Horrific Glutening

[Emily Elizabeth]

I have been horribly sick for 32 hours now and am starting to wonder if this is a "normal" celiac related glutening or if I am sick with something else. It is like I have been taking the colonoscopy prep pills for 32 hours straight (seriously - no exaggeration). Has anyone else been glutened this badly? If so, do you have any advice on how to get through it? I'm scared to eat anything so I'm making jello and drinking tea with honey in it. Thanks in advance for your help!

__________________________________________

Diagnosed with Celiac Disease 5/15/07

no other allergies that I know of

gluten free for about 6 months with occasional accidental glutenings

[confused]

yes i have had it that bad, what i do sometimes is gbo on the brat diet, well minus the toast and it helps me feels somewhat better and lots of gatorade.

hope you feel better soon

paula

[Emily Elizabeth]

Thanks so much for posting this. I'm glad to hear that I'm not alone in this experience and I'm not dying! I'd never heard of the Brat diet before so I googled it. It definitely looks like a good plan. I just wish now that I knew what glutened me. It'd be worth it if I had a nice big slice of pizza for all this pain.

yes i have had it that bad, what i do sometimes is gbo on the brat diet, well minus the toast and it helps me feels somewhat better and lots of gatorade.

hope you feel better soon

paula

[Lisa]

Yes, the BRAT diet can help ease the symptoms, a little.

Banana, Rice, Apple Sauce and Tea.

[Emily Elizabeth]

Thanks for your help! I just tried eating rice in chicken bouillon so we'll see how that goes. It can only get better at this point I think!

Yes, the BRAT diet can help ease the symptoms, a little.

Banana, Rice, Apple Sauce and Tea.

[buffettbride]

If it helps any, my non-Celiac child has had awful poopies since last Friday. We call them the uberpoopies. Nothing solid has come out of that boy in almost a week.

I hope you get to feeling better soon.

[Emily Elizabeth]

It does help, thanks! It's nice to know that I'm not crazy over here. I really appreciate all of the responses. I called my doctor twice this morning and emailed yesterday and have not heard anything back. This board is such a comfort. I am so thankful to be able to have such a large and knowledgeable support group! Thank you very much!

[JNBunnie1]

I have been horribly sick for 32 hours now and am starting to wonder if this is a "normal" celiac related glutening or if I am sick with something else. It is like I have been taking the colonoscopy prep pills for 32 hours straight (seriously - no exaggeration). Has anyone else been glutened this badly? If so, do you have any advice on how to get through it? I'm scared to eat anything so I'm making jello and drinking tea with honey in it. Thanks in advance for your help!

__________________________________________

Diagnosed with Celiac Disease 5/15/07

no other allergies that I know of

gluten free for about 6 months with occasional accidental glutenings

I think you're fine, but ask yourself a couple questions. What ELSE feels wrong? Are you vomiting? Any funky rashes? I don't think jello will help, the brat idea is much better. Other than that, do you generally feel the way you did last time you got glutened?

[Generic]

I used to ride it out, sometimes I would end up in the ER for dehydration, since I would have both ends going. I don't get that sick anymore since i went to acupuncture.

I suggest imodium (not the liquid kind, I think it has gluten in it). It will slow the D or completely stop it.

[Emily Elizabeth]

Those are good questions. I haven't felt this way since I was glutened only a few weeks after being diagnosed after eating out at PF Changs. I was up in the middle of the night a few times with D, but it didn't last nearly as long as this. Nothing else feels wrong really. I am only tired from being kept up all night with D from what I can tell. I do have a little bit of the ichy upper leg that I used to have, the foot cramping and the blood blister inside my mouth is back. Ohter than the jello, I have eaten rice with bouillon or with just water and salt and applesauce all day long. I do feel better. I haven't had to go in a long time so thats good. I'm hoping that I will actually sleep through the night tonight.

Thank goodness for this support group. My doctor/nurse never responded to the message I left. I go to Dr. Fasano in MD. Is this not something that GI doctor's help with? Should I have called my regular doctor first? Thanks!

I think you're fine, but ask yourself a couple questions. What ELSE feels wrong? Are you vomiting? Any funky rashes? I don't think jello will help, the brat idea is much better. Other than that, do you generally feel the way you did last time you got glutened?

[JNBunnie1]

Those are good questions. I haven't felt this way since I was glutened only a few weeks after being diagnosed after eating out at PF Changs. I was up in the middle of the night a few times with D, but it didn't last nearly as long as this. Nothing else feels wrong really. I am only tired from being kept up all night with D from what I can tell. I do have a little bit of the ichy upper leg that I used to have, the foot cramping and the blood blister inside my mouth is back. Ohter than the jello, I have eaten rice with bouillon or with just water and salt and applesauce all day long. I do feel better. I haven't had to go in a long time so thats good. I'm hoping that I will actually sleep through the night tonight.

Thank goodness for this support group. My doctor/nurse never responded to the message I left. I go to Dr. Fasano in MD. Is this not something that GI doctor's help with? Should I have called my regular doctor first? Thanks!

Oh, itchy leg foot cramps- that's a glutening! You don't get that stuff from a stomach bug.

[Emily Elizabeth]

I'm sure you're right. I really wish that I knew what caused it. I was on a cruise a couple weeks ago where I'm sure I was mildly glutened the whole time - stomach distention, multiple trips to the bathroom and irritability. I don't think I had ever really gotten over it and I certainly wasn't being super careful about cc and such like I used to be. I wonder if getting glutened slightly for a long period of time will cause a big reaction later? Like a breaking point or something? Anyway, I will now go back to being a crazy OCD person about gluten. I certainly learned my lesson!

Thanks again for your help. It means a lot to be able to talk with people who have gone through this.

Oh, itchy leg foot cramps- that's a glutening! You don't get that stuff from a stomach bug.

[LilyCeliac]

It really is the worst. Your not alone.

And I know how you feel about the non responsive Doctors. Even if they did respond they probably wouldn't have useful information. Thats been my experience.

I also have to rely on this forum for information cause its almost impossible to get it anywhere else.

The last time I felt really sick I was so nauseous and I took two gravol and it knocked me out and I slept like a baby and when i woke up I felt so much better! The Pharmacist told me gravol was gluten free so I'm hoping that was correct.

Also I agree with the Gatorade suggestion. That always seems to help me when I'm feeling sick and also when I have no appetite.

[Emily Elizabeth]

Yeah, you're right about the doctors. I called again yesterday to ask if I should call my regular doctor rather then them (GI doc) when I am having a problem since I didn't get a call back the day before. I was then put right in contact with the nurse. She was very nice and said she wasn't in the day before so that is why I didn't get a call. She did say that I could call either them or my regular doc when I'm having problems or have questions. You're right though, in the end, I really get the most information from this board as far as coping with symptoms and such. She didn't tell me anything that I hadn't read here. I'm so thankful for this board!

It really is the worst. Your not alone.

And I know how you feel about the non responsive Doctors. Even if they did respond they probably wouldn't have useful information. Thats been my experience.

I also have to rely on this forum for information cause its almost impossible to get it anywhere else.