Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Mistaken Diagnosis ?


Sharon Marie

Recommended Posts

Sharon Marie Apprentice
:( I was diagnosed with celiac disease, My villi were nearly gone. Is it possable for this to have been caused by something else besides wheat ?? This is all still so new and overwhelming to me.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JNBunnie1 Community Regular
:( I was diagnosed with celiac disease, My villi were nearly gone. Is it possable for this to have been caused by something else besides wheat ?? This is all still so new and overwhelming to me.

I've never heard of anything else that does it, perhaps someone else will chime in. The standard among medical professionals is that if there is villous blunting of the small intestine, then you have Celiac. There is no other possible diagnosis that I am aware of.

Guest j_mommy

I agree, you have celiac disease.

It is hard at first but you get the hang of it.

Ursa Major Collaborator

Even though the most common cause of blunted villi is celiac disease, there are other causes.

Here is a quote from one website:

Open Original Shared Link

Although villous atrophy is not exclusive of celiac disease, it is considered a crucial finding. Other causes of blunted villi include tropical sprue, malnutrition, intolerance to cow's milk, soy protein intolerance, and infectious gastroenteritis. However, most of these conditions can be readily excluded on the basis of clinical history and laboratory data.

Here is another quote:

Open Original Shared Link

Blunted villi can be seen in conditions of bacterial overgrowth as well as partially treated gluten sensitive enteropathy.

I've also found some sites that say that a Cryptosporidium infection will cause blunted villi.

aikiducky Apprentice

As far as I know, though, if the villi are nearly gone like the original poster said, it's more likely celiac. The other things I think cause damage but not as thorough damage.

To the original poster: one part of the process of learning to deal with a big life change is denial. It's normal to keep hoping that it might be something else, but hopefully you'll start feeling better on the gluten free diet and after a while you get used to it. :) hang in there!

Pauliina

JNBunnie1 Community Regular

Fortunately, all those other things are much easier to eliminate from the list of possibles than Celiac.

  • 4 weeks later...
Sharon Marie Apprentice

I feel so foolish! I just now found all your reply s ! I am still struggleing with denial.... the reason being that I wasn't feeling THAT BAD.

Thanks for all your responses!

In the future I will know how to find responses! :rolleyes:

I have nearly become addicted to all the forums. I am trying to learn and understand, otherwise how can I possably expect my family and friends to understand.......

Thanks again!

Sharon Marie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,684
    • Most Online (within 30 mins)
      7,748

    Betty Siebert
    Newest Member
    Betty Siebert
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.