Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Brain Fog

lilypad23

By lilypad23
in Coping with Celiac Disease

Recommended Posts

lilypad23 Explorer
lilypad23
Posted

In some ways, my brain fog has gotten better. I'm better in social situations and I talk more. Also, thankfully, I've gotten much better at math. However, in some ways it has gotten worse. For instance, I'm a student and I used to be a pretty good writer. Even at my worst, I could still write a decent paper. However, this semester, its like I can't write at all. English is my favorite subject but every time I read something or start writing, its like my brain fog kicks in big time and everything that I just had in my head goes straight out. I don't know if its stress or something else, but its really starting to get on my nerves and its affecting my school work. Is this normal? Should I go to the doctor? I haven't been since July or August, before I got the official diagnosis from Enterolab. Also, how long does it take for brain fog to truly go away?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


darlindeb25 Collaborator
darlindeb25
Posted

From personal experience, my brain fog has never completely gone away. I keep notes, I write things down that I don't want to forget, then sometimes I forget where I put my notes. I think many of us celiac's also have ADD. I see many of the characteristic's in myself and now, over the years, I can look back and see them. I have 2 son's with ADD and I thought they inherited it from their dad!!! :P OOPS. Don't tell him, ok!

You may have to learn a new way of doing things. In time, you will pull it altogether again.

mftnchn Explorer
mftnchn
Posted

Brain fog can have more than one cause. For example, I experience this from lyme disease, and it is mentioned frequently by other patients too. You might want to check the lyme disease thread on this forum as it has a long list of symptoms, just in case.

kbtoyssni Contributor
kbtoyssni
Posted
From personal experience, my brain fog has never completely gone away. I keep notes, I write things down that I don't want to forget, then sometimes I forget where I put my notes. I think many of us celiac's also have ADD. I see many of the characteristic's in myself and now, over the years, I can look back and see them. I have 2 son's with ADD and I thought they inherited it from their dad!!! :P OOPS. Don't tell him, ok!

I don't feel my brain fog ever went away completely, either! It's very frustrating because I just can't remember things that I should know. I wish there was something I could do about it. I'm an engineer, I work with tons of smart people and then there's me who completely blanks on the basics.

mftnchn Explorer
mftnchn
Posted

Elevated mercury is another thing that does it.

jerseyangel Proficient
jerseyangel
Posted

My brain fog never went away completely, either. Actually, it's comforting to see that that's not uncommon (you know what I mean).

My gluten reactions are not as bad as they used to be, after 2+ years, but the brain fog decends and sticks around. I got CC'd a couple weeks ago, and I'm still very foggy and slow. I say I'm still stupid from the gluten :P

Even my husband notices it.... :( drinking something with some caffeine during the day helps me somewhat--temporarily.

lilypad23 Explorer
lilypad23
Posted
  • Author

Thank you guys for the advice. I appreciate it. Its kind of discouraging that it might not go away, but I guess I'll get used to it.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


miles2go Contributor
miles2go
Posted
Thank you guys for the advice. I appreciate it. Its kind of discouraging that it might not go away, but I guess I'll get used to it.

Neil Young has got to be a celiac, seriously...

"One of these days, and it won't be long."

:D

Margaret

Guest lorlyn
Guest lorlyn
Posted

My 11 year old daughter just had her first year anniversary being gluten free but she still has brain fog. It is most noticable in her school work. She goes to a private school so it is based on a harder level and is very hard. Her teacher will make comments like did'nt you styudy for your science test? She thinks she did good on it and then it will not be a good grade. She gets depressed because she does study and still will not do well. I thought it would had gone away by now but I guess it will be something she will always have to deal with :(

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,943
    • Most Online (within 30 mins)
      7,748
    Will Locks
    Newest Member
    Will Locks
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Mari
      My only proof

      By Mari · Posted

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      Fascinating.
    • DebJ14
      Does anyone here also have Afib

      By DebJ14 · Posted

    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      @DebJ14, You said "husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation."   I don't think black seed oil is lowering inflammation.  It's lowering blood glucose levels. Black cumin seed lowers blood glucose levels.  There's a connection between high blood glucose levels and Afib.    Has your husband been checked for diabetes?   Must Read: Associations of high-normal blood pressure and impaired fasting glucose with atrial fibrillation https://pubmed.ncbi.nlm.nih.gov/36750354/  
    • knitty kitty
      4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories

      By knitty kitty · Posted

      Healthy Omega Three fats.  Olive oil or flaxseed oil, oily fish, fatty cuts of meat.   Our bodies run much better on burning fats as fuel.  Diets based on carbohydrates require an increased amount of thiamine to process the carbs into fuel for the body.  Unfortunately, thiamine mononitrate is used to enrich rice.  Thiamine mononitrate is relatively unusable in the body.  So a high carb diet can further decrease thiamine stores in the body.  Insufficient thiamine in the body causes the body to burn body fat and muscle for fuel, so weight loss and muscle wasting occurs.  Those extra carbohydrates can lead to Candida (often confused with mold toxicity) and SIBO (Small Intestinal Bacterial Overgrowth).   Losing weight quickly is a symptom of thiamine insufficiency.  Muscle wasting is a symptom of thiamine insufficiency.  I lost sixty pounds in a month.   Having difficulty putting weight on and keeping it on is a symptom of thiamine insufficiency.   The AIP diet works because it eliminates all grains and grasses, rice, quinoa, all the carbs.  Without the carbs, the Candida and SIBO get starved and die off.  Easy way to change your microbiome is to change what you feed it.  With the rowdy neighbors gone, the intestine can heal and absorb more nutrients.   Supplementing with essential vitamins and minerals is beneficial.  Talk to your doctor and nutritionist.  Benfotiamine is a form of thiamine that promotes intestinal healing.  The eight B vitamins are water soluble, so if you don't need them, they can be gotten rid of easily.   Night shades are excluded on the AIP diet.  Potatoes, tomatoes, peppers and eggplant are not allowed on the AIP diet.  They contain alkaloids that promote "a leaky gut".  Benfotiamine can help here. Sweet potatoes are avoided because they contain thiaminases, chemicals that break thiamine so that the body cannot use it.   The AIP diet has helped me.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.