Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Cant Believe Im Saying This But....


Glutenfreefamily

Recommended Posts

Glutenfreefamily Enthusiast

Diarrhea from cross contamination is much better than constipation for me :ph34r::blink:

I was like this for about 10 hours this weekend :blink: :blink: Of course I had no red bull either and was too sick to get some from the store. I was glutened in the grocery store, Im assuming its because of the bakery as I walked past there and there were ladies baking within a few feet of me. I could not think at all, I felt like a drug addict because I was so out of it.

I had the worst case of brain fog I have ever had, I cant believe it lasted for 10 hours and of course I was glutened on a busy day in the morning so I was horribly unproductive that day. This is also the first time I had been constipated from gluten as its always diarrhea.

I wonder if it lasted so long because my body didn't force its evacuation, I hope to goodness I never get another glutening like that again. Anybody else swing from one to the other and notice your symptoms lasted longer than normal with constipation?

Thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

I was dealing with something similar last spring after my bout with diverticulitis. In my case it was not gluten it turned out to be soy. Soy gave me very similar mental effects but clogs my system for days. My BMs will look like train wrecks, little pieces distinct that ball up at the end of the line and are very difficult to pass. The only thing I found that helps that is not a med of some sort is sweet potatoes. I assume it is the added fiber that helps but it works for me within 24 hours without any cramps or other unpleasent side effects.

You may want to look at soy reactions as a possibility.

darlindeb25 Collaborator

Me too! When I get constipated, it is either soy or corn causing the problem, never gluten. I honestly do not think walking past the bakery in your grocery store will gluten you, I can't be sure of course, yet I do doubt it. I will say though, after over 7 yrs of being gluten free, the smell of fresh baked bread in a bakery no longer makes me want it, now it kind of makes me feel like running the other way!!!! I guess it's like a turning point in my celiac life, up until now, I still wanted bread when I smelled it, but lately, the scent has been making me turn away.

It's not unusual for a celiac to be intolerant of soy too. I was gluten free for 3 yrs before my soy intolerance reared it's ugly head and it was another 6 months or so before corn joined the group. They say the gluten intolerance hides the other intolerance's for a while. Live and learn huh?

Glutenfreefamily Enthusiast

Thanks :)

Im positive it wasnt soy since I avoid it usually and have lately been avoiding it and eating a whole foods vegan diet. I cant imagine how I would get glutened otherwise since we didnt attend parties or have any gluten products in the home but ah well at least its done now. Im sure its gluten since I had my standard seizure which is my classic symptom since I was little.

I have been gluten free for over 2 years and now gluten totally turns me off, I do not want to feel what I use to feel before changing our diets.

hathor Contributor

I have heard several people notice that they felt glutened and the only thing they can think of is being in places where there may be flour in the air. So it is not impossible.

Is it possible that some product you bought was cross-contaminated? Those "made on the same equipment" type warnings are strictly voluntary. Anything new you've tried, either a food or a personal care product? You carefully read labels on everything?

Yes, it is frustrating when you have a reaction and any possibility you come up with seems so unlikely. But I guess unlikely things do happen sometimes.

Leslie-FL Rookie

I have wondered, myself, about flour in the air when someone is baking. So far I have had no reaction when going to places where baking is done, but I don't know that I've ever been somewhere WHILE they are doing their baking.

I wanted to help my mother with her holiday baking this year because she has a foot injury and standing for long periods of time is hard for her, but I was so leery of the flour-in-the-air thing. I offered to get one of those masks like they sell in the paint department, but my mom was just as concerned about it as I was and wouldn't let me help her.

Glutenfreefamily Enthusiast

Hathor- Thanks :) I have been doing mwl program so the only thing I can think of in terms of food if it had it on the skin of my veggies and it didnt get washed off properly. I havent used any new products. I hope its not corn :unsure: since that is used on a spray on my veggies and fruit. I would think I would still have it though since I have been eating them all along. I use to wash them with baking powder but not for the last six months since I have had to be really careful with my salt intake. Does red bull have soy in it? That is the only thing I have drank a few times this week for migraines.

Leslie- Thanks :) I could see the flour poof into the air :blink: when she threw some kind of dough onto the table within a few feet behind a counter as I was walking past. I panicked right there just wondering if it was going to happen. I know how you feel with wanting to help your Mom but I wouldnt risk it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



hathor Contributor

Red Bull has no soy in it, but I suppose it could contain something else that bothers you. Or have you had it before without problems?

Glutenfreefamily Enthusiast

So far I havent noticed problems with it, I drink it with migraines and when I have been glutened since it seems to help the headaches and me being tired.

Thanks Again :)

misdiagnosed6yrs Apprentice

Did you wash the handles on the cart? Or maybe touched something? Probably but that was my first thought

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,203
    • Most Online (within 30 mins)
      7,748

    Sarahmegan
    Newest Member
    Sarahmegan
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.