Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sanitary Napkins/pads


Juliebove

Recommended Posts

Juliebove Rising Star
Very interesting. I have always used Stayfree because they are the only ones now who sell ones without wings. Like some of you here I have DH and my period is so irregular that I have to always wear one on a daily basis basically. (for example: ranges anywhere from 2 - 13 days, and from 8 days to 2 1/2 months between cycles). Can't get much more irregular than that.

Now I have a better excuse to only buy Stayfree...

~ Lisa ~

I thought mine were I had one that came something like 22 days after the other one had started. Sometimes they come late, but generally early these days and I never know how long they will last. Had one that was 3 days and heavy for all three. Most of the time they are 5-7 but some are longer. I figure I have about 2 weeks in there where I can wear pants that aren't black or navy blue. I only feel safe to wear them right after it has stopped and then back to the dark colors.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



num1habsfan Rising Star
I thought mine were I had one that came something like 22 days after the other one had started. Sometimes they come late, but generally early these days and I never know how long they will last. Had one that was 3 days and heavy for all three. Most of the time they are 5-7 but some are longer. I figure I have about 2 weeks in there where I can wear pants that aren't black or navy blue. I only feel safe to wear them right after it has stopped and then back to the dark colors.

Yeah I know what you mean about hating wearing light jeans. It's too unpredictable about how light or heavy it will be so I just play it safe. It gets really annoying sometimes :P.

~ Lisa ~

NoGluGirl Contributor

Dear Cathy,

That is interesting. Thank you for sharing your experience! :) I use Stayfree, but irritation is still there. I think it could be my yeast overgrowth, but synthetic fibers may add to the trouble. Maybe I will try some of the Natracare and see how that goes.

I had to go on the Depo-Provera shot at 17 years old due to excruciating cramps, abnormally heavy blood flow (I was anemic, and normally went through a Super-Plus tampon in an hour), and had five cysts on my ovaries in less than a year. The pain I experienced was terrible, where it shoot from my uterus down into my rectum. I could not stand straight for the first three days of my period. I endure enough misery on a daily basis. I do not need more of that again!

Dear Lisa and Julie,

My periods used to be like clockwork. They were always every five weeks and 1 day. Then in early 2005, I began bleeding off and on all the time.

It is very light, but uncomfortable due to having to wear pads all the time. My yeast overgrowth probably is irritated by it. I cannot wear tampons, because there is not enough flow for that.

I am afraid to go off the Depo, because I probably will have to have a hysterectomy when the cysts come back, and go straight into menopause. What kind of a choice is that? These problems run in our family on both sides. My mother had a hysterectomy at 31, her mother at 36, and my grandmother on my father's side had one at 26! Adoption is always a good option for children, but my body is another story.

Sincerely,

NoGluGirl

ShadowSwallow Newbie

Oh my goodness, I never would've thought of this. :o That might explain some things. :ph34r:

I've never used pantyliners, but have used Always for ages and ages (need those wings) and have always had hormonal problems.

Of course a few years ago when my flow was fairly heavy, lasted 10 days, and had 2 weeks between each time, I thought it was normal. :rolleyes: Fortunately it's lightened up considerably, but they're still long (7-9 days).

Anna'sMommy Newbie
From a sanitary standpoint she should definitely be washing her hands after putting a pad on. However, we all know how kids are, even the cleanest kids. I stick to tampons because of this issue. The only pads I've ever heard of not being gluten free are one of the Always pads. When I had my baby I used Stayfree and didn't have any gluten issues. I was really careful though just in case. I'd call the company just to be safe.

Hi! I am trying to create a way to communicate on this forum. I have logged in as Anna'sMommy. Have you seen my posting this evening? Could you please give me some instructions on how to post. My daughter is 3.5 years old and just diagnosed w/ Celiac Disease this week.

Thank you!!! Your daughter is a cutie.

babygirl1234 Rookie

i dont have any pomb with pads, i use always and i've been fine with them,

Nyxie63 Apprentice

Ya know, this never occurred to me. Could explain why I get the irritation down there. I've been using Always ultrathin overnights with wings. They're the only thing I've found that makes me feel somewhat "safe" from leaks, yet doesn't feel like I've got a roll of toilet paper between my legs. I thought it was because the plastic lining was keeping the area moist and the moisture was causing the irritation. Will look for another brand now and see if that changes anything.

Like a lot of you gals, I have horrendous periods. Honestly, I'm afraid to leave the house the first 2 days of my cycle because the flow's so heavy. Have to use 2 tampons (which I only use if having to go out of the house on the first 2 days), plus a pad and still have to change every 3 hours. Painful cramping and a flow that lasts 7-10 days (usually closer to 10) doesn't help either. Gee, think this could be why I also have an iron deficiency? *snort*

My periods are fairly regular Feb to the end of August. Sept through the end of Jan is another story. Missing periods, cycles 10 days to 6 weeks apart. Ugh. This is the third autumn in a row where I've traded periods for hot flashes (perimenopause anyone?). Guess that's ok since it helps cut down on the heating bills. :P Hubby has threatened to use me to clear the driveways this winter. Have me stand out there and radiate heat to melt the snow. :lol:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Fiddle-Faddle Community Regular
My periods are fairly regular Feb to the end of August. Sept through the end of Jan is another story. Missing periods, cycles 10 days to 6 weeks apart.

Does your exercise routine differ between Feb-August and Sept-January? Or maybe you are outside less? Maybe a Vitamin D deficiency????

There's gotta be an explanation....

debmidge Rising Star
Always has a "stay-dry" liner on top of their pads that feels like a rubbery kind of plastic. I found that that liner is especially irritating. I always thought of it as the same feeling as wearing an old-fashioned slicker (raincoat) next to your skin--ugh.

I always (no joke intended) hated that plastic liner. I felt it repelled the moisture it was supposed to soak up. Give me cotton any old day (however due to surgery, haven 't needed this stuff in years).

Nyxie63 Apprentice
Does your exercise routine differ between Feb-August and Sept-January? Or maybe you are outside less? Maybe a Vitamin D deficiency????

There's gotta be an explanation....

I do have a vit D deficiency. Upped my dosage from 2000IU to 4000IU daily at the beginning of Oct. As for exercise, I've been a sofa slug this year, due to severe fatigue and joint/muscle pain. In previous years, I've been fairly active, indoors and out, with the same seasonal cycle changes.

Part of me is thinking maybe its stress, even though I'm not really feeling any more stressed than normal. The holiday season is usually a bad time due to past events (been dx'd with PTSD) and I'm thinking its throwing my system off. I'm pretty sure the vit D has helped to prevent the annual bout of depression I usually get around this time of year. So far, it hasn't hit. Maybe I need to find a way to clue my reproductive hormones in as well.

I'm going to be seeing a new dr next month who specializes in hormone-y stuff, so maybe she has a idea about this. It could just be good ol' perimenopause and the whole seasonal thing is a coincidence. I am 44, after all. At this point, I'm not settling on anything or ruling anything out.

Fiddle-Faddle Community Regular

Wow, Nyxie, I have most of the diagnoses you have except for the CFS and the adrenal fatigue.But what is PTSD?

I feel much more tired when I don't get any exercise or fresh air. I swim and/or walk for exercise, though not nearly as much as I'd like. I never get in more than 20 laps, and usually it's 10 or fewer (I used to do 50), but it still makes a HUGE difference, even if I only get there 2-3 times a week. I sleep much, much better, focus better, aches and pains disappear, etc.

Getting outside just helps my mood and my sleep--but that would help your Vitamin D deficiency, wouldn't it? Maybe a 10-20 minute slow walk around the neighborhood every day? (And then a good nap!)

Are you a vegetarian? That might make it much more difficult for you to get easily absorbable iron, and might have a big effect on your energy, though I would never try to convince you to give up vegetarianism if it's something that is important to you. But you might want to make sure that you're not eating too many of the gluten-free breads and cookies, as I have found that that does slow me down quite a bit. Potatoes and rice don't seem to be a problem for me, though, thank heavens!

NoGluGirl Contributor

Dear Nyxie63,

I know what that is like! I used to be anemic until they stopped my periods with Depo. Now, it has gone nuts more recently. Vitamin deficiencies may be an issue for me as well. I am no longer anemic, but still suffer from hormone issues.

Dear Alison,

PTSD is Post-Traumatic Stress Disorder. This follows an emotionally traumatizing event. You probably knew that already, though! I agree Nyxie could have Vitamin issues. Many of us do! I began doing research on B-Vitamin deficiencies, and was surprised by all of the scary things that go wrong when you are severely deficient in them. Numbness is something I deal with, and although I may have Lyme, maybe taking a sublingual B supplement could help with my weakness and feeling faint.

Sincerely,

NoGluGirl

Nyxie63 Apprentice

Alison and Jin,

Oh yeah! I've got deficiencies. Iron, vit D, B5, B12 and folate. Calcium, magnesium, the rest of the B vits are low too. I think I'm finally starting to absorb some of these, now that my diet has changed. Been taking B12 sublinguals for the past few weeks and they're really helping. I can actually get off my butt for more than 5 minutes at a time now without having to rest for a 1/2 hour afterwards. Believe it or not, that's a big thing! :)

I'm not vegetarian, but about 1/2 of my food intake is veggies and I eat very few processed foods. I've completely cut out gluten, corn, dairy, soy, and sugar. I was eating a lot of brown rice but found it gave me stomach cramping. Switched over to regular rice and that seems to have solved the problem. Don't eat many regular potatoes - simply adore sweet potatoes. :P I eat one serving of chicken or fish daily and usually have red meat or pork about once a week. Since apples are in season, I'm going nuts with them. Probably eating too many, but they're soooo good!

It seems quite a few of us have a similar set of dx's. I'm not really sure the CFS dx is correct tho. It was done by symptoms alone, with no testing for Epstein-Barr or other virus. In addition, the severe fatigue and most of the pain have passed since I've been supplementing. Think my CFS symptoms were a combination of the vit D/iron deficiencies and the adrenal fatigue. I no longer have long recovery periods after being busy for a couple of hours. It used to take up to a week to recover after going shopping with hubby or doing anything that required a couple of hours of exertion (like walking). Still need to nap in the afternoons, but I look at that as a necessary luxury.

I really do need to exercise more often. Now that I have more energy, I've been using it to deal with the residual household chaos. Can't stand the clutter and mess anymore. Would really love to be able to just go for a walk without having to drive somewhere. We live on a little back country road that's used as a shortcut between two main roads. Lotsa traffic that goes waaaaay too fast for how hilly and twisty this road is. And no sidewalks.

I've had PTSD for about 9 years now. Not going to go into why, since this is an open forum. It first manifested as flashbacks and nightmares. Then I had what is called an "acute depressive episode" which is just a fancy term for a nervous breakdown. Was agoraphobic for 2 years and, even after that passed, would get severe panic attacks. I'm considerably better now, but still have quite a few anxiety disorders left over. I'm sure this helped to contribute to the adrenal fatigue.

Gee, I blabber on! Thanks for listening! :)

Jin, are you still on Depo? Do you feel faint when standing up or does it just come on suddenly? The dizziness and feeling of faintness when standing up is one of the symptoms of adrenal fatigue. There's another way to check. In a darkend room, get a mirror and a flashlight. Shine the flashlight from the side (not directly into your eyes) and see how your pupils react. If they stay small for 30 seconds or longer, you're probably ok. If they close then open after 30 seconds or sooner, or flutter larger and smaller, then you probably have adrenal fatigue.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,939
    • Most Online (within 30 mins)
      7,748

    Michelle C.
    Newest Member
    Michelle C.
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Theresa2407
      Usually when I digest gluten or wheat I have a 4 hour window before reacting.  If it is immediate it may be an intollerence to another food.  Dairy, Frutose, and bacteria (SIBO) will react with many of the celiac disease symtoms.Has your Doctor ran a  Fructose test which is measuring your Fruit Sugar?  A Hydrogen Beath Test which checks your intestinal bacteria and Dairy?After my biopsy and blood work, these (3) tests were also ran, along with allergy tests, which allery test was sent out of State.  It was a mouth swab. How fast you heal depends on the diet you are following… The following are my personal recommendations to healing. I talk to many newly diagnosed people who start the gluten-free diet with pasta, breads, snacks, and pizza. After a month or so, they do not know why they don’t feel any better and still are sick with their original symptoms: They worry the diet is not working for them. For some there may be other factors involved, but most just aren’t letting their body heal properly. I blame the internet, and misinformation it contains. People want a quick fix, not realizing this is a life long disease. They need a good support group, with people who have been through this and knows what works!  This is what I have found will work for you.                                                                                            First 6 weeks should be:                                                                                                                                 lean meat (beef, pork, chicken, turkey, salmon, sardines, buffalo, deer)                                                   fresh vegetables (steamed or roasted with a little Olive Oil) with 2 cups per day being raw (5 servings; a serving is 1/2 cup)                                                                                                                                      fresh fruit (3 servings; include strawberries, blackberries and blueberries daily)  Makes good shakes with Almond milk.                                                                                                                                        A hand full of almonds daily (pecans and walnuts can be substituted)                                                        brown rice, lentils, Citrucel daily (or the equivalent) Good source of fiber. I use Calm because my body doesn’t absorb Magnesium and I only need to take once in evening.                                                    No dairy of any kind (milk, cheese, yogurt, No breads, No past,  No oats, No pizza, No gluten-free beer, No snacks like cake, biscuits, pies, donuts.                                                                                                Many dietitians will tell you to follow a gluten free diet but you have to heal first. Don’t misunderstand me, dietitians are our friends and help us.                                                                                              10% of people with gluten-free will be intolerant to dairy                                                                                  10% can not tolerate oats                                                                                                                     After the six weeks, you can start to add these foods back into your diet. 1 new food every 4 days; this way you know if you react to this food.                                                                                                  Oats shouldn’t be tried for 1 year after being diagnosed; then start with 1/3 of a cup. Only gluten-free Oats are acceptable.                                                                                                                                              You should have results within 3 days of following a correct healing diet. Bloating should be leaving, migraines should be gone. Might take bowels a little longer to respond. If you start with 5 times a day on the Citrucel and cut back as your bowels return to normal; then use 1 Tbsp. daily. This works if you have constipation or diarrhea.                                                                                                        Meanwhile make sure you have had a Dexa test (bone density) and a blood test to check your vitamin and mineral levels: Zinc, D,K,B,C and iron levels.                                                                                  Don't take supplements while healing as your body is not accepting them and they will flush through your body.                                                                                                                                              Have you had a breath test for Dairy, Fructose, and bacteria overgrowth? Should have done when first diagnosed.                                                                                                                                        How fast you heal depends on the diet you are following… The following are my personal recommendations to healing. I talk to many newly diagnosed people who start the gluten-free diet with pasta, breads, snacks, and pizza. After a month or so, they do not know why they don’t feel any better and still are sick with their original symptoms: They worry the diet is not working for them. For some there may be other factors involved, but most just aren’t letting their body heal properly. I blame the internet, and misinformation it contains. People want a quick fix, not realizing this is a life long disease. They need a good support group, with people who have been through this and knows what works! This is what I have found will work for you. First 6 weeks should be: lean meat (beef, pork, chicken, turkey, salmon, sardines, buffalo, deer) fresh vegetables (steamed or roasted with a little Olive Oil) with 2 cups per day being raw (5 servings; a serving is 1/2 cup) fresh fruit (3 servings; include