Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Toddler/preschooler Mood/behaviour


Emma's Mom

Recommended Posts

Emma's Mom Rookie

Hello again. It's been a while since I've been around...but seems like I keep ending up here. I'm trying an elimination diet with my daughter as my gut keeps telling me that she is likely a Celiac.

I have a question for those of you whose children were diagnosed or made it through the toddler/preschooler years with Celiac disease. I am curious what your child's mood and behaviour was like prior to eliminating gluten from their diet? How would you describe them? In retrospect what sort of things do you now see that were attributed to consuming gluten and just weren't a part of your child's personality or developmental stage?

Thanks so much. I have a feeling I'll be hanging around :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Carl's mom Newbie

Interesting question. My son (now age 9) went gluten free at age 8 after years of digestive problems and chronic sinus problems. As a preschooler, he was anxious all the time almost to the point of OCD. Things had to be "just so". When he started kindergarten, he was unable to concentrate on tasks that required fine motor skills (such as writing or tying his shoe laces). I realize that some of his issues may have been developmental, however, in the past year his handwriting has improved tremendously (A's versus D's) and I no longer have teachers telling me he shows signs of ADHD. He's also much more relaxed and no longer runs out of the house in terror when I accidentally set the smoke detector off from taking fried chicken out of the oven :P

Ursa Major Collaborator

My oldest grandson (now 5) used to be extremely emotional. If he'd hurt himself, or you just looked at him the wrong way, he'd be crying and crying, sometimes for hours. He was also clingy and whiny. His mother thought he was a wimp and often ignored him and wouldn't comfort him.

Finally, after years of this, she made her family (herself and five kids, her husband will eat gluten at work) all gluten-free. And what a miraculous change in Ethan! Within a week he stopped being so emotional. Now he'll cry briefly when he hurts himself (like any other normal kid), and get back to happily playing. He is also finally gaining weight, he was frighteningly thin before gluten was eliminated from his diet. Also, he is now having solid bowel movements (he never had any before), and his 'growing pains' stopped.

Worriedtodeath Enthusiast

HI!

WE are still in the process of getting an "offical" dx of Celiac. My daughter is 18 months old and goes for her biopsy next month. That will determine if we proceed as Celiac or Non Celiac gluten senstive (I know same treatment either way. My hubby wants the test) We noticed symptoms around 12 months of age. Around that time, we put her back on the diet that had not caused her any trouble (we thought some kind of food allergy). THe diet was fruit/veggies/ plain meat. The allergist put us onto 3 week food trials and when we got to wheat, her tummy troubles started back around week 2. Around day 30, we discovered the "terrible twos" had come back. Those had started around 12 months. My other two who exhibit Celiac symptoms went thru that stage very early as well. She is irratable. Did I say irratable?? i meant to say her evil twin took her place. She falls to the floor in ear splitting tantrums because I touched her juice cup. We are literally walking on egg shells because you never know what might set her off. She cannot sleep for more than an hour or 2 at a time. (slept thru the night before the wheat challenge) She eats two bites , nibbles, tastes molecules of her food at a time and eats that much around the clock. She also will devour dirt like it is ice cream. <_< She always looks tired and has the attitude to go with it. When she is happy she's HAPPY. When she is mad, she is MAD. I think the difference between "normal" toddler behaviour and Celiac toddler behaviour is it so much more intense and directly relates to how her tummy is. The days we are constantly changing diapers are the worst. the days she only has one or two movements, she is much more easy going. I can't wait until we get the biopsy and can cut out gluten. Of course after hubby was awakened at least 4 times last night by her ear splitting screams, he may be reconsidering going another 21 days this way. We noticed the first time that it took right at a month to clear up the D and smooth out the attitude. I gave him a royal earful last night at 2:00am about keeping her on gluten. :angry: They all want to rule out any other condition (Cya is what I call it)

Anyway...

Stacie

Ps My oldest two who are not dx but who have had tummy aches, tummy troubles, and alternate between C and D, one is very moody, quick to anger, and easily upset - the other is a space cadet who lives in his own world and seems to walk to the beat of a different drum. They are going gluten free as well and we will see if any of that changes.

