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Toddler/preschooler Mood/behaviour


Emma's Mom

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Emma's Mom Rookie

Hello again. It's been a while since I've been around...but seems like I keep ending up here. I'm trying an elimination diet with my daughter as my gut keeps telling me that she is likely a Celiac.

I have a question for those of you whose children were diagnosed or made it through the toddler/preschooler years with Celiac disease. I am curious what your child's mood and behaviour was like prior to eliminating gluten from their diet? How would you describe them? In retrospect what sort of things do you now see that were attributed to consuming gluten and just weren't a part of your child's personality or developmental stage?

Thanks so much. I have a feeling I'll be hanging around :)


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Carl's mom Newbie

Interesting question. My son (now age 9) went gluten free at age 8 after years of digestive problems and chronic sinus problems. As a preschooler, he was anxious all the time almost to the point of OCD. Things had to be "just so". When he started kindergarten, he was unable to concentrate on tasks that required fine motor skills (such as writing or tying his shoe laces). I realize that some of his issues may have been developmental, however, in the past year his handwriting has improved tremendously (A's versus D's) and I no longer have teachers telling me he shows signs of ADHD. He's also much more relaxed and no longer runs out of the house in terror when I accidentally set the smoke detector off from taking fried chicken out of the oven :P

Ursa Major Collaborator

My oldest grandson (now 5) used to be extremely emotional. If he'd hurt himself, or you just looked at him the wrong way, he'd be crying and crying, sometimes for hours. He was also clingy and whiny. His mother thought he was a wimp and often ignored him and wouldn't comfort him.

Finally, after years of this, she made her family (herself and five kids, her husband will eat gluten at work) all gluten-free. And what a miraculous change in Ethan! Within a week he stopped being so emotional. Now he'll cry briefly when he hurts himself (like any other normal kid), and get back to happily playing. He is also finally gaining weight, he was frighteningly thin before gluten was eliminated from his diet. Also, he is now having solid bowel movements (he never had any before), and his 'growing pains' stopped.

Worriedtodeath Enthusiast

HI!

WE are still in the process of getting an "offical" dx of Celiac. My daughter is 18 months old and goes for her biopsy next month. That will determine if we proceed as Celiac or Non Celiac gluten senstive (I know same treatment either way. My hubby wants the test) We noticed symptoms around 12 months of age. Around that time, we put her back on the diet that had not caused her any trouble (we thought some kind of food allergy). THe diet was fruit/veggies/ plain meat. The allergist put us onto 3 week food trials and when we got to wheat, her tummy troubles started back around week 2. Around day 30, we discovered the "terrible twos" had come back. Those had started around 12 months. My other two who exhibit Celiac symptoms went thru that stage very early as well. She is irratable. Did I say irratable?? i meant to say her evil twin took her place. She falls to the floor in ear splitting tantrums because I touched her juice cup. We are literally walking on egg shells because you never know what might set her off. She cannot sleep for more than an hour or 2 at a time. (slept thru the night before the wheat challenge) She eats two bites , nibbles, tastes molecules of her food at a time and eats that much around the clock. She also will devour dirt like it is ice cream. <_< She always looks tired and has the attitude to go with it. When she is happy she's HAPPY. When she is mad, she is MAD. I think the difference between "normal" toddler behaviour and Celiac toddler behaviour is it so much more intense and directly relates to how her tummy is. The days we are constantly changing diapers are the worst. the days she only has one or two movements, she is much more easy going. I can't wait until we get the biopsy and can cut out gluten. Of course after hubby was awakened at least 4 times last night by her ear splitting screams, he may be reconsidering going another 21 days this way. We noticed the first time that it took right at a month to clear up the D and smooth out the attitude. I gave him a royal earful last night at 2:00am about keeping her on gluten. :angry: They all want to rule out any other condition (Cya is what I call it)

Anyway...

Stacie

Ps My oldest two who are not dx but who have had tummy aches, tummy troubles, and alternate between C and D, one is very moody, quick to anger, and easily upset - the other is a space cadet who lives in his own world and seems to walk to the beat of a different drum. They are going gluten free as well and we will see if any of that changes.

Emma's Mom Rookie

Thanks so much for your help! I see a lot of my daughter in all of the things you described.

Our journey continues...

shan Contributor

my daughter was the happiest, smilieat, cutest baby - till i introduced her to formula and solids. Then she became major clingy, wouldn't let me out her sight, and basically did her own things. She hardly moved from where i put her down, even after she walked - now i see she didn't have the strength! She did a lot of repetitive things. After being gluten free, her preschool teacher said "please put her back on gluten, she's wrecking everything :D " I said sorry, you have to get used to her, this is how she is!! But, it was like she had pent up energy and that settled and now she is a regular almost three year old!!

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    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
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      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
    • tiffanygosci
      Thank you for sharing all of this, Knitty Kitty! I did just want someone to share some commonality with. I did not know This one Deficiency was a thing and that it's common for Celiac Disease. It makes sense since this is a disorder that causes malabsorption. I will have to keep this in mind for my next appointments. You also just spurred me on to make that Dietician appointment. There's a lot of information online but I do need to see a professional. There is too much to juggle on my own with this condition.<3
    • RMJ
      I think your initial idea, eat gluten and be tested, was excellent. Now you have fear of that testing, but isn’t there also a fear each time you eat gluten that you’re injuring your body? Possibly affecting future fertility, bone health and more? Wouldn’t it be better to know for sure one way or the other? If you test negative, then you celebrate and get tested occasionally to make sure the tests don’t turn positive again. If you test positive, of course the recommendation from me and others is to stop gluten entirely.  But if you’re unable to convince yourself to do that, could a positive test at least convince you to minimize your gluten consumption?  Immune reactions are generally what is called dose response, the bigger the dose, the bigger the response (in this case, damage to your intestines and body). So while I am NOT saying you should eat any gluten with a positive test, the less the better.  
    • knitty kitty
      @Riley., Welcome to the forum, but don't do it!  Don't continue to eat gluten!  The health problems that will come if you continue to eat gluten are not worth it.  Problems may not show up for years, but the constant inflammation and nutritional losses will manifest eventually.  There's many of us oldsters on the forum who wish they'd been diagnosed as early.    Fertility problems, gallbladder removal, diabetes, osteoporosis and mental health challenges are future health issues you are toying with.   To dispel fear, learn more about what you are afraid of.  Be proactive.  Start or join a Celiac group in your area.  Learn about vitamins and nutrition.   Has your mother been checked for Celiac?  It's inherited.  She may be influencing you to eat gluten as a denial of her own symptoms.  Don't let friends and family sway you away from the gluten-free diet.  You know your path.  Stick to it.  Be brave. 
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