Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

At The Start Of A Long Road

writerscramp

Recommended Posts

writerscramp Rookie
writerscramp
Posted

Hello everyone. I am a 42 yr old woman. I have been suffering for about 2 years with symptoms ranging from migraines to chronic diarrhea. I had my gallbladder removed in 06. I have been miserable since. I had been attributing all of my misery to the lack of a gallbladder, when an aquaintance suggested i check with my doctor about celiacs. I am still awaiting the bloodwork, but have been avoiding gluten for a week now. What a tremendous change in how i feel!! I actually have energy, dont need to run to the bathroom several times a day, and havent had a migraine. It is amazing.

I am not sure where my doctor will want to go from here, but I am sure it will involve no gluten for me. It is very comforting to find a place to read what others have learned and have succeeded with. I am a little overwhelmed with the diet and restrictions, since I was a regular fast food eater, but feeling like this is worth anything.

I just wanted to say hi and introduce myself.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest j_mommy
Guest j_mommy
Posted

Hello and welcome!!!!

I'm glad you are feeling better!

I just want to say that I did absolutly NO cooking before going gluten-free....now I cook all the time and I really love it. Not only are my son and I both eating healthier but I enjoy it!!!

At first it can be daughting but it gets easier.

VioletBlue Contributor
VioletBlue
Posted

Hi and welcome. I'm glad you're finding help and comfort here. They knew me well at Taco Bell and the local Chinese take out place. I've considered holding a wake for my former lifestyle. I may still do it. :rolleyes:

Violet

ravenwoodglass Mentor
ravenwoodglass
Posted
Hi and welcome. I'm glad you're finding help and comfort here. They knew me well at Taco Bell and the local Chinese take out place. I've considered holding a wake for my former lifestyle. I may still do it. :rolleyes:

Violet

You could bury an eggroll in your back yard and put a rock with a sheaf of wheat with a red slash through it as a marker. Then plant your favorite flower or bush in the same place to celebrate your return to health.

ravenwoodglass Mentor
ravenwoodglass
Posted
Hello everyone. I am a 42 yr old woman. I have been suffering for about 2 years with symptoms ranging from migraines to chronic diarrhea. I had my gallbladder removed in 06. I have been miserable since. I had been attributing all of my misery to the lack of a gallbladder, when an aquaintance suggested i check with my doctor about celiacs. I am still awaiting the bloodwork, but have been avoiding gluten for a week now. What a tremendous change in how i feel!! I actually have energy, dont need to run to the bathroom several times a day, and havent had a migraine. It is amazing.

I am not sure where my doctor will want to go from here, but I am sure it will involve no gluten for me. It is very comforting to find a place to read what others have learned and have succeeded with. I am a little overwhelmed with the diet and restrictions, since I was a regular fast food eater, but feeling like this is worth anything.

I just wanted to say hi and introduce myself.

Welcome. I am so glad you are feeling better. All your doctor really will need to do is to check your vitamin and mineral levels so you have a baseline. Then you can recheck in 6 months or a year to see how well you are absorbing. He may want to send you to a GI doctor for an endoscopy. If you want to go that route you will need to go back to eating gluten, and you should do it now and not wait. If dietary results are enough for you then forgo the endo unless your problems continue. It is your choice. If you do decide to go back on gluten for more testing be sure to let your doctor know if you have a violent reaction. He may want to stop the challenge.

There is a lot to learn so read as much as you can here. It is a bit of a challenge at first, we often have some ups and downs so be prepared. It is often a good idea to cut dairy out at first IF it is giving you problems. Depending on how damaged your villi are it may take a couple of months to heal enough to digest the lactose.

Again welcome and feel free to post any question you need to, no matter how silly of gross you may think it is.

writerscramp Rookie
writerscramp
Posted
  • Author

Thanks for the red carpet treatment. Upon reading posts here, I am so amazed to see symptoms I had been having listed throughout the posts. So, the flamethrower behind my face wasnt from the migraines, it was gluten. The days when I could barely think of my own name was gluten. The mad rush to a bathroom after i ate a meal wasnt from my gallbladder being gone, it was gluten. All the htings that have plagued me the past couple of years all appear to be from gluten.

I am still awaiting the blood work results, but even if I dont have celiacs, i surely have a sensativity. I will keep you all posted on what i learn.

thanks again.

nutralady2001 Newbie
nutralady2001
Posted

Welcome! I was diagnosed about 3 months ago , and believe I was undiagnosed for 47 years. How much misery I could have saved myself if I knew about Coeliac Disease and insist my docs do more than just telling me I had "IBS" and there was nothing they could do.

