you. I still feel it is barbaric for doctors to demand that we make ourselves extremely ill just to 'prove' we have a problem with something that has progressed far enough to cause permanent (at times) damage. If they can use a gluten suppository and biopsy of cheek or rectum in other countries I don't know why they can't do that here, oh wait, yes I do. An endo requires an invasive procedure in a facility with lots of cash going into their pockets, a noninvasive biopsy can be done in office with a local and only regular staff with no OR.

Emily Elizabeth Enthusiast
Emily Elizabeth
Posted

I had an itchy rash/hives thing on my upper leg and my ankles when I was at my sickest. It certainly does sound like celiac disease to me. I can't imagine having to go back to eating gluten again. Thankfully I had all of my tests done before going gluten free and feeling better. Good luck!

blondebombshell Collaborator
blondebombshell
Posted
  • Author

wow - i told him that i had itchy hives after eating some bread once and he didn't say anything. he said that since this is 'sudden,' like i have never had issues with the hives or not that it could be allergies.

my whole life i had issues with going to the bathroom. i only go about once a week if i am lucky. that is why i went to the doctor in the first place (the regular doc) and he did some blood work. this indicated that i had a gluten and egg white allergy. that was it. he said, well try a gluten free diet, lol.

i took it a step further and made an appt with a GI doc and now i have these bumps from time to time and i am assuming that they have to do with the gluten.

he told me that a gluten free diet is hard to stick with and it is expensive. whatever i guess, right!

Jestgar Rising Star
Jestgar
Posted

The diet ends up being a lot cheaper than all the prescription meds you have to take to control all the symptoms.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Aretaeus Cappadocia
      - Aretaeus Cappadocia posted a topic in Gluten-Free Recipes & Cooking Tips
      0

      Pear Bread

      I adapted this to be a gluten-free recipe from www.tasteofhome.com/recipes/autumn-pear-bread. Wonderful flavor profile, great texture, fairly easy to make. The almond flavor from the almond flour complements the pear flavor. Ingredients 1 cup almond flour 1 cup sweet rice flour 1 cup millet flour 2 Tablespoons tapioca flour ...
    2. Aretaeus Cappadocia
      - Aretaeus Cappadocia commented on Amiah's blog entry in Amiah
      2

      Help!!

      I agree with Trents' reply. In addition ... Your post does not say what you did with your child's diet after the blood test and prior to the endoscopy. Usually the Dr advises a "gluten challenge" prior to the test so that the inflammation is more pronounced and easier to see. On the other hand, if they didn't mention this, you may have reasonably restricted...
    3. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Doctors
      12

      Second chance

      @Jmartes71, I understand how frustrated you feel. I have been disappointed with the medical system myself. Have you read my story in my blog? What can we do to help you get better? Nutritional deficiencies are common in Celiac disease. Have you been checked for vitamin and mineral deficiencies? Which supplements are you taking?
    4. Mari
      - Mari replied to Jmartes71's topic in Doctors
      12

      Second chance

      hi jmartes This is a link you can click on to see a form to fill out to obtain medical records from Kaiser. If you have already submitted this form you could send in another one. . The form asks for your MR# and please remember to put in the name you were using before you were married. How to Request Copies of Medical Record from Kaiser Permanente...
    5. trents
      - trents replied to anya22's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Test interpretations

      It would seem then that your next step should be a biopsy to check for damage to the villous lining of the small bowel. But you must not reduce gluten intake until that is performed else healing will take place in that area of the intestines and the biopsy results would be invalidated.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,684
    • Most Online (within 30 mins)
      7,748
    Cassi41
    Newest Member
    Cassi41
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Pear Bread

      By Aretaeus Cappadocia · Posted

      I adapted this to be a gluten-free recipe from www.tasteofhome.com/recipes/autumn-pear-bread. Wonderful flavor profile, great texture, fairly easy to make. The almond flavor from the almond flour complements the pear flavor. Ingredients 1 cup almond flour 1 cup sweet rice flour 1 cup millet flour 2 Tablespoons tapioca flour 1 cup sugar 1 ½ teaspoon baking powder 1 teaspoon baking soda 3/4 teaspoon salt 1/4 teaspoon ground nutmeg 6 tablespoons cold butter 3 large eggs, room temperature 3/8 cup buttermilk (1 tsp white vinegar + 3/8 cup milk) 2 teaspoon vanilla extract 1 ½ cup finely chopped ripe pears (1-2 med/large pears. You could peel them but I don't) Directions (optional) cut butter into pats, place on saucer in the refrigerator while prepping other ingredients In large bowl, combine flour, sugar, baking powder, baking soda, salt and nutmeg. (I use a whisk to mix) Cut in butter until mixture resembles coarse crumbs. (I use pastry blender) Combine eggs, buttermilk and vanilla (I use same whisk); stir into flour mixture just until moistened. (I use a mixing spoon) Fold in pears. (mixing spoon) Spoon into 2 greased 5 x 8 inch loaf pans Bake at 350° for 35-40 minutes or until toothpick inserted in center comes out clean. Cool for 10 minutes before removing from pans on to wire rack. Allow to cool completely. Not sure how long you can keep this at room temperature because it gets eaten quickly
    • knitty kitty
      Second chance

      By knitty kitty · Posted

      @Jmartes71, I understand how frustrated you feel.  I have been disappointed with the medical system myself.  Have you read my story in my blog?   What can we do to help you get better?   Nutritional deficiencies are common in Celiac disease.  Have you been checked for vitamin and mineral deficiencies?   Which supplements are you taking?
    • Mari
      Second chance

      By Mari · Posted

      hi jmartes This is a link you can click on to see a form to fill out to obtain medical records from Kaiser. If you have already submitted this form  you could send in another one. . The form asks for your MR# and please remember to put in the name you were using before you were married.      How to Request Copies of Medical Record from Kaiser Permanente Form - Fill Out and Sign Printable PDF Template | airSlate SignNow
    • trents
      Test interpretations

      By trents · Posted

      It would seem then that your next step should be a biopsy to check for damage to the villous lining of the small bowel. But you must not reduce gluten intake until that is performed else healing will take place in that area of the intestines and the biopsy results would be invalidated. 
    • knitty kitty
      Test interpretations

      By knitty kitty · Posted

      Welcome, @anya22, Can you tell us more about your diet?   How much gluten containing foods did you eat?  What kinds of gluten containing foods did you eat?  What has your high calorie diet consisted of?   Some gluten containing foods contain less gluten than others.  Cakes and cookies may have less gluten than something like deep dish pizza.   Glad you're here!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.