Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

AudreyT

Is A Biopsy Strictly Necessary?

Rate this topic

Recommended Posts

Hello. My name is Audrey and I am new to the board. I recently suffered a 25 day bout of diarrhea...and my Doc suspects Celiac Disease.

I am scheduling the intital blood test(s). But I wanted to know if a biopsy is really necessary. I am nervous about the procedure, and also just having concerns about finding the time, etc. However, my health comes first, and I want to do the right thing here.

Any thoughts would be appreciated. Thank you.

Share this post


Link to post
Share on other sites

Getting the biopsy is a very personal thing.

There are many people on these boards that didn't - but they know through dietary response that when they eat gluten they feel ill.... and feel well off it.

There are however benefits to having the biopsy.

It can rule out any other 'nasties' the doc may be looking for.

Both my husband and son were diagnosed by biopsy.

It was our decision because it was irrefutable proof......I knew if there was an element of doubt it would make it harder to stick to being gluten-free for life.

Good Luck :)

Share this post


Link to post
Share on other sites
Hello. My name is Audrey and I am new to the board. I recently suffered a 25 day bout of diarrhea...and my Doc suspects Celiac Disease.

I am scheduling the intital blood test(s). But I wanted to know if a biopsy is really necessary. I am nervous about the procedure, and also just having concerns about finding the time, etc. However, my health comes first, and I want to do the right thing here.

Any thoughts would be appreciated. Thank you.

Welcome Audrey:

Your blood test can confirm Celiac, but they are not 100% reliable. Make sure that your doctor runs the full Celiac Blood Screening test. If you do have a positive blood test, there is no need for further diagnostic testing for Celiac. The endoscopy exam and biopsy can also confirm Celiac Disease and look for the extent of villi damage in the small intestines. The endoscopy exam can also look for other issues. The biopsy can be hit or miss and also is not 100%. It is not a difficult exam and there is nothing to worry about regarding the procedure.

It is very important, that while you await your blood screening that you remain on gluten. DO NOT GO GLUTEN FREE. It may effect your results.

I hope this was helpful.

Share this post


Link to post
Share on other sites

I had an endoscopy w/ biopsies last month despite negative blood work- I did blood tests one week after a 2 week gluten-free trial and was fearing a false negative. I responded so well to my gluten-free trial in November I really wanted to know if I had villