Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Test Results Are In . . .

Shannnn

Recommended Posts

Shannnn Newbie
Shannnn
Posted

Hello! I'm new here and hope I am doing this right. I am seeking information from people who know about blood tests since I am having trouble getting a call back from my Dr.'s office. I am frustrated and tired of living with syptoms. I look normal and SOMETIMES feel normal. Often I feel abnormal and look just fine. It's frustrating because I will confide in a few family members and they are not supportive (I think it is because they don't understand so they don't know how to be supportive). Also, I look fine so it's as if they think I'm imagining these syptoms or making them up to get attention. Believe me, I'm not.

I was tested for celiac disease in 2004. The following tests were taken by blood:

Endomysial AB., IGA-NEGATIVE RESULT

Gliadin AB IGG -NEGATIVE RESULT

Anti Gliadin AB IGA STRONG POSITIVE RESULT

Endoscopy- Normal

With these results it was suggested a gluten free diet might help, but since I had read a lot about Celiac Disease I figured that I didn't have it so I didn't go on the diet.

In 2005 I saw a new GI Doc. A second endoscopy came out normal and I had the following blood test:

HLA-DQ2/HLA-DQ8 (Allelic varients assosiated with celiac disease were not detected).

Present Day: I have had all sorts of different syptoms ranging from nerve pain, sensations, shortness of breath perceived weakness, (all intermittent) for about 6 months and for the past 2 months I have had lower abdominal pain and constipation (also intermittent) I have had normal MRI's and ultrasounds which please me, however,something is wrong and nobody can figure out what. My doctor decided to run the celiac panel since I was a strong positive for the Anti Gliadin AB IGA a few years ago. I got the results back from the lab yesterday. The tests that they ran were for:

Immunoglobulin A, Serum-NEGATIVE and Tissue Transglutaminase AB, IGA-NEGATIVE

My questions are: Since I obviously do not have Celiac Disease as proved by the HLA-DQ2/HLA-DQ8. Could I still have a non celiac gluten intolerance? Also, Did the Immunoglobulin A test take the place of the Anti Gliadin AB IGA test or is this a completely different test? Since the Anti Gliadin AB IGA was the only test that came out positive I am wondering if it could be a marker to a non celiac gluten sensitivity. Do they even run that test anymore (or did this particular lab not test for it because it needs to be ordered specifically)?

In conclusion, I've been reading about food sensitivity and I was surprised to learn that they can cause the same types of symptoms that I am experiencing. I never even thought that food COULD do that. Since nothing else has been suggested,I feel like I'd like to try an elimination diet and start with gluten first. I can't seem to get any good advice so I am turning to the experts on this board who I'm sure have a lot of knowledge. Thank you for taking the time to read my post.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


hayley3 Contributor
hayley3
Posted

Hi,

I haven't been tested so can't help there.

I was dx'd with IBS and I just read that they now feel that IBS may be a mild form of celiac disease. I also have constipation.

I've read that grains are bad overall, and eliminating can help you to lose weight, so it's worth giving it a try on that alone. And stomach pain is also a great motivator!

sissyjane Newbie
sissyjane
Posted
Hi,

I haven't been tested so can't help there.

I was dx'd with IBS and I just read that they now feel that IBS may be a mild form of celiac disease. I also have constipation.

I've read that grains are bad overall, and eliminating can help you to lose weight, so it's worth giving it a try on that alone. And stomach pain is also a great motivator!

I'm new around here, and interested in where you read that IBS could be a mild form of Celiac Disease. I'm arming myself with information before I ask my doctor to do the tests on me. I don't think he is going to want to...

CarlaB Enthusiast
CarlaB
Posted

You might also check this out. Open Original Shared Link It has similar symptoms to celiac disease and can cause food sensitivities.

hayley3 Contributor
hayley3
Posted

It's approx in the middle of the page.

Open Original Shared Link

sissyjane Newbie
sissyjane
Posted
It's approx in the middle of the page.

Open Original Shared Link

sissyjane Newbie
sissyjane
Posted
It's approx in the middle of the page.

Open Original Shared Link

Oops! I meant to say thank you!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Joyous Enthusiast
Joyous
Posted
Hello! I'm new here and hope I am doing this right. I am seeking information from people who know about blood tests since I am having trouble getting a call back from my Dr.'s office. I am frustrated and tired of living with syptoms. I look normal and SOMETIMES feel normal. Often I feel abnormal and look just fine. It's frustrating because I will confide in a few family members and they are not supportive (I think it is because they don't understand so they don't know how to be supportive). Also, I look fine so it's as if they think I'm imagining these syptoms or making them up to get attention. Believe me, I'm not.

I was tested for celiac disease in 2004. The following tests were taken by blood:

Endomysial AB., IGA-NEGATIVE RESULT

Gliadin AB IGG -NEGATIVE RESULT

Anti Gliadin AB IGA STRONG POSITIVE RESULT

Endoscopy- Normal

With these results it was suggested a gluten free diet might help, but since I had read a lot about Celiac Disease I figured that I didn't have it so I didn't go on the diet.

In 2005 I saw a new GI Doc. A second endoscopy came out normal and I had the following blood test:

HLA-DQ2/HLA-DQ8 (Allelic varients assosiated with celiac disease were not detected).