strawberries, blackberries and blueberries daily) a hand full of almonds daily (pecans and walnuts can be substituted) brown rice lentils Citrucel daily (or the equivalent) Good source of fiber. No dairy of any kind (milk, cheese, yogurt) No breads No pasta No oats No pizza No gluten-free beer No snacks like cake, biscuits, pies, donuts. Many dietitians will tell you to follow a gluten free diet but you have to heal first. Don’t misunderstand me, dietitians are our friends and help us. 10% of people with gluten-free will be intolerant to dairy 10% can not tolerate oats After the six weeks, you can start to add these foods back into your diet. 1 new food every 4 days; this way you know if you react to this food. Oats shouldn’t be tried for 1 year after being diagnosed; then start with 1/3 of a cup. Only gluten-free Oats are acceptable. You should have results within 3 days of following a correct healing diet. Bloating should be leaving, migraines should be gone. Might take bowels a little longer to respond. If you start with 5 times a day on the Citrucel and cut back as your bowels return to normal; then use 1 Tbsp. daily. This works if you have constipation or diarrhea. Meanwhile make sure you have had a Dexa test (bone density) and a blood test to check your vitamin and mineral levels: Zinc, D,K,B,C and iron levels. Don't take supplements while healing as your body is not accepting them and they will flush through your body. Have you had a breath test for Dairy, Fructose, and bacteria overgrowth? Should have done when first diagnosed. Remember to have a tTg IgA blood test repeated at 6 months then every year after, with another scope done in 3 years. Only way to know if you are healed. I don’t have all the answers; we are learning everyday new ways of doing things, but this is a start! Remember to have a tTg IgA EMA blood test repeated at 6 months then every year after 
    • Wheatwacked
      Marsh 3b is the Gold Standard of diagnosis for Celiac Disease.  Until recently, regardless of antibody tests, positive or negative, you had to have Marsh 3 damage to be awarded the diagnosis of Celiac. As I understand you,  you were having constant symptoms..  Your symptoms improved on GFD, with occassional flare ups. Did your doctor say you do and you are questioning the diagnosis? Regarding your increasing severity when you get glutened it is "normal".  Gluten acts on the Opiod receptors to numb your body.  Some report withdrawal symptoms on GFD.  I was an alcoholic for 30 years, about 1/2 pint of voda a day. Each time I identified a trigger and dealt with it, a new trigger would pop up.  Even a 30 day rehab stint, with a low fat diet (severe pancreatis) during which I rarely had cravings.  Stopped at a Wendys on the way home and the next day I was drinking again.  20 years later, sick as a dog, bedridden on Thanksgiving, after months of reasearch, I realized that gluten free was my Hail Mary.  Back in 1976 my son was diagnosed at weaning by biopsy with Celiac Disease and his doctor suggested my wife and I should also be gluten free because it is genetic.  At 25 years old I felt no gastro problems and promised if I ever did I would try gluten free.  Well, I forgot that promise until I was 63 and my wife 10 years dead.  Three days of gluten and alcohol free, I could no longer tolerate alcohol. Eleven years gluten and alcohol free, with no regrets. Improvement was quick, but always two steps forward and one back.  Over time I found nineteen symptoms that I had been living with for my entire life, that doctors had said, "We don't know why, but that is normal for some people". Celiac Disease causes multiple vitamin and mineral deficiency.  It is an autoimmune disease, meaning your immune system B and T cells create antibodies against ttg(2) in the small intestine in Celiac Disease, and sometimes ttg(3) in skin in Dermatitis Herpetiformus.  'Why' is poorly understood.  In fact, it wasn't even known that wheat, barley and rye gluten was the cause.  Celiac Disease was also called Infantilism, because it was deadly, and believed to only be a childhood disease. So, as part of your recovery you must deal with those deficiencies.  Especially vitamin D because it contols your immune system.  Virtually all newly diagnosed Celiacs have vitamin D deficiency.  There are about 30 vitamin and minerals that are absorbed in the small intestine.  With Marsh 3 damage you may be eating the amount everyone else does, but you are not absorbing them into your system, so you will display symptoms of their deficiency.   As time passes and you replenish your deficiencies you may notice other symptoms improve, some you did not even know were symptoms. Our western diet has many deficiencies built into it.   That is the reason foods with gluten are fortified.  Gluten free processed food are not required to fortify.  Vitamin D, Iodine, choline.  The B vitamins, especially Thiamine (B1) run deficient quickly.  We only store enough thiamine for 2 weeks so the symptoms of Gastrointestinal BeriBeri can come and go quickly.  Magnesium, zinc, etc. each having its own symptoms affecting multiple systems.  High homocystene, an indicator of vascular inflamation can be cause by deficient Choline, folate, B6 and or B12.  Brain fog symptoms by deficient choline, iodine, thiamine B1. Dietary intake of choline and phosphatidylcholine and risk of type 2 diabetes in men: The Kuopio Ischaemic Heart Disease Risk Factor Study  
    • Rogol72
      I cut out the rice because it was affecting my stomach at the time ... not necessarily dermatitis herpetiformis. It was Tilda Basmati Rice, sometimes wholegrain rice. I was willing to do whatever it took to heal. Too much fiber also disagrees with me as I have UC.
    • trents
      But you didn't answer my question. When you consume gluten, is there an identifiable reaction within a short period of time, say a few hours?
    • Scott Adams
      You can still have celiac disease with negative blood test results, although it's not very common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.