Emma's Mom Rookie

Thanks so much for your help! I see a lot of my daughter in all of the things you described.

Our journey continues...

shan Contributor

my daughter was the happiest, smilieat, cutest baby - till i introduced her to formula and solids. Then she became major clingy, wouldn't let me out her sight, and basically did her own things. She hardly moved from where i put her down, even after she walked - now i see she didn't have the strength! She did a lot of repetitive things. After being gluten free, her preschool teacher said "please put her back on gluten, she's wrecking everything :D " I said sorry, you have to get used to her, this is how she is!! But, it was like she had pent up energy and that settled and now she is a regular almost three year old!!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,917
    • Most Online (within 30 mins)
      7,748

    tiffanygosci
    Newest Member
    tiffanygosci
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • tiffanygosci
      Hi! I had my first episode of AFib last May when I was 30 (I have had some heart stuff my whole life but nothing this extreme). I was not diagnosed with celiac until the beginning of this month in October of 2025. I was in the early stages of celiac, so I'm not sure if they were related (maybe!) All of my heart tests came back normal except for my electrolytes (potassium and magnesium) that were low when the AFib occurred. I also became pregnant with our third and last baby a couple weeks after I came back from that hospital stay. I had no heart complications after that whole thing. And I still haven't over a year later. It was definitely scary and I hope it doesn't happen again. I drink an electrolyte drink mix about every day, and I'm sure being on a gluten-free diet will help my body even more! I will pray for you in this. Taking care of our bodies is so challenging but Jesus is with us every step of the way. He cares and He sees you!
    • knitty kitty
      I followed the Autoimmune Protocol Diet which is really strict for a while, but later other foods can be added back into your diet.  Following the AIP diet strictly allows you digestive system to heal and the inflammation to calm down.  Sort of like feeding a sick baby easy to digest food instead of spicy pizza.   It's important to get the inflammation down because chronic inflammation leads to other health problems.  Histamine is released as part of the autoimmune response to gluten.  High histamine levels make you feel bad and can cause breathing problems (worsening asthma), cardiovascular problems (tachycardia), and other autoimmune diseases (Hashimoto's thyroiditis, diabetes) and even mental health problems. Following the low histamine version of the AIP diet allows the body to clear the histamine from our bodies.  Some foods are high in histamine.  Avoiding these makes it easier for our bodies to clear the histamine released after a gluten exposure.   Vitamin D helps regulate the immune system and calm it down.  Vitamin D is frequently low in Celiacs.  The B Complex vitamins and Vitamin C are needed to clear histamine.   Supplementing with essential vitamins and minerals boosts your intestines' ability to absorb them while healing.   Keep in mind that gluten-free facsimile foods, like gluten-free bread, are not enriched with added vitamins like their gluten containing counterparts are.   They are empty calories, no nutritional value, which use up your B vitamins in order to turn the calories into fuel for the body to function.   Talk to your doctor or nutritionist about supplementing while healing.  Take a good B Complex and extra Thiamine in the form Benfotiamine (shown to promote gut health).  Most B Complex vitamins contain thiamine mononitrate which the body cannot utilize.  Meats and liver are good sources of B vitamins.   Dr. Sarah Ballantyne wrote the book, the Paleo Approach.  She's a Celiac herself.  Her book explains a lot.   I'm so glad you're feeling better and finding your balance!
    • klmgarland
      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure!
    • knitty kitty
      Some people prefer eating gluten before bed, then sleeping through the worst symptoms at night.  You might want to try that and see if that makes any difference.   Several slices of toast for breakfast sounds okay.  Just try to work up to the Ten grams of gluten.  Cookies might only have a half of a gram of gluten.  The weight of the whole cookie is not the same as the amount of gluten in it.  So do try to eat bread things with big bubbles, like cinnamon rolls.   Yeah, I'm familiar with the "death warmed over" feeling.  I hope you get the genetic test results quickly.  I despise how we have to make ourselves sick to get a diagnosis.  Hang in there, sweetie, the tribe is supporting you.  
    • Clear2me
      Thank you, a little expensive but glad to have this source. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.