Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Soy Intolerance


darlindeb25

Recommended Posts

darlindeb25 Collaborator
<_< I'm not happy about this--I have been trying to avoid going soy free too :rolleyes: --I know that soy bothers me in large amounts--I guess I dont notice it so much with my peanut butter, margarine, my corn cakes----but when I get more I have problems--I had tuna with mayo on it---well, the tuna is packed in water which is vegetable broth made from soy and the very 1st ingredient in mayo is soybean oil--I love mayo on any meat, instead of my old standby, ketchup :P --I have been restless at night, watching the clock, my joint pain is back and my tummy has been very touchy lately---burdee convinced me its time to go soy free and see what happens :unsure: i know she's right----does anyone have websites for me to check out--I need a food list of safe foods without soy--it is in so much :( thank you in advance ;) deb

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

Another reason to go natural foods. I've yet to see a "manufactuered food list" that's of soy free foods, unfortunately. I think it means just reading labels very closely. (BTW, you can get plain water pack tuna - meaning tuna and water, not broth - if you look around for it.)

kabowman Explorer

There is a mayo made with canola oil vs soybean oil...at the health food store. Make your own broth - chicken & beef - I have yet to find one that doesn't make me sick and I attribute it to soy. WestSoy Plain Rice milk has no soy.

Soy is in almost as much as gluten...all those gluten-free mixes contain soy flour too...

Good luck and it really isn't as bad as it looks, just another adjustment and more reading. Time to go through the cabinets again.

-Kate

terri Contributor

Smart Beat Mayo has no soy and only 10 calories! Trader Joe's Tuna has no broth or soy, just water and salt. Smart Bear margerine is fine too as is real butter. I try to avoid soy as best I can except for when a recipe needs soy sauce. Soy sauce, for some reason, doesn't bother me. Good luck~

darlindeb25 Collaborator
;) i was told that i could possibly just limit my soy--that would be great--i know on a regular basis, peanut butter and corn cakes do not bother me and they do have soy in them------i do hate cleaning cupboards :P thank you everyone--deb
kvogt Rookie

I can tolerate a little gluten-free soy sauce like to eat sushi or Chinese. If I drink soy milk it bothers me, but not my gut. It makes me goofy, itchy and causes constipation. Anyone else have this experience?

darlindeb25 Collaborator
;) kvogt---constipation yes---not itchy and :P i am always goofy, that's just me--constipation is new to me, but otherwise soy makes me restless at night, i watch the clock all night and my joint pain comes back with a vengence---the only time i get itchy is when a product like shampoo with wheat gets on my skin and then i tend to get hives for a short time---we all react differently--now i cant drink soy milk, cant use mayo or eat tuna that isnt packed in water only and i cant use soy flour--shortening for baking is ok and lecithin doesnt seem to bother me--deb :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



terri Contributor

Deb,

I went to Whole Foods yesterday and bought 2 mayos. They are made by Spectrum and have our favorite words "gluten free" on their labels. One is light and eggless and vegan :D and the other is full fat. They are both made with Canola Oil. I had egg salad on a corn cake for breakfast this morning with the light one, and it rocked. There is life after soy. Check it out and read the ingredients please and maybe it will work for you.

Terri

Melanie Rookie

Soy makes me Itchy!!!! It makes my ears and neck itchy first and then spreads.

I've found that I can eat soy lechtin without any problems. It isn't hard, as people have mentioned, to find products without soy oil. Natural peanut butter doesn't have it.

darlindeb25 Collaborator
;) hi melanie---peanut butter doesnt bother me--i use either jif or kroger brand peanut butter--my corn cakes have soy lecithin in them and those do not cause probs either--they tell me its the soy protein that causes the most problems and the proteins arent a problem with lecithin---i guess time will tell---deb
kvogt Rookie

I haven't paid a lot of attention to soy oils. I heard a radio show about peanut allergies and the speaker said that the protein content of peanut oil is so low that most peanut allergic people can consume it with no reaction. I made the leap that soybean oils are similarly processed. I don't *think* it bothers me, but frankly, I feel bad so sporadically after eating, I'm never quite certain what my trouble is.

Does anyone have problems with products containing soybean oil as the only suspect ingredient?

darlindeb25 Collaborator

mayo bothers me and it is made with soybean oil--its the 1st ingredient and the first 3 ingredients in anything are the biggest 3 ingreds of the products--if sugar comes first, then that prodcut is full of sugar--i also can not tolerate soy flour, but lecithin is ok for me--i dont understand this yet :rolleyes: deb

Connie R-E Apprentice

I noticed that soy bothered me just a little at first, then smaller quantities began to bother me... Now, I can't eat any amount of soy unless I want discomfort! :blink:

I don't mind giving up the tofu, but even lecithin in chocolate bothers me now!! :angry:

Keep an eye on your soy reactions!

Connie

SF for a few years now.

aaascr Apprentice

I am allergic (tested positive) to soy - if I ingest any, my asthma kicks in.

The only thing to do is read labels. I do know that some manufacturers have

lists of their products specifying gluten-free or soy free etc. Annies Naturals, Hain, Michaels Seasons, Seeds of Change, come to mind. I haven't checked any mainstream products because I am usually allergic to something in them, so I don't eat them.

Hope this helps...

Alicia

girlygirl Newbie
" I made the leap that soybean oils are similarly processed. I don't *think* it bothers me, but frankly, I feel bad so sporadically after eating, I'm never quite certain what my trouble is.

"

There is a website Westonaprice.org that tells how soy is processed :wacko:. The site also gives other excellent nutrition information. I have learned alot from that site.

