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FootballFanatic

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FootballFanatic Contributor
FootballFanatic
Posted

I first started having symptoms October 06, and I got diagnosed in July. It's December. Another month gone and I still have not gone a whole day without feeling terrible. It's just getting worse and worse. I'm living off xanax and pepto. My grades and my social life have gone to hell because I don't want to leave my house, but I don't want to be in my house either.

I just want to break out of my skin. I don't want to die but I don't want to live this life.

What's wrong, There is NO way I'm getting gluten. I have replaced every single thing I cook with, I only eat 3 different meals that are all gluten free. I wash my hands like gluten is a poison on everything I touch. I moved out of the kitchen and do everything in my room - except when i use the stove and I cover my pot that I'm cooking with.

When am I going to get better?

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Lisa Mentor
Lisa
Posted

Maybe you are not eating a balanced diet with your 3 meals. List what you are eating and we can suggest some healthy/balanced meal choices.

AndreaB Contributor
AndreaB
Posted

Have you looked into other food intolerances? Soy and dairy are often culprits....especially at the beginning if you've had damage to the instestines.

If you continue to have fewer things you can eat then you'd really need to look into the reason behind it.....which could be one of many things. For my family it's metals, for many others it's lyme, parasites, viruses. There is almost always something behind numerous intolerances, the tricky part is finding what.

If it's just a few foods then you could always reintroduce them at a later time.

If you've not had a good day since you started the diet......absolutely no improvement, then I would suspect something else along with the gluten intolerance/celiac that is keeping you down.

happygirl Collaborator
happygirl
Posted

Are you under a doctor's care? I would guess that you are having "beyond gluten" problems based on what you are describing.

sickchick Community Regular
sickchick
Posted

I am going Soy & Dairy free as of today....

I feel for ya FF...

Breathe and keep positive. You can get control it just might take a few hits or misses

I can't take Pepto, it has no effect on me at all...nor Immodium

:P

loraleena Contributor
loraleena
Posted

I would seriously look into candida overgrowth. Try taking probiotics. Find a good digestive enzyme to take before meals. Maybe get checked for small bowel bacteria as well. And ditto the above suggestions about other intolerances. Xanax and pepto will only worsen your condition in the long run. They are bandaids. Pepto also constipates you as well.

Offthegrid Explorer
Offthegrid
Posted

Didn't somebody just post somewhere that Xanas is not gluten-free?

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Yenni Enthusiast
Yenni
Posted

Hang in there. Like others have mentioned, maybe you have other food intolerances as well.

It took me a long time to start feeling better. Months before I noticed some changes actually. It came on gradually and one day it hit me I wasn't as tired any more. Then later I realized other symptoms were better or less too.

Now, over a year after I got my diagnosis I feel pretty good. Kinda little like my old self.

It can take time to heal and some feel better sooner than others. Just do as best as you can and you will get better. Make sure to read and learn about the diet. Learn from mistakes and such.

It will get better. I know how hard it can be.

Carafate has helped me lots when I feel sick. I do get cross-contaminated now and then (thank Gd not as often as it used to be) and the Carafate always helps me.

ENF Enthusiast
ENF
Posted
Didn't somebody just post somewhere that Xanas is not gluten-free?

Just a reminder:

Xanax contains gluten, as does the generic version of it by Greenstone, a subsidiary of Pfizer.

GlutenWrangler Contributor
GlutenWrangler
Posted

Well there you go!

scotty Explorer
scotty
Posted

i don't take meds---eexcept prilosec--wondering if i should stop that---all others gave me trouble, even probiotics eventually bothered me---oh but i don't want the flaming gut roaring up my esophagus again......

JNBunnie1 Community Regular
JNBunnie1
Posted
Just a reminder:

Xanax contains gluten, as does the generic version of it by Greenstone, a subsidiary of Pfizer.

Just wanted to make sure you got this info, Football Fanatic. How uncool is that? Hope you can just stop taking it.....

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      results from 13 day gluten challenge - does this mean I can't have celiac?

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