Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Middletown, New York


tammy

Recommended Posts

tammy Community Regular

Hi,

Are there any other adults with gluten sensitivity living in or near the radius of Middletown, New York?

If so, I would love to chat with you and possibly meet you.

  • 4 months later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest vir

Tammy...

I live in Poughkeepsie, NY and got diagnosed with Celiac 4/2004. I would love to talk with someone as well with Celiac. There use to be a support group out your way is that still happening?

Virginia :lol:

Mya Apprentice

Hey Virginia,

I live in Poughkeepsie too! Have you been to the health food store on Rt. 9 in the Bugaboo Creek Plaza? I actually went there this morning, they have some good stuff in there! Well, I just noticed you were from Pok and wanted to say hello!

darlindeb25 Collaborator
:D wow, a new yorker thread, but i am a "lawn guylander"--i live in e. islip, long island, new york--there is a celiac support group in westchester county but i dont know how close that is to you either--but i would love to talk to any of you--deb :D
  • 4 weeks later...
Guest vetnurse

Hi Deb, Mya, Virginia and Tammy,

I live in Rockland County and have been recently diagnosed with celiac disease too. Would like to talk to any of you. Susan

tammy Community Regular

Wow, I see that we are really spread out. But be that as it may, it is still a great opportunity for us.

I ate at Bugaboo Creek when I was first diagnosed with gluten and the Manager and staff were great at accommodating my dietary needs!

Once in a blue moon we travel out to Poughkeepsie because it is a bit of hike for us. They do have a great comedy club not far from Bugaboo Creek.

I don't know if they still have the monthly celiac support group meetings in Middletown.

I look forward to making a connection with other people with gluten sensitivity and other health related disorders.

LqrMan Newbie

Hey local Celiacs! This is my first post on celiac.com, however, I have been gluten free for 6 yrs. I am 23 and live in New Windsor. I went to one or two of those Middletown support group meetings, but my parents really helped me out and we have learned so much along the way. There is probably THE best health food store off 17K in Newburgh (off exit 6 or 7 on 84 depending where you are coming from). The prices at that store are the lowest and they seem to have a great selection.

If any of you need help with anything, please shoot me an email. I work for a liquor distributor and go out to eat a couple times a week. Basically you just need to explain your food allergy to the staff and have them check for you so you will be fine.

Also, for those Celiacs or wheat sensitive people, I just saw in the paper that a completely Gluten free/Wheat free bakery will be opening in Chester soon. Their number is 845-469-1992. I just signed up on their mailing list by calling them.

Rob

stbactuary@hotmail.com


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tammy Community Regular

Hey Rob,

Thanks for your input! A gluten-free/WF bakery in Chester, hooray! We are going to check out a gluten free bakery in Pennsylvania soon.

Thanks for your availability!

  • 3 weeks later...
Guest vir

:rolleyes:

Hi NYers I haven't been back to the site in awhile. I would love to chat or meet up with you all. My email address is smorecamping@frontiernet.net. I know the 17k healthfood store your right it is the best for me too...also I drove all the way out to Chester from Poughkeepsie today and found out the gluten-free bakery will not be open until June 23. I think my mouth was watering the whole ride hoping I would find a really good bread or more and then nothing. Well I did get on their mailing list. Do you have their web address I'd love to check that out in the meantime? Take care!

Virginia

LqrMan Newbie

Hey Virginia!

Sorry to hear you went all the way to Chester only to find out the bakery isn't open! Good to know it will open the 23rd though.

Open Original Shared Link is the website...

How old are you and what do you do for a living?

Guest vetnurse

Hey Virginia;

It is funny you mentioned that gluten-free Bakery in Chester, there was just an ad in our Rockland County Paper saying it would open on 6/23 :D

  • 1 month later...
jeany Newbie
Hi,

Are there any other adults with gluten sensitivity living in or near the radius of Middletown, New York?

If so, I would love to chat with you and possibly meet you.

<{POST_SNAPBACK}>

l

  • 2 months later...
WRowland Newbie

I live in Marlboro, New York. That's on 9W, midway between Mid-Hudson and Newburgh-Beacon bridges. About 45 mins from anything in Poughkeepsie.

Haven't seen any info about a meeting yet, but would be interested.

tammy Community Regular

Wow! what a surprise to hear from everyone and see that we are all over! No problem though. I posted another topic regarding getting together for the Christmas Holiday. So I will extend that offer here as well!

I have a few ideas for what might be fun for the whole group. But first, we need to find a central meeting point. I need to know where people are coming from and how far they are willing to drive. Also, I need to know what day and what weekend is better for you.

Remember only 7 weekends before Christmas Eve!!!!!!!!!

Let's have some fun!

  • 3 weeks later...
johnny Rookie

I live in new paltz.

Is there a support group near there?

How about a good doctor or group of doctors near there who are keen to celiac disease and related symptoms?

I have seen too many doctors over the past 11 months and would finally like to feel confident in my doctor(s).

any suggestions?

Johnny

  • 1 year later...
Cougar09 Rookie

FYI that gluten-free bakery in Chester is closed now. :( Apparently they couldn't keep up with the costs. Just wanted to add that in case any of you read this and were planning a trip out there.

hineini Enthusiast

That is sad, Cougar. But there is apparently a baker in Highland that makes gluten-free goodies on Wednesdays (not sure what they do to protect from cross-contamination though) and there is an alternative baker in Kingston that makes gluten-free stuff...

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,546
    • Most Online (within 30 mins)
      7,748

    KimberlyAnne76
    Newest Member
    KimberlyAnne76
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.