What Is A Normal Reaction?

[jm9578]

hey, i'm posting here because i don't know where else to turn and any response or help you could give me would be great. I have been on a gluten free diet for four months since a blood test revealed that I was a celiac in August. Everything is going well and I feel much better than I ever have. However, it has happened a few times now that I have accidentally ingested gluten. In the beginning of the diet, I would cheat occasionally and feel nothing but a short span of stomach discomfort or pain an hour or so after eating, say, a cookie or a bite of pizza. Now, however, I am at the point where if i ingest gluten, even what seems like an extremely small amount (sometimes due to cross contamination), I spend the entire next day weak and in pain. My head hurts constantly and from the moment i wake up, I vomit until all trace of food is out of my system. During this time I am unable to even drink water, as it will cause me to throw up again immediately.

I know that reactions to gluten are never pleasant for celiacs, but I'm worried because I feel so out of control of my body. I was wondering if anyone has a similar reaction, or if this sounds a little drastic to you. And does anyone know anything that I could do to make myself feel better during this time? The last time I was sick I think I threw up at least 25 times throughout the day and I am in the middle of another spell today. Anything that would contribute to helping this pass or further understanding it would be really appreciated. Thank you so much,

Jessica

[JNBunnie1]

Um, I would say, stop eating gluten.

And maybe Pepto Bismol?

[jerseyangel]

Hi and welcome to the board

Yes, some of us do become much more sensitive to the tiniest amounts of gluten the longer we're gluten-free. It dosen't seem fair, but it happens all too often.

It happened to me, too. I felt much better at first, but as I was learning the diet and still making mistakes with things like cross contamination and having gluten in my personal care products, I would get very ill for a week or more. I would get urgent D, nausea, anxiety, extreme fatigue and terrible brain fog that would hang on for up to a month.

It does get better--you will have more good days than bad, and your system will heal.

It's important to stay as close to 100% gluten-free as possible.

[Jestgar]

On the up side, some of us eventually became much less reactive (after a couple years).

[amz]

I was about to post a similia topic but then I found this thred. I need some help and advice too regardin to being glutened by poss cc. On the diet for over a month and was being very careful, I was feeling great. My running to the loo with 'D" and wind had stoped. I had much more energy too. With this time of year i prob have been drinking alcohol and eating out more (though stressingto restaurants that my food was to be def gluten free) However it has sucked over xmas as something has flared up and I'm not sure why. My symptons are the urge to go to the loo but only passing wind with mucous. I'm very tired and my mind is a bit scattery. Is this a sign of cros contamination / being glutened? If so, what should i do/comsume to get me feeling back to a more stable and lively self> I hate feeling so drainned again. help!!!

[CMCM]

There is no certainty with my own reactoins:

I might eat gluten and have no noticeable reaction at all.

I've eaten a LOT of gluten at one meal and had nausea/cramps/D within half an hour.

I've eaten some gluten and been very nauseous 3 hours later. Sometimes that led to vomiting.

I've had gluten where the digestive reaction occurred a day or two later.

I've had gluten with a next-day migraine as the result.

I've had gluten where I lost all energy and felt spaced out.

I've had gluten whre I had two days of terrible stomach pain.

It's never the same twice. This is just me, but sometimes a clear-cut reaction is certainly easier to manage. When reactions aren't immediate, when they are always different, it's all too easy to attribute it to other things.....

I now know better, but it has taken 2 years to come to terms with it all.