There is a mayo in Whole Foods that is in the gourmet section from France that is soyfree and my finace says it is delicious. It is in a plastic container.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,397
    • Most Online (within 30 mins)
      7,748

    Megannnnn
    Newest Member
    Megannnnn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
    • Scott Adams
      I had the same thing happen to me at around your age, and to this day it's the most painful experience I've ever had. For me it was the right side of my head, above my ear, running from my nerves in my neck. For years before my outbreak I felt a tingling sensation shooting along the exact nerves that ended up exactly where the shingles blisters appeared. I highly recommend the two shot shingles vaccine as soon as your turn 50--I did this because I started to get the same tingling sensations in the same area, and after the vaccines I've never felt that again.  As you likely know, shingles is caused by chicken pox, which was once though of as one of those harmless childhood viruses that everyone should catch in the wild--little did they know that it can stay in your nervous system for your entire life, and cause major issues as you age.
    • trents
    • Clear2me
      Thanks for the info. I recently moved to CA from Wyoming and in that western region the Costco and Sam's /Walmart Brands have many nuts and more products that are labeled gluten free. I was told it's because those products are packaged and processed  in different  plants. Some plants can be labeled  gluten free because the plant does not also package gluten products and they know that for example the trucks, containers equipment are not used to handle wheat, barely or Rye. The Walmart butter in the western region says gluten free but not here. Most of The Kirkland and Members Mark brands in CA say they are from Vietnam. That's not the case in Wyoming and Colorado. I've spoken to customer service at the stores here in California. They were not helpful. I check labels every time I go to the store. The stores where I am are a Sh*tshow. The Magalopoly grocery chain Vons/Safeway/Albertsons, etc. are the same. Fishers and Planters brands no longer say gluten free. It could be regional. There are nuts with sugar coatings and fruit and nut mixes at the big chains that are labeled gluten free but I don't want the fruit or sugar.  It's so difficult I am considering moving again. I thought it would be easier to find safe food in a more populated area. It's actually worse.  I was undiagnosed for most of my life but not because I didn't try to figure it out. So I have had all the complications possible. I don't have any spare organs left.  No a little gluten will hurt you. The autoimmune process continues to destroy your organs though you may not feel it. If you are getting a little all the time and as much as we try we probably all are and so the damage is happening. Now the FDA has pretty much abandoned celiacs. There are no requirements for labeling for common allergens on medications. All the generic drugs made outside the US are not regulated for common allergens and the FDA is taking the last gluten free porcine Thyroid med, NP Thyroid, off the market in 2026. I was being glutened by a generic levothyroxin. The insurance wouldn't pay for the gluten free brand any longer because the FDA took them all off their approved formulary. So now I am paying $147 out of pocket for NP Thyroid but shortly I will have no safe choice. Other people with allergies should be aware that these foreign generic pharmaceutical producers are using ground shellfish shell as pill coatings and anti-desicants. The FDA knows this but  now just waits for consumers to complain or die. The take over of Wholefoods by Amazon destroyed a very reliable source of good high quality food for people with allergies and for people who wanted good reliably organic food. Bezos thought  he could make a fortune off people who were paying alot for organic and allergen free food by substituting cheap brands from Thailand. He didn't understand who the customers were who were willing to pay more for that food and why. I went from spending hundreds to nothing because Bezo removed every single trusted brand that I was buying. Now they are closing Whole foods stores across the country. In CA, Mill Valley store (closed July 2025) and the National Blvd. store in West Los Angeles (closed October 2025). The Cupertino store will close.  In recent years I have learned to be careful and trust no one. I have been deleberately glutened in a restaurant that was my favorite (a new employee). The Chef owner was not in the kitchen that night. I've had  a metal scouring pad cut up over my food.The chain offered gluten free dishes but it only takes one crazy who thinks you're a problem as a food fadist. Good thing I always look. Good thing they didn't do that to food going to a child with a busy mom.  I give big tips and apologize for having to ask in restaurants but mental illness seem to be rampant. I've learn the hard way.          I don't buy any processed food that doesn't say gluten free.  I am a life long Catholic. I worked for the Church while at college. I don't go to Church anymore because the men at the top decided Jesus is gluten. The special hosts are gluten less not gluten free. No I can't drink wine after people with gluten in their mouth and a variety of deadly germs. I have been abandoned and excluded by my Church/Family.  Having nearly died several times, safe food is paramount. If your immune system collapses as mine did, you get sepsis. It can kill you very quickly. I spent 5 days unconscious and had to have my appendix and gall bladder removed because they were necrotic. I was 25. They didn't figure out I had celiac till I was 53. No one will take the time to tell you what can happen when your immune system gets overwhelmed from its constant fighting the gluten and just stops. It is miserable that our food is processed so carelessly. Our food in many aspects is not safe. And the merging of all the grocery chains has made it far worse. Its a disaster. Krogers also recently purchased Vitacost where I was getting the products I could no longer get at Whole Foods. Kroger is eliminating those products from Vitacost just a Bezos did from WF. I am looking for reliable and certified sources for nuts. I have lived the worst consequences of the disease and being exposed unknowingly and maliciously. Once I was diagnosed I learned way more than anyone should have to about the food industry.  I don't do gray areas. And now I dont eat out except very rarely.  I have not eaten fast food for 30 years before the celiac diagnosis. Gluten aside..... It's not food and it's not safe.  No one has got our backs. Sharing safe food sources is one thing we can do to try to be safe.        
    • Mmoc
      Thank you kindly for your response. I have since gotten the other type of bloods done and am awaiting results. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.