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Thyroid Disease Or Cd


LynnR

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LynnR Explorer

I have a friend who has been back & forth to doctors. She now knows it is either some sort of Thyroid Disease or celiac disease.

Are there some distinguishing factors or symptoms that could tell her which of these conditions she has? Doctors aren't giving her much help so she is trying to figure things by herself until she knows more for sure.


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Guest barbara3675

Very often they go hand-in-hand and she could have both. She needs to find a doctor that understands the concept and can give a proper diagnosis which is no easy task. You are nice to be helping your friend, she can use it, believe me. There is testing through Enterolabs that can confirm gluten intolerance for sure.

taneil Apprentice

I have hypothyroidsim, but decided to be tested for gluten intolerance through Entrolab. I am gluten intolerant and so went gluten-free knowing that gluten can trigger other autoimmune reactions like hypothyrodism. I now stick to being gluten-free and take a supplament to help support my thyroid. The gluten might be causeing the thyroid problem, but the gluten-free diet may not totally correct the thyroid issues.

Hope this helps at lease a little.

mommida Enthusiast

I have hashimoto's thyroiditis. (auto-immune thyroid disease)

It took over 10 years to get that diagnosed. Go to a specialist. If I didn't have the thyroid uptake test, ultrasound, and a blood test that screened for at least 5 different things I wouldn't have been diagnosed.

Do not start taking any over the counter thyroid replacement hormone or seaweed. Grave's disease is also an auto-immune thyroid disorder and that can kill a person quickly untreated. ( hyper/over- active thyroid)

I still haven't been diagnosed with celiac disease, but positive reaction to the gluten free diet. My daughter is diagnosed and I'm out of money. If I had started with the entero lab it would have been a lot cheaper and less invasive for my daughter and me.

Laura

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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