Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Its Been 8 Weeks And Very Little Improvement!


i-miss-cookie-dough

Recommended Posts

i-miss-cookie-dough Contributor

just getting frustrated,

i have never cheated and still

feel tired and nauseas.

every day.

stomach aches

HAVE gotten better

but the

nausea

and tiredness

are just as bad as

during my

gluten-laden days.

i mean, i am used

to it, as i have felt

this way for the

past 3 or 4 years...

but feel like,

after getting diagnosed with celiac

8weeks ago, i have been totally gluten free.

(and dairy free for the last 4 days.)

and i just want a little glimmer of relief.

you know?

feel like i have changed a LOT

just wantin my body to give

me a little something to keep me going...

:huh:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

Some people don't start feeling better for six months or so. Plus, you haven't really had a chance to recover with still consuming dairy all this time. Four days off dairy isn't much. Are you eating soy? I'd suggest you eliminate it as well.

Give it more time! I know it is hard to be patient when your health is at stake. Still, don't give up.

If you don't start feeling better soon, you may need to look into other causes for feeling so bad.

CMCM Rising Star

You didn't mention what sorts of things you are eating, but I found that the majority of the sugar laden gluten free foods just did not agree with me. All the various flours, bean flours, rice flour, and the SUGAR....I felt truly horrible eating these things and like you, I felt I was making zero improvement. When I cut all this stuff out and just ate plain meat, veggies, fruit, lots of water, and zero sugar, zero grains of any kind including rice, THEN I started to feel better.

After eating very simply for maybe 6 months, I then found I could tolerate lots of things in small amounts and not every day. I think eating simply for a time helped my system heal.

frec Contributor

Hey, don't give up. Your intestines are still recovering and still don't absorb all the nutrients you need. You might be anemic or something, and that would account for your fatigue. Your doctor could do a basic blood test to check your iron level. You probably need to take calcium, and that will absorb better with additional vitamin D3. Most celiacs are deficient in both. You might want to consult a naturopath or a nutritionist/dietician about your diet. My naturopath discovered I was deficient in all sorts of things--no wonder I felt so awful. I take a bunch of supplements now and all kinds of problems are improving. It is great. If your insurance doesn't cover naturopaths, etc. you might want to take some vitamin supplements on your own BUT be really careful as many of them contain gluten. People on this forum know a lot about which supplements to take--just check. Hope things improve.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,032
    • Most Online (within 30 mins)
      7,748

    CE1963
    Newest Member
    CE1963
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.