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After Going gluten-free Then If You Got Glutened Can It Feel Really Bad

seattlemama

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seattlemama Newbie
seattlemama
Posted

yesterday I started feeling a little like I had been glutened. then i made some gluten-free cookies as an experiment and had two. then i had some leftovers for dinner (turkey - not made by me) and I'm thinking it was the turkey. anyway, i was starting to feel a little worse. this was about 6 PM. By 10 PM i felt like i was going to vomit and have diarrhea and my tummy was so bloated. by 11 PM i had done both. my tummy finally settled and i sorta fell asleep on and off for the rest of the night. i haven't had any more vomiting but just a little diarrhea. doesn't really feel like a virus, but i don't know.

my question is if you get glutened since going off gluten, can your "attacks" be worse than you ever experienced before going gluten-free? I never had this reaction to gluten before i went gluten-free. just stomach aches, cramping, gas, etc.

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cruelshoes Enthusiast
cruelshoes
Posted

It has been my experience that my reactions to gluten get more severe the longer I am gluten-free. It has also been true for my son as well. He was asymptomatic when he was diagnosed. Now when he gets exposed to gluten, his reaction is swift and terrible.

Kinda seems unfair, doesn't it? The harder we try to be gluten-free, the worse the reaction to gluten gets. It really gives one a powerful incentive to remain totally gluten-free. ;)

Hope you feel better.

PS - When I am feeling poorly, I often immediately attribute it to gluten, when it may not be related at all. It is possible you just came down with a bug. A few confirmed glutenings should help you figure out exactly what your reactions are going to be so you can see the pattern of symptoms. Getting gluten happens to the best of us sometimes - even if we make superhuman effort to stay away from it.

cyberprof Enthusiast
cyberprof
Posted

Seattle Mama,

Yes, after going gluten free my reactions to even a small amount were extreme - worse than when I was on gluten all day, every day. Now after being gluten free for 9 months, I get a reaction but I don't get as sick. This is probably an individual thing, but perhaps the healing helps.

P.S. Both Colleen (Cruelshoes) and I are from Washington State too. Welcome to the forum!

babygirl1234 Rookie
babygirl1234
Posted

whenever i get gluten aka cheat omg i get sick to my stomach stomach cramps big time and it lasts for atleast a week maybe 2

loraleena Contributor
loraleena
Posted

Yes a thousand times worse for me.

kbtoyssni Contributor
kbtoyssni
Posted

I think it depends on the person. I'm one of the lucky ones whose reactions have decreased since going gluten-free. I have a hard time knowing if I got glutened or if I just have a bit of an upset stomach.

Rivergirl Apprentice
Rivergirl
Posted

Since going glutenfree, what I have noticed is my non-stomach and non-GI symptoms essentially have disappeared even after I have accidently glutened myself. So although my migraines, rashes, hand and finger tingling and numbing, brain fog, dizziness have gone away - what is WORSE THAN EVER when eating the tiniest speak of gluten is stomach cramps, bloating, and the big dreaded D. In fact those were my more minor symptoms before going glutenfree - now they are my worst.

On your other question - Turkey! Bad Turkey! There are many turkeys injected with all kinds of crap - including lots of fillers which have GLUTEN. Fortunately, many of the brands pride themselves on being preservative and gluten free - you just need to read those darn labels or read some of the historical notes on Turkey on this forum and others. This website was invaluable when I picked out my turkey this year.

Hope you get to feeling better soon.

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  • 3 weeks later...
rmlacoste Newbie
rmlacoste
Posted

^_^ My son (now 2, gluten free for 8 months now), has reacted three times now like he got "glutened".

This was, of course, a major fear for me as it was such a mess prior to finally having a Celiac diagnosis and not knowing what was making my son so ill.

Each time he has had such bad bouts I couldn't believe it as I have eliminated all traces of gluten in our home and have been so careful!

Each time, the only common denominator was turkey, once made my me, and twice at a Whole Foods deli.

As my son is dairy free as well, I was carefull that the turkey had no traces of butter, I could not varify the Whole Foods turkey.

Each time he got sick, I had it in the back of my mind "I wonder if it was the turkey?... no, couldn't be, that's weird."

Well, it seems the only connection.

Can't explain it, all I know is my son was SICK! He even woke up in the middle of the night to tell me his tummy hurt. I must have heard that every hour, and again after each time he ate.

I won't blame the turkey for certain, but I won't soon be giving it to him again.

???

arc Newbie
arc
Posted

I think that for me it is because I feel so much better since going gluten free that the symptoms are much more noticeable in comparison.

That said, I do feel that I am more sensitive now.

Rikki Tikki Explorer
Rikki Tikki
Posted
I think that for me it is because I feel so much better since going gluten free that the symptoms are much more noticeable in comparison.

That said, I do feel that I am more sensitive now.

DITTO!

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      Hello fellow coeliacs and a Happy New Year I'd appreciate some advice. In December I gave up junk food and ate a new healthy diet, which had a lot of gluten-free oats, nuts, oranges in it, and a quite a lot of black coffee, rather than my usual lattes etc.  After a week or so I felt awful bubbling and bloating in the area which I would say is the ascending and transverse colon.  Earlier in the day it might start with stabbing pain, maybe just two or three 'stabs', or a bit of an ache in my pelvis area, and then by the evening replaced with this awful bloated feeling.   I can still fit into all my clothes, there isn't any visible bloating but a feeling of bloating builds from early afternoon onwards.  The pain and bloating has always gone by the morning.  BMs normal.   I went back to my normal diet over Christmas, for a couple of days things improved, but the bubbling and bloating then came back with a vengeance.  I'm having an ultrasound in a couple of weeks to check my pelvic area and if that is clear I suspect may have to have a colonoscopy, but is there anything anyone can recommend to calm this bloating down.  I have been given an additional diagnosis of IBS in the past but it has never been this severe.   I have to confess that I might have had some gluten over Christmas, I ate a lot of Belgium chocolates which were meant to be gluten free but the small print reveals that they were made in a shared facility, so I have probably brought this all on myself!
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    • trents
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      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her  on a full gluten free diet. my concerns are that she wasn’t actually physically sick on her regular diet, she had tummy issues and skin sores. My fear is that she will build up a complete intolerance to gluten and become physically sick if she has gluten. Is there anything to be said for keeping a small bit of gluten in the diet to stop her from developing a total intolerance?  also, she would be an anxious type of person, is it possible that stress is the reason she has become coeliac? I read that diagnosis later in childhood could be following a sickness or stress. How can she have been fine for the first 10 years and then become coeliac? sorry, I’m just very confused and really want to do right by her. I know a coeliac and she has a terrible time after she gets gluttened so just want to make sure going down a total gluten free road is the right choice. thank you for any help or advise xx 
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