Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac And Orthodontics


boothfamily

Recommended Posts

boothfamily Newbie

Our 14 year old, diagnosed with Celiac in April 2007 (also Type 1 Diabetes since 15 mos.) has recently had stomach distress, and according to gastro blood work results today, she is somehow getting gluten. We are a gluten-free household (3 of 4 have Celiac) and are very, very careful. Neither younger sister or mom, both of whom have Celiac, display any symptoms from eating the exact same foods. We're sure she is not sneaking food at school, and we're looking at every angle.

She's had braces for two years, and we are wondering if perhaps the latex rubber bands she uses may be dusted with something containing gluten. Here is what's in them:

Latex 95-97%

Sulfur 0-1%

Zinc oxide 0-1%

Polymetric hindered phenol 0-2%

Carbarnate derivative 0-1%

Has anyone heard of such a thing? We've been told to ask her dentist and orthodontist to use unpowdered gloves, because THAT powder may contain gluten, but no one has mentioned the latex bands.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

It is a possiblity and it would not be on the label. I would call the folks that make the bands and not trust the anyone else to check. Also she is getting frequent adjustments right? I know my kids did but things may have changed. I would accompany her to her next visit if I could and take a look at any lotions they may have by the sink. I watched a dental assistant wash her hands, slather on a gluteny lotion and then grab her gloves with those lotion covered hands before she put them on. So much for sterilie methods of putting gloves on. May not be the case but something to check. One thing you may want to suggest to your DD is to throughly rinse off those bands before she puts them in her in mouth.

blueeyedmanda Community Regular

I just got my braces off in the spring, and I had used the rubber bands with no problems. Could she have a latex allergy?

sneezydiva Apprentice

Even though the other 2 in your family have no symptoms, is their bloodwork okay? Maybe there is something all of you are consuming, and it is just affecting her more.

Also, it might not be something she is eating. Ask if she shares make-up with her friends. I know I did at that age. Either the make-up itself could have gluten, or if she shares a lip gloss with someone who ate some, she could get it that way.

boothfamily Newbie
Even though the other 2 in your family have no symptoms, is their bloodwork okay? Maybe there is something all of you are consuming, and it is just affecting her more.

Also, it might not be something she is eating. Ask if she shares make-up with her friends. I know I did at that age. Either the make-up itself could have gluten, or if she shares a lip gloss with someone who ate some, she could get it that way.

Thanks for the input...I've been wrestling with the same questions, looking at everything...my wife and younger daughter have had good bloodwork within the past three months. My youngest was just diagnosed this August, and my wife had a follow up screening done in October.

We discovered that Tums Tropical Fruit Smoothies flavor contains gluten, and my daughter has been using those over the past few weeks. We're hoping that helps, but continuing the detective work just in case.

Thanks again!

blueeyedmanda Community Regular

Glad to hear you may have found the culprit.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      4

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      18

      My only proof

    3. - Ginger38 replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    4. - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    5. - Scott Adams replied to emzie's topic in Related Issues & Disorders
      2

      Stomach hurts with movement


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,466
    • Most Online (within 30 mins)
      7,748

    Mike G Army EOD
    Newest Member
    Mike G Army EOD
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Ginger38
      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away 
    • Mari
      OKJmartes. Skin and eyes. Also anxiety and frustration. I have read that Celiacs have more skin problems than people who do not have Celiacs. I take increased levels of Vit. D3, very high levels of B12 and an eating part of an avocado every day. KnittyKitty and others here can add what they take for skin health. A Dermatologist might identify the type of skin condition. By eyes you may mean eyesight problems not just irritated, red eyes. It is not very difficult to get a diagnosis of which eye condition is affecting your vision but much more difficult to find an effective remedy. The ophthalmologists I have seen have been only a little helpful. There seems to have been some advances in eye treatments that most of them are completely ignorant of or just won't add to their treatment plans.  Forcertain you may as well buy some remedy from a facebook ad but that is obviously risky and may actually damafe your eyes. However it is known that certain supplements , taken at the effectivelevels do help with eyesight. Two of them are Luten and zanthamin (spelling?)and certain anti-oxidants such as bilberry..    Hope this helps.
    • Ginger38
      I refused to do the gluten challenge for a long time because I knew how sick I would be: I have always had and still have positive antibodies and have so many symptoms my  GI was 💯 sure I would have a positive biopsy. I didn’t want to make myself sick to get a negative biopsy and be more confused by all this.  He couldn’t guarantee me a negative biopsy meant no celiac bc there may not be damage yet or it’s possible to miss biopsies where there’s damage but he was so sure and convinced me I needed that biopsy I went back on gluten. It was a terrible experience! I took pictures of the bloating and swelling and weight gain during the challenge. I gained 9 pounds, looked pregnant, was in pain , couldn’t work or function without long naps and the brain fog was debilitating. And in the end he didn’t get a positive biopsy… so I wish I had never wasted my time or health going through it. I haven’t been truly straightened  out since and I am currently battling a shingles infection at 43 and I can’t help but wonder if the stress I put my body under to try and get an official diagnosis has caused all this. Best of luck to you - whatever you decide. It’s not a fun thing to go through and I still don’t have the answers I was looking for 
    • Scott Adams
      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until your holidays, prioritizing your immediate well-being and exams. To answer your questions, yes, it is possible for blood tests to be negative initially and become positive later as the disease progresses, which is why the biopsy remains the gold standard. Many, many people find the gluten challenge incredibly difficult due to the return of debilitating symptoms, so you are certainly not alone in that struggle. Wishing you the best for your exams and for obtaining clearer answers when you're able to proceed.
    • Scott Adams
      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping issues that can affect those with celiac disease. Is it possible you got some gluten in your diet somehow? This could be a possible trigger. Hopefully, tomorrow's appointment will provide clearer answers and a path to relief so you can get back to your lectures and enjoy your weekend. Wishing you all the best for the consultation.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.