Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Can I Be Sure It's A Food Reaction?


ruthla

Recommended Posts

ruthla Contributor

As of yet I haven't had any kind of lab tests for food allergies- I'm just trying to figure all this out with an elimination diet.

When I first went dairy, soy, and gluten free (about a month ago) I noticed that my nose cleared up a whole lot. I tested cream and got congested again, so I stopped that. My nose cleared up in a few days.

I've had a hard time avoiding all soy, and I haven't been strict about that, although I've been extremely careful with the dairy and gluten.

I've been mildly congested for the past week or so- could it be something I ate? I haven't had any soy for about 4 days- and before that it was just a little soy lecithin in almond milk. Could I have been accidentally glutened? Eaten something ELSE my body doesn't tolerate? Or does this reaction have absolutely nothing to do with my diet? A virus or something maybe?

Urgh. I also have some tummy pain- hurting when I poop, and the feeling that the poop itself is burning my skin. Not all my poop, but some of it. This is what I experienced after gorging on pizza and cake at my son's birthday party in mid-November (though to a much larger degree), and what I've been assuming is a gluten reaction. I touched some bread dough on Friday and I think I may have gotten contaminated that way (yet I didn't have this reaction when I handled already cooked bread when preparing toast for my 6yo) Could the mild congestion also be caused by a minor gluten reaction?

Do these minor reactions completely slow down my gut healing? Even if I didn't eat the stuff?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



hathor Contributor

It is hard to know for sure. All you might do is keep a diet/symptom diary and see what connections you can make.

I know I do get some sinus problems as you describe with minor gluten exposure. Once you touched the bread dough, did you thoroughly wash your hands? Might you have breathed in flour -- that seems to get people too.

Have you been avoiding casein, or just dairy? Casein gets added to things that one might not consider "dairy," like some rice cheese.

blueeyedmanda Community Regular

I have to agree it is hard to tell. It took me a few years to know which was a glutening and which was a general illness. I know with my glutenings I get a brain fog, where I feel as if my head is in the clouds and I am very irritable. I sleep worse when I get a glutening too.

ruthla Contributor

Oh, I've been avoiding ALL dairy- I've been avoiding casein or any other potential "hidden cow milk protein" for years- what I've recently cut out was heavy cream, butter, and products made from sheep or goat milk.

I couldn't have breathed in any flour this week because the flour wasn't even taken out of the pantry; I was working with frozen (then thawed) bread dough.

I know with my glutenings I get a brain fog, where I feel as if my head is in the clouds and I am very irritable. I sleep worse when I get a glutening too.
Um, that about describes my fibromyalgia- and I have been really irritable, but is that from glutening or from FMS? Lack of sleep triggers FMS.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    2. - trents replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    3. - Theresa2407 replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Probiotics

    4. - KathyR37 replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,818
    • Most Online (within 30 mins)
      7,748

    STy
    Newest Member
    STy
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Hi @KathyR37 and a very warm welcome here.  I am so very sorry that you are going through all of this. I just wanted to check, have you ever been tested for any other gastrointestinal conditions? Cristiana  
    • trents
      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    • Theresa2407
      thank you for your advice.   I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated.  I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    • KathyR37
      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.