Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dna Test Results


truthsearcher

Recommended Posts

truthsearcher Rookie

I just got my gene tests results.

HLA-DQB1 Molecular analysis allele 1 0302

HLA-DQB1 Molecular analysis allele 2 0502

Serologic eequivalent HLA-DQ 3,1 Subtype 8,5

From what the report states I carry one gene for celiac and one for gluten intolerance, is this correct?

My blood test showed negative on everything.

I have been gluten free about 4 weeks now. I don't notice any huge changes but my head does not itch as much and I seem to be sleeping better.

Any comments welcome.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



truthsearcher Rookie

Just bumping this up.

I was just curious if this is very common. I am not DQ2 or DQ8 which is sure sign of celiac right,? correct me if I am wrong.

Or is the subtype more important?

Still learning :rolleyes:

ravenwoodglass Mentor
Just bumping this up.

I was just curious if this is very common. I am not DQ2 or DQ8 which is sure sign of celiac right,? correct me if I am wrong.

Or is the subtype more important?

Still learning :rolleyes:

We have a similar although not exactly the same gene type. Mine is also fairly rare in the US. There is an awful lot that is not known about the gene types. I am technically gluten intolerant in the US but in Japan I would be diagnosed celiac with the same gene. Here if they had done gene typing when I was sick my gene would have labeled me with rheumetoid arthritis. I am glad they didn't because I would now most likely be in a wheelchair popping pills trying to alleviate the pain instead of dancing and gardening and being able to tie my own shoes and hold a cup or spoon again. My arthritis has been in complete remission now for over 4 years, unless glutened.

You may want to try googling your gene type and seeing what pops up. It can be a real eye opener but don't get to hung up with the gene diagnosis, the important thing to know is that gluten is a poison to you, no matter what they label the gene.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,167
    • Most Online (within 30 mins)
      7,748

    jill.p.liken
    Newest Member
    jill.p.liken
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...