Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

"made On Equipment Shared With Wheat, Etc..."


i-miss-cookie-dough

Recommended Posts

i-miss-cookie-dough Contributor

heya!

so, i have been 7.5 weeks gluten-free.

and have stilll been feeling the SAME.

off the dairy as of today to see if that helps.

but i also noticed last night

that the black beans i eat

and the rice cakes i eat

and who KNOWS what else,

(though those ITEMS are themselves gluten-free)

on the label, below the ingredients -

(which is where i usually stop reading

but since i had an 8 hour drive

back to LA from no. cal yesterday

with my fiance,

i got a bit stir crazy and once

i finished books and magazines,

i started reading labels : )

it says...

"made on equipment shared with wheat, etc..."

could that be why i dont feel better?

have other ppl cut out things that say that on the packaging?

it appears that SOOOOOOOOOO many things

say that...

thoughts??


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



laurelfla Enthusiast

I'm sorry you've been feeling bad! :(

I guess each person has to draw his or her own line about allergen statements... I personally try to stay away from the ones that are processed on shared equipment. I make some exceptions for Nestle because I talked to someone there on the phone who told me they thoroughly wash down the lines (this was for Maggi chicken broth bouillon stuff) but that they just wanted Celiacs to have all the information. I feel comfortable using that product every now and then. I wouldn't eat anything everyday that had that kind of warning.

I hope you get to feeling better soon!!

Guest j_mommy

I eat the ones that say "processed/made in teh same faciltity as wheat products" I generally stay away from the ones that same "use the same line" unless I have time to call and get the details.

celiacgirls Apprentice

I do not eat things that say they are manufactured in a place with wheat. I have noticed that my daughters and I react to those often enough that it isn't worth the risk.

hathor Contributor

I follow the same rule of thumb as j_mommy.

More than anything, I keep track of how I feel. If a particular product is associated with symptoms (a food/symptom diary is essential here), I don't eat it.

Be sure to realize that those warning statements are voluntary. Items that mention nothing about shared equipment or facilities COULD have them. So it is necessary to be alert.

blueeyedmanda Community Regular

I eat the ones in the same facility, but I steer clear of the ones that say made on shared lines. If I get a reaction or even feel a little out of it after eating something from the same facility then I steer clear of that product as well.

It comes down to personal choice and what you feel comfortable doing.

lonewolf Collaborator

I agree with Blueeyedmanda.

But the real reason I'm posting is because I have a really good recipe for cookie dough that doesn't have raw eggs in it - so "i_miss_cookie*dough" if you would like the recipe, let me know. (My 17 year old cousin who wouldn't eat anything gluten-free to save her life loves the cookie dough.)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



i-miss-cookie-dough Contributor
I agree with Blueeyedmanda.

But the real reason I'm posting is because I have a really good recipe for cookie dough that doesn't have raw eggs in it - so "i_miss_cookie*dough" if you would like the recipe, let me know. (My 17 year old cousin who wouldn't eat anything gluten-free to save her life loves the cookie dough.)

ooooh...me likey the sound of that!!

bring it on, sister!

thanks!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    2. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    4. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    5. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      High TTG-IgG and Normal TTG-IgA

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,846
    • Most Online (within 30 mins)
      7,748

    Fultonn
    Newest Member
    Fultonn
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.