Present Day: I have had all sorts of different syptoms ranging from nerve pain, sensations, shortness of breath perceived weakness, (all intermittent) for about 6 months and for the past 2 months I have had lower abdominal pain and constipation (also intermittent) I have had normal MRI's and ultrasounds which please me, however,something is wrong and nobody can figure out what. My doctor decided to run the celiac panel since I was a strong positive for the Anti Gliadin AB IGA a few years ago. I got the results back from the lab yesterday. The tests that they ran were for:

Immunoglobulin A, Serum-NEGATIVE and Tissue Transglutaminase AB, IGA-NEGATIVE

My questions are: Since I obviously do not have Celiac Disease as proved by the HLA-DQ2/HLA-DQ8. Could I still have a non celiac gluten intolerance? Also, Did the Immunoglobulin A test take the place of the Anti Gliadin AB IGA test or is this a completely different test? Since the Anti Gliadin AB IGA was the only test that came out positive I am wondering if it could be a marker to a non celiac gluten sensitivity. Do they even run that test anymore (or did this particular lab not test for it because it needs to be ordered specifically)?

In conclusion, I've been reading about food sensitivity and I was surprised to learn that they can cause the same types of symptoms that I am experiencing. I never even thought that food COULD do that. Since nothing else has been suggested,I feel like I'd like to try an elimination diet and start with gluten first. I can't seem to get any good advice so I am turning to the experts on this board who I'm sure have a lot of knowledge. Thank you for taking the time to read my post.

You could still have Celiac Disease, and it sounds like you are gluten intolerant. Try an elimination diet. There's lists of stuff with and without gluten available online, and taking L-Glutamine is (according to what I've read) good for keeping cravings at bay while you're adjusting. I'm also a fan of DLPA.

Cut gluten out of your diet and see how you feel after a couple of weeks. (It can take a lot longer to totally heal, but I think most people notice a difference within the first two weeks.)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,770
    • Most Online (within 30 mins)
      7,748
    Darryl Renee
    Newest Member
    Darryl Renee
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Gluten free stuff

      By trents · Posted

      Tammy, in the food industry, "gluten free" doesn't mean the same thing as "no gluten". As Scott explained, the FDA (Food and Drug Administration) allows food companies to use the "gluten-free" label as long as the product does not contain more than 20 ppm (parts per million) of gluten. This number is based on studies the FDA did years ago to determine the reaction threshold for those with celiac disease. And the 20 ppm figure works for the majority of celiacs. There are those who are more sensitive, however, who still react to that amount. There is another, stricter standard known as "Certified Gluten Free" which was developed by a third party organization known as GFCO which requires not more than 10 ppm of gluten. So, when you see "GFCO" or "Certified Gluten Free" labels on food items you know they are manufactured with a stricter standard concerning gluten content. Having said all that, even though you may read the disclaimer on a food item that says the spices may contain wheat, barley or rye (the gluten grains), you should be able to trust that the amount of gluten the spices may contain is so small it allows the total product to meet the requirements of gluten free or certified gluten free labeling. I hope this helps.
    • Tammy Pedler
      Gluten free stuff

      By Tammy Pedler · Posted

      As soon as I see gluten free I read the labels. I always find stuff that I cannot have on the products them selfs. Like spices, when the labels says  everything listed and then after like say garlic salt then the next thing is spices. When it says that that can contain wheat and other things I can’t have.. 
    • Scott Adams
      Do some people with Celiacs develop hypoglycemia?

      By Scott Adams · Posted

      While hypoglycemia isn't a direct, classic symptom of celiac disease, it's something that some individuals with well-managed celiac disease report, and there may be a few plausible explanations for why the two could be connected. The most common theory involves continued damage to the gut lining or nutrient deficiencies (like chromium or magnesium) that can impair the body's ability to regulate blood sugar effectively, even after gluten is removed. Another possibility is delayed stomach emptying (gastroparesis) or issues with the hormones that manage blood sugar release, like glucagon. Since your doctors are puzzled, it may be worth discussing these specific mechanisms with a gastroenterologist or endocrinologist. You are certainly not alone in experiencing this puzzling complication, and it highlights how celiac disease can have long-term metabolic effects beyond the digestive tract.
    • trents
      Ibuprofen

      By trents · Posted

      Paracetamol, aka, acetaminophen (Tylenol) just does not do anything for me as far as pain relief. It does help with fevers, though.
    • cristiana
      Ibuprofen

      By cristiana · Posted

      I seem to recall that my digestive issues actually started when I was taking NSAIDs c. February 2013 for some unrelated condition.  My stomach got so sore during that time I went to see my GP and she thought it might be an ulcer or gastritis so prescribed me Omeprazole.  That appeared to trigger diarrhea which, once I came off the Omeprazole, did not stop.  I went back to the doctors after a few weeks, and that finally led to my coeliac diagnosis, after months of unexplained neurological symptoms, low ferritin and anxiety,which did not seem to have a cause but of course we later realised was all down to coeliac disease. I occasionally take a very small aspirin for a sick migraine which sometimes only responds to aspirin, but it usually leaves me with sore stomach a few days later. I've been told co-codamol is another medication I could take with a sensitive stomach. I was once prescribed it, to use for just a few days. It is not an NSAID, but it contains codeine, which I understand can be addictive so should be used with care.  It can also cause constipation.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.