Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Im So Lucky

confused

By confused
in Coping with Celiac Disease

Recommended Posts

confused Community Regular
confused
Posted

To have such great parents. Yesterday they came to see me, first time they have left the house since the doggie passed away. Well my dad brought me a couple of articles from the paper and a few glut4en free recipes. I was crying like an baby cause they thought of me, and because i know so many on here dont have families that get this disease at all. And yet my parents are the best. They even talked us into going home for the holidays and they are willing to cook the whole meal gluten free and are going to buy new dishes to cook it all in. Of course i have to tell them what they have to buy and stuff, but i just thought it was so wonderful.

I really dont think i would be coping with all of this if it wasnt for my family and the support i get on here.

Im still nervous about christmas eve, since it will be at hubbys sister. She makes a huge spread of mexican foods, like chicken mole, posole, enchiladas and such. She does have crohns so she might be able to make something that i can eat, if not i can make something that i can eat. Or heck i will just drink til im merry and not worry about food, believe me i will need to drink to be with all of that family lol. Just pray i dont tell them how i really feel after everything they pulled when the brother passed away.

They eve got me a hotel room with an kitchen, just in case i do have to cook some of my own food.

paula

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


blueeyedmanda Community Regular
blueeyedmanda
Posted

Oh Paula, they sounds like wonderful parents. I am glad you have the bond with your parents, there are a lot of people I know who are not close with their parents at all. My mom is like my best friend. I know how you feel about being lucky. :)

confused Community Regular
confused
Posted
  • Author

They are the best parents any person can have. My mom is my best friend, she was my maid of honor when i got married, people were kinda shocked i picked her, but it was the best choice. I think they are just so happy that i finally found what was wrong with me, cause for so many years i would always get so sick when we had parties or celebrations and i would get so sick at them. I even left my husband to be on the alter cause i was so sick and had to run to the bathroom. I cant wait to renew our vows for our 10th anniversary ad my parents 35th next year.

paula

woolwhippet Explorer
woolwhippet
Posted

I am so happy for you. You are lucky to have wonderful parents but they are alo lucky to have a child who appreciates their efforts!

mamaw Community Regular
mamaw
Posted

Glad you have a wonderful ,caring family. It makes life so much easier....enjoy your holidays.........

mamaw

An-Onion Rookie
An-Onion
Posted

I'm so jealous. My parents keep trying to get me to reintorduce gluten into my diet "so you will build up a resistance", despite the massive improvements to my health in the two months I've been Gluten-free Casein-free. And even with them seeing what happened when I glutened myself this weekend. :( :(

Hopefully I'll actually stay healty enough to keep a job and can move out soon.

babygirl1234 Rookie
babygirl1234
Posted

you have great parents, my family well they can pretty much care less if i eat or not, the only one that cookes what i can have is my aunt she has to cook what i can have because i live with her, but my other aunts can give a you know what about me, its always what they want do they ever call me to see what i can have? hell no, i just go to family things just to keep the peace, otherwise i wouldnt be going, dont you just hate when family members ask you "why are you on this diet you dont have to be your fine" in so many words i feel like saying hello stupid im on this diet because i cant have gluten in otherwords NO WEAT OAT BARLY ect and when you tell them for the 100000th time they look at you like you have 2 heads

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,116
    • Most Online (within 30 mins)
      7,748
    Mary Pack
    Newest Member
    Mary Pack
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      I did ... But aren't we going to be vitamin deficienct if we are not eating due to being sick ?? If the food we eat is gluten free and we have other sensitivities , how do we get out of the cycle??  Thank you 
    • Colleen H
      Heat intolerant... Yikes

      By Colleen H · Posted

      Anyone else get pins and needles. ??? Burning feeling ? Heat makes it so much worse 😔  Winter is here.  I had to lower my thermostat because I couldn't take that hot air feeling 😔  Hopefully it goes away soon     
    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      I assume that you already know that genetic testing for celiac disease cannot be used to confirm a celiac diagnosis. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. It can be used to rule out celiac disease with a high degree of confidence, however, in the case where the genetic testing is negative for the genes. Until and unless you are actually diagnosed with celiac disease I would not raise this as an issue with family. However, if you are diagnosed with celiac disease through blood antibody testing and/or endoscopy with positive biopsy I would suggest you encourage first degree relatives to also purse testing because there is a significant chance (somewhere betwee 10% and almost 50%, depending on which studies you reference) that they will also have or will develop active celiac disease. Often, there are symptoms are absent or very minor until damage to the small bowel lining or other body systems becomes significant so be prepared that they may blow you off. We call this "silent celiac disease". 
    • trents
      GI DX celiac despite neg serology and no biopsy

      By trents · Posted

      If you were off gluten for two months that would have been long enough to invalidate the celiac blood antibody testing. Many people make the same mistake. They experiment with the gluten free diet before seeking formal testing. Once you remove gluten from the diet the antibodies stop being produced and those that are already in circulation begin to be removed and often drop below detectable levels. To pursue valid testing for celiac disease you would need to resume gluten consumption equivalent to the amount found in 4-6 slices of wheat bread daily for at least two weeks, preferably longer. These are the most recent guidelines for the "gluten challenge". Without formal testing there is no way to distinguish between celiac disease and gluten sensitivity since their symptoms overlap. However, celiac disease is an autoimmune disorder that damages the small bowel lining, not true of gluten sensitivity. There is no test available for gluten sensitivity so celiac disease must first be ruled out. By the way, elevated liver enzymes was what led to my celiac diagnosis almost 25 years ago.
    • trents
      High DGP-A with normal IGA

      By trents · Posted

      Then it does not seem to me that a gluten-related disorder is at the heart of your problems, unless that is, you have refractory celiac disease. But you did not answer my question about how long you had been eating gluten free before you had the blood antibody test for celiac disease done.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.