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Keratosis Pilaris


Nutmegger

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Nutmegger Rookie

I know there have been some discussions about this in the past, but they seem kinda old (unless I'm overlooking something), so here's a new thread!

I started getting itchy red bumps on my outer arms around the same time I started having celiac symptoms, and I didn't really make a connection between the two until I read this in the most recent Family Circle:

Q+A: My teen has little red bumps on the sides of his arms. What are they?

It's most likely keratosis pilaris, a skin condition that tends to flair up in the winter. "It's an inherited condition that can peak in the late teen years," says Alan Fleischer, M.D., professor and chair of dermatology at Wake Forest University School of Medicine in Winston-Salem, North Carolina. There's no cure, but moisturizers like Open Original Shared Link that contain alpha-hydroxy acid are most helpful in reducing the bumps. The lotion works as an exfoliant to remove dead skin and renew the surface so skin looks and feels smoother. If it doesn't clear up in a few months, see a dermatologist.

I've been so self-conscious of this for a long time, so I was happy to find out this is common and that there are lotions for it! Some Googling just now tells me this is really common among people with celiac.

So...do any of you have it? Would you suggest AMLactin or any of the other lotions/creams? I'd really like to be able to start wearing sleeveless shirts again without feeling so insecure.


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nmw Newbie

I have had this my whole life, but it has all but disappeared since I went gluten-free. My son has it as well. He's going to be tested for celiac disease/GI next month.

Nutmegger Rookie

Mine has lessened, but it still flares up in really cold and really warm weather. I've tried exfoliating a lot, but now I see that's one of the worst things you can do with it. Maybe that's why it hasn't gone away. I'm hoping one of the creams or lotions they make for it might help.

mommida Enthusiast

Mine cleared up on the gluten free diet. In the days before starting the gluten free diet, the cream helped a lot. Exfoliating never helped.

L

MrMark Apprentice
....So...do any of you have it?...

My KP feels like 60 grit sandpaper. Going gluten-free has helped, they don't seem to be so grainy feeling. When I was a kid, I was covered in freckles, but for the past 15 years or so I lost all my freckles under KP, DH and just plain bad skin. gluten-free has allowed the freckles to become visible again. Gluten-free has been real good for my skin. I think the KP is with me for life though.

confusedks Enthusiast

I have something like this, but the allergist said it's a mild form of ezcema. He told me to use amlactin also, but it didn't help. Also, going gluten-free didn't do anything for it either. Eventually I may see a dermatologist.

  • 3 weeks later...
Michelle B Newbie

I did not know this had a name, or that it was gluten-related - I just had a flare up of it too, after accidentally eating gluten. Hopefully, they'll die down again now.


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Nutmegger Rookie

For what it's worth, I've been using AmLactin at least once a day and it's amazing how well it's working. The redness hasn't gone away completely, but my arms are almost completely smooth now. I'm ecstatic.

cellostix Newbie

I had KP for years before the celiac diagnosis came through. Most of the bumps went away within the first year after I went gluten-free. I had tried who-knows how many lotions, creams, ointments, etc before. The only one that worked, and worked really well, was Salex (Rx). I still use it occasionally; the only problem with it is a slight chemically smell. If you have allergies and a stuffy nose like me, you might not even notice.

  • 2 weeks later...
Yenni Enthusiast

I have had that since I was little. I am not sure if it has gotten better since I have gone gluten-free. It might have. My skin is read on my upper arms and face, but it isn't as bumpy at all, so I guess it has gotten better.

My half brother has it too. No one in my family wants to have anything to do with Celiac Disease (even if I carry 2 pairs of genes-one pair from each parent) and many in my family has stomach problems. Denial is bliss I guess, at least if your symptoms aren't bad enough.

Anyways, I tried that creme and it made my skin hurt after a couple of days. It has BHA in it and that can make the skin sensitive and one should not be in the sun at all (so protect that area). It did seem to work some though. Mine isn't so bad so I don't do anything with it. It isn't mostly just red. The creme never changed that either. I think it just prevents the pores to plug with that kerotis stuff.

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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