Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Get Rashes, But They're Not That Bad


Joyous

Recommended Posts

Joyous Enthusiast

I've been getting rashes for a long time, but they've never really bothered me that much. I guess I'm so used to it I don't really think about it. (I think a doctor once suggested infected hair follicles?) It's little red dots that are spread out, never patches (unless I wear jewelry).

It sort of comes and goes on my thighs, but it's there more often than not. Occasionally I get a mild rash on my stomach as well. I always have acne and a mild rash on my back and chest. I don't wear jewelry because my skin is so sensitive that I get a rash (a pink, itchy, raised patches) from watches/braclets and necklaces.

Does this sound like it's related to celiac disease, or do I just have sensitive skin?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Joyous Enthusiast

And as long as I'm asking about skin, what about the purple blotches that are especially noticeable in winter? :D

Ed-G Newbie
I've been getting rashes for a long time, but they've never really bothered me that much. I guess I'm so used to it I don't really think about it. (I think a doctor once suggested infected hair follicles?) It's little red dots that are spread out, never patches (unless I wear jewelry).

It sort of comes and goes on my thighs, but it's there more often than not. Occasionally I get a mild rash on my stomach as well. I always have acne and a mild rash on my back and chest. I don't wear jewelry because my skin is so sensitive that I get a rash (a pink, itchy, raised patches) from watches/braclets and necklaces.

Does this sound like it's related to celiac disease, or do I just have sensitive skin?

It seems to me that you may have DH. I've always had, especially during my teenage years when I wasn't watching my diet, these red bumps and splotches on my back and sides. People even called me "acneback" I had so much. Does it itch at all? While mine did not itch, it was awfully dry.

Ed in MD

blueeyedmanda Community Regular

I think it sounds like DH could be possible.

Joyous Enthusiast

It looks a lot like Maggi315's photos! :o Maybe I should try to take some. I have some of my face, but I can't seem to get my camera to take a clear photo of my legs, and I haven't tried my chest or back.

Right now my face actually looks a lot clearer than it usually does for some reason, but here are a couple face pics. The second one has circles on it to show which pimples (?) are the most recent. A lot of what's there is actually discoloration from previous pimples (?).

http://i14.photobucket.com/albums/a317/cha...ony/joy027a.webp

http://i14.photobucket.com/albums/a317/cha...ony/joy031a.webp

Yes, it itches, but not too bad. It usually itches the most around my braline. The rash by my knees also itches sometimes, but not horribly.

This is so funny... I've tried so many topic medications and remedies, and nothing's ever worked. I've even tried oral medications without success. (But hey, nothing's better for the digestive system than taking antibiotics for a year straight! :lol: )

frec Contributor

I don't know about DH, but my acne improved about 80% when I went gluten-free--a lovely bonus.

pixiegirl Enthusiast

I never had DH diagnosed either but I do think I had it, for years I had dark purple spots on my skin, it didn't look like classic DH but it did go away (slowly) after I went gluten-free. On top of the dark purple rashes I also had small red bumps and other various rashes, some itchy, some not. And for the most part they are all gone too.

I think when we are ingesting gluten and shouldn't be it just messes up our entire immune system.

Susan


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Janeti Apprentice

Joyous...

About three weeks ago we went out to dinner and I got the impression that the restaurant was not gluten savvy....the next morning when I woke up I had an itchy rach all over my chest. I am sure that it had something to do with being glutened :blink: I am not sure though if it would considered DH? The rash lasted about 2 weeks....annoying!!

blueeyedmanda Community Regular

I have to add, I too never had DH and the skin problems which some members experience, occasionally I had the itchy patches...My acne also improved and my face is fairly clear (it was never too bad but still) the only time I get acne now is around my "time".

Joyous Enthusiast

What I'm wondering is if a lot of what people think is acne is actually mild DH. I could be way off, but it would certainly explain why so many people here say that their acne went away after they stopped eating gluten, and in my case it would explain why nothing the dermintologist could come up with would get rid of my acne, not even a year's worth of different antibiotics. He said some acne is resistant to treatment. I wonder what percentage of the population has "acne" that doesn't respond to acne medication?

Joyous...