Finally had an endoscopy/colonoscopy because I was iron deficient and a bowel screening showed blood in both upper and lower GI tract and bingo! I have Coeliac Disease

I eat very simply for now, meat/veg/fruit lol. In time I will get more adventurous. I was never much of a junk food eater but love chocolate . I had been eating it because even though it had glucose syrup in it from wheat here in Australia the Coeliac Society say it has "no detectable gluten" something like 2 parts per million

As an experiment I have cut out those things from wheat considered to have no detectable gluten because of the high processing, glucose syrup/dextrose/maltodextrin and it has made an even further improvement , more alert/energy less brain fog a very subtle difference but it's there

Have also checked all personal care/skin care items and removed anything containing gluten from them as well.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Rejoicephd
      - Rejoicephd posted a topic in Coping with Celiac Disease
      0

      Draft gluten-free ciders… can they be trusted ?

      Hi everyone do you know whether when you get a draft cider if there is a chance that it runs through the same tubing as a beer did sometime prior? the reason I’m asking is that I’m trying to eliminate a source of hidden gluten that I think hits me about once a month. And I have a suspicion it might be cider from the draft at certain bars. When I a...
    2. cristiana
      - cristiana replied to Rejoicephd's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      29

      Struggling to get into a good pattern

      Thank you for the update @Rejoicephd it is good to know that you may have some answers. Keep up the good work with your diet, and do let us know if you do get a firm diagnosis. I took so long to feel better and for my TTG levels to normalise, but got there in the end, so also bear in mind it does take longer for some of us.
    3. StuartJ
      - StuartJ replied to The Logician's topic in Related Issues & Disorders
      28

      Gluten Sensitivity

      Well, three months later and a startling revelation! After going gluten free (and nearly bankrupt buying special foods), my wife made a lunch of meat potatoes and gravy made with Bertolli white sauce - no wheat there right? Big flare up withing hours and I was really wiped out with it. She rechecks the label on the sauce bottle and right at the bottom...
    4. trents
      - trents replied to Celiacpartner's topic in Food Intolerance & Leaky Gut
      8

      Could this be a new intolerance

      Unfortunately, the development of celiac disease usually is not an end in and of itself. It usually brings along friends, given time. It is at heart an immune system dysfunction which often embraces other immune system dysfunctions as time goes on.
    5. Celiacpartner
      - Celiacpartner replied to Celiacpartner's topic in Food Intolerance & Leaky Gut
      8

      Could this be a new intolerance

      Thanks so much for the responses. I will urge him to go for further investigation. To be 48yrs old and develop a new allergy.. ugh, As if celiac disease isn’t enough!
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,361
    • Most Online (within 30 mins)
      7,748
    anabjermeland
    Newest Member
    anabjermeland
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      Hi everyone do you know whether when you get a draft cider if there is a chance that it runs through the same tubing as a beer did sometime prior?  the reason I’m asking is that I’m trying to eliminate a source of hidden gluten that I think hits me about once a month. And I have a suspicion it might be cider from the draft at certain bars. When I am out, if I decide to drink, I usually order a cider brand that I know is gluten free.    what I’ve noticed is that a couple times when I got a draft cider, I got symptoms of being  glutened that night and the day after. This doesn’t seem to happen with all times I drink cider. I had a draft at a very clean brewery and I didn’t react from that, which is what made me start to wonder. Does anyone know if this is a possible source of getting glutened? I am like 99% sure that this is the cause and I think I’ll switch to bottle/can only from here on out, but would be interested if others experienced the same thing (or work in a bar and know how this works). Thanks!
    • cristiana
      Struggling to get into a good pattern

      By cristiana · Posted

      Thank you for the update @Rejoicephd it is good to know that you may have some answers.  Keep up the good work with your diet, and do let us know if you do get a firm diagnosis.  I took so long to feel better and for my TTG levels to normalise,  but got there in the end, so also bear in mind it does take longer for some of us.
    • StuartJ
      Gluten Sensitivity

      By StuartJ · Posted

      Well, three months later and a startling revelation!  After going gluten free (and nearly bankrupt buying special foods), my wife made a lunch of meat potatoes and gravy made with Bertolli white sauce - no wheat there right?  Big flare up withing hours and I was really wiped out with it.  She rechecks the label on the sauce bottle and right at the bottom of the ingredients XANTHAN GUM. There's our #1 suspect again!  So by way of experimenting, she decided to try making a loaf of bread with just regular white flour like she used to do and see what happened; the familiar smell hit me when I walked in the door last night and I sat down to eat this still warm, fresh goodness - I thought even if I have to take Imodium sandwiches, it will be worth it 😋 No ill effects, either overnight or today!  Half the loaf is now gone because I had some for supper, saving just one last slice for breakfast in the morning` - I've used the bathroom once and that was normal, so maybe it is not the gluten after all? Can't wait to try a beer! 😁
    • trents
      Could this be a new intolerance

      By trents · Posted

      Unfortunately, the development of celiac disease usually is not an end in and of itself. It usually brings along friends, given time. It is at heart an immune system dysfunction which often embraces other immune system dysfunctions as time goes on.
    • Celiacpartner
      Could this be a new intolerance

      By Celiacpartner · Posted

      Thanks so much for the responses. I will urge him to go for further investigation. To be 48yrs old and develop a new allergy.. ugh, As if celiac disease isn’t enough! 
×
×
  • Create New...