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- Alibu replied to Alibu's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms6Waiting on biopsy after positive bloodwork, but also not really believing this is real
Oh I definitely am doing that! I'm having a "last hurrah" leading up to the endoscopy and I am making sure to eat as much gluten as I can now. I will say I am BLOATED but I've been this way for so many years, it's kind of my norm. Just a couple more weeks until I have answers though, I hope! -
- Scott Adams replied to NightRaven92's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2I am wondering if my symptoms are Celiac Disease related..
It’s great that you’ve scheduled a doctor’s appointment to address your symptoms, especially given your family history of autoimmune diseases, including celiac disease. Your symptoms—such as stomach pain, chronic diarrhea, nausea after gluten consumption, joint pain, and headaches—do align with common signs of celiac disease, so it’s definitely worth discu... -
- Scott Adams replied to Marky0320's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms4
CVS (Cyclic vomiting syndrome)
Cyclic Vomiting Syndrome (CVS) is not a common symptom of celiac disease, but there can be occasional overlap—particularly in children. Celiac disease typically presents with symptoms like chronic diarrhea, abdominal pain, fatigue, and nutrient deficiencies, while CVS is marked by repeated, intense vomiting episodes separated by periods of normal health. ... -
- Scott Adams replied to Alibu's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms6
Waiting on biopsy after positive bloodwork, but also not really believing this is real
First, be sure to eat tons of gluten in the two weeks leading up to the endoscopy--like 4 slices of wheat bread a day. Talk to your doctor about when to go gluten-free, but normally you can do so after all tests are done. -
- trents replied to Marky0320's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms4CVS (Cyclic vomiting syndrome)
Be aware that putting your child on a gluten free diet ahead of an official celiac diagnosis will invalidate any attempt to arrive at an official diagnosis. If at some point in time after commencing a gluten free diet you wish to have your child tested for celiac disease, he/she would need to go back to eating normal amounts of gluten for weeks/months leading...
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Oh I definitely am doing that! I'm having a "last hurrah" leading up to the endoscopy and I am making sure to eat as much gluten as I can now. I will say I am BLOATED but I've been this way for so many years, it's kind of my norm. Just a couple more weeks until I have answers though, I hope! -
By Scott Adams · Posted
It’s great that you’ve scheduled a doctor’s appointment to address your symptoms, especially given your family history of autoimmune diseases, including celiac disease. Your symptoms—such as stomach pain, chronic diarrhea, nausea after gluten consumption, joint pain, and headaches—do align with common signs of celiac disease, so it’s definitely worth discussing with your doctor. To help your doctor understand your concerns clearly, consider writing down a detailed list of your symptoms, including when they started, how often they occur, and any patterns you’ve noticed (like symptoms worsening after eating gluten). Mentioning your family history of autoimmune conditions will also be helpful, as celiac disease has a genetic component. You might also ask about getting tested for celiac disease, which typically involves blood tests and possibly an endoscopy. Avoid cutting gluten out of your diet before testing, as this can affect the accuracy of the results. Hopefully, your doctor can provide clarity and guide you toward the right next steps—hang in there, and good luck with your appointment! -
By Scott Adams · Posted
Cyclic Vomiting Syndrome (CVS) is not a common symptom of celiac disease, but there can be occasional overlap—particularly in children. Celiac disease typically presents with symptoms like chronic diarrhea, abdominal pain, fatigue, and nutrient deficiencies, while CVS is marked by repeated, intense vomiting episodes separated by periods of normal health. In rare cases, undiagnosed celiac disease can cause recurrent vomiting that mimics CVS, and symptoms may resolve on a gluten-free diet. Because of this, celiac disease should be ruled out in anyone diagnosed with CVS, especially if there are other gastrointestinal or nutritional concerns. However, vomiting alone is more often related to other conditions such as migraines or autonomic dysfunction. -
By Scott Adams · Posted
First, be sure to eat tons of gluten in the two weeks leading up to the endoscopy--like 4 slices of wheat bread a day. Talk to your doctor about when to go gluten-free, but normally you can do so after all tests are done. -
Be aware that putting your child on a gluten free diet ahead of an official celiac diagnosis will invalidate any attempt to arrive at an official diagnosis. If at some point in time after commencing a gluten free diet you wish to have your child tested for celiac disease, he/she would need to go back to eating normal amounts of gluten for weeks/months leading up to the testing date. And it is often the case that once gluten has been withdrawn for a significant amount of time, the reactions are much stronger when going back on it.
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