Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Middletown, New York


tammy

Recommended Posts

tammy Community Regular

Hi,

Are there any other adults with gluten sensitivity living in or near the radius of Middletown, New York?

If so, I would love to chat with you and possibly meet you.

  • 4 months later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest vir

Tammy...

I live in Poughkeepsie, NY and got diagnosed with Celiac 4/2004. I would love to talk with someone as well with Celiac. There use to be a support group out your way is that still happening?

Virginia :lol:

Mya Apprentice

Hey Virginia,

I live in Poughkeepsie too! Have you been to the health food store on Rt. 9 in the Bugaboo Creek Plaza? I actually went there this morning, they have some good stuff in there! Well, I just noticed you were from Pok and wanted to say hello!

darlindeb25 Collaborator
:D wow, a new yorker thread, but i am a "lawn guylander"--i live in e. islip, long island, new york--there is a celiac support group in westchester county but i dont know how close that is to you either--but i would love to talk to any of you--deb :D
  • 4 weeks later...
Guest vetnurse

Hi Deb, Mya, Virginia and Tammy,

I live in Rockland County and have been recently diagnosed with celiac disease too. Would like to talk to any of you. Susan

tammy Community Regular

Wow, I see that we are really spread out. But be that as it may, it is still a great opportunity for us.

I ate at Bugaboo Creek when I was first diagnosed with gluten and the Manager and staff were great at accommodating my dietary needs!

Once in a blue moon we travel out to Poughkeepsie because it is a bit of hike for us. They do have a great comedy club not far from Bugaboo Creek.

I don't know if they still have the monthly celiac support group meetings in Middletown.

I look forward to making a connection with other people with gluten sensitivity and other health related disorders.

LqrMan Newbie

Hey local Celiacs! This is my first post on celiac.com, however, I have been gluten free for 6 yrs. I am 23 and live in New Windsor. I went to one or two of those Middletown support group meetings, but my parents really helped me out and we have learned so much along the way. There is probably THE best health food store off 17K in Newburgh (off exit 6 or 7 on 84 depending where you are coming from). The prices at that store are the lowest and they seem to have a great selection.

If any of you need help with anything, please shoot me an email. I work for a liquor distributor and go out to eat a couple times a week. Basically you just need to explain your food allergy to the staff and have them check for you so you will be fine.

Also, for those Celiacs or wheat sensitive people, I just saw in the paper that a completely Gluten free/Wheat free bakery will be opening in Chester soon. Their number is 845-469-1992. I just signed up on their mailing list by calling them.

Rob

stbactuary@hotmail.com


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tammy Community Regular

Hey Rob,

Thanks for your input! A gluten-free/WF bakery in Chester, hooray! We are going to check out a gluten free bakery in Pennsylvania soon.

Thanks for your availability!

  • 3 weeks later...
Guest vir

:rolleyes:

Hi NYers I haven't been back to the site in awhile. I would love to chat or meet up with you all. My email address is smorecamping@frontiernet.net. I know the 17k healthfood store your right it is the best for me too...also I drove all the way out to Chester from Poughkeepsie today and found out the gluten-free bakery will not be open until June 23. I think my mouth was watering the whole ride hoping I would find a really good bread or more and then nothing. Well I did get on their mailing list. Do you have their web address I'd love to check that out in the meantime? Take care!

Virginia

LqrMan Newbie

Hey Virginia!

Sorry to hear you went all the way to Chester only to find out the bakery isn't open! Good to know it will open the 23rd though.

Open Original Shared Link is the website...

How old are you and what do you do for a living?

Guest vetnurse

Hey Virginia;

It is funny you mentioned that gluten-free Bakery in Chester, there was just an ad in our Rockland County Paper saying it would open on 6/23 :D

  • 1 month later...
jeany Newbie
Hi,

Are there any other adults with gluten sensitivity living in or near the radius of Middletown, New York?

If so, I would love to chat with you and possibly meet you.

<{POST_SNAPBACK}>

l

  • 2 months later...
WRowland Newbie

I live in Marlboro, New York. That's on 9W, midway between Mid-Hudson and Newburgh-Beacon bridges. About 45 mins from anything in Poughkeepsie.

Haven't seen any info about a meeting yet, but would be interested.

tammy Community Regular

Wow! what a surprise to hear from everyone and see that we are all over! No problem though. I posted another topic regarding getting together for the Christmas Holiday. So I will extend that offer here as well!

I have a few ideas for what might be fun for the whole group. But first, we need to find a central meeting point. I need to know where people are coming from and how far they are willing to drive. Also, I need to know what day and what weekend is better for you.

Remember only 7 weekends before Christmas Eve!!!!!!!!!

Let's have some fun!

  • 3 weeks later...
johnny Rookie

I live in new paltz.

Is there a support group near there?

How about a good doctor or group of doctors near there who are keen to celiac disease and related symptoms?

I have seen too many doctors over the past 11 months and would finally like to feel confident in my doctor(s).

any suggestions?

Johnny

  • 1 year later...
Cougar09 Rookie

FYI that gluten-free bakery in Chester is closed now. :( Apparently they couldn't keep up with the costs. Just wanted to add that in case any of you read this and were planning a trip out there.

hineini Enthusiast

That is sad, Cougar. But there is apparently a baker in Highland that makes gluten-free goodies on Wednesdays (not sure what they do to protect from cross-contamination though) and there is an alternative baker in Kingston that makes gluten-free stuff...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    2. - trents replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    3. - Theresa2407 replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Probiotics

    4. - KathyR37 replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    5. - Scott Adams replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,814
    • Most Online (within 30 mins)
      7,748

    ColbyBowlin
    Newest Member
    ColbyBowlin
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Hi @KathyR37 and a very warm welcome here.  I am so very sorry that you are going through all of this. I just wanted to check, have you ever been tested for any other gastrointestinal conditions? Cristiana  
    • trents
      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    • Theresa2407
      thank you for your advice.   I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated.  I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    • KathyR37
      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.