About three weeks ago we went out to dinner and I got the impression that the restaurant was not gluten savvy....the next morning when I woke up I had an itchy rach all over my chest. I am sure that it had something to do with being glutened :blink: I am not sure though if it would considered DH? The rash lasted about 2 weeks....annoying!!

Could very well be! Did it leave purple spots after it went away?

Janeti Apprentice

Actually yes, they did leave spots. That also happened on my legs. I hate the way my skin looks now, its such a mess :(

Joyous Enthusiast

Are you like me, eating gluten so you can be tested?

Janeti Apprentice

I was diagnosed 2/07 with celiacs. It has been a real rocky road since that time. At the time of my diagnosis I was b12, calcium, vit d deficient. I was very sick, and thought that I wasn't going to make it. It has been 10 months, and I feel that I have gained much knowledge, but there are times when I do get glutened, and my system lets me know, theres no escaping it. I also was tested through enterolab. I now have other allergies such as egg and soy. I am hoping that when my gut heals, it will help with the allergies. I am having another endoscopy this friday(12/28), they will be looking at the intestines, and hopefully will tell me good news. I really have not been feeling well these last couple of weeks....sometimes I can't figure out what the problem is though, what it was that I ate to make me feel like this. Will they be doing an endo on you?

Joyous Enthusiast
I was diagnosed 2/07 with celiacs. It has been a real rocky road since that time. At the time of my diagnosis I was b12, calcium, vit d deficient. I was very sick, and thought that I wasn't going to make it. It has been 10 months, and I feel that I have gained much knowledge, but there are times when I do get glutened, and my system lets me know, theres no escaping it. I also was tested through enterolab. I now have other allergies such as egg and soy. I am hoping that when my gut heals, it will help with the allergies. I am having another endoscopy this friday(12/28), they will be looking at the intestines, and hopefully will tell me good news. I really have not been feeling well these last couple of weeks....sometimes I can't figure out what the problem is though, what it was that I ate to make me feel like this.

Sorry to hear you're having such a rough time. Have you looked into L-Glutamine?

Will they be doing an endo on you?

My first GI appointment is on the 7th, and whether or not I get an endoscopy will probably depend on the bloodwork. (And on whether or not I still have insurance. Good times. :lol: )

Janeti Apprentice

Goodmorning :) What is L-Glutamine? Is it a probiotic? Right now I am talking co-q10, magnesium, sublingual b12, viactiv, and oregano oil. I'm not sure if any of it is helping me. I work in a hospital on Long Island. A respected cardiologist told me about the co-q10, and that he is a believer in it. I don't know, I think that all of this can make you crazy :huh: Well tomorrow is the big day for the endo, and I am nervous :ph34r: I hope all is well...

elizn Newbie

Hi there! My first time writing. I

Joyous Enthusiast
Goodmorning :) What is L-Glutamine? Is it a probiotic? Right now I am talking co-q10, magnesium, sublingual b12, viactiv, and oregano oil. I'm not sure if any of it is helping me. I work in a hospital on Long Island. A respected cardiologist told me about the co-q10, and that he is a believer in it.

elizn is correct, L-glutamine is an animo acid. It's good for a lot of things, and recently my chiropractor told me that it's important for people whose digestive tracts are healing because it works directly on the digestive tract, sort of like a topical does on skin.

I haven't heard of viactiv or oregano oil, but the other ones I've read about in the past, and it seems like a good idea to take them.

I don't know, I think that all of this can make you crazy :huh:

Or at least feel like you are! I've been feeling crazy for years though, what with so many negative tests and doctors telling me that my symptoms are just depression or stress or anxiety. Ugh. I may have to be more extremist about my diet than I am used to being, but at least now I have an answer. :)

Well tomorrow is the big day for the endo, and I am nervous :ph34r: I hope all is well...

Being nervous makes you a ninja? Lol I want to become a ninja when I get nervous! ;):P

Seriously though, I hope your endo went well.

  • 3 months later...
moonlight Rookie

Hi all,

My husband always had such red things on his back, close to shoulders, and neck, and on his belly...Doctors said the reason was his dry skin in 1993..Anyway, time passed..and 2005 he developed gluten intolerance. Those red rashes were a sign for us, we had no idea.

Now we watch his diet very well, he has no symptoms, he has good health - but if he east too much fruits (2 servings a day) those red rashes come back.

You may want to watch how much simple carb you consume.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    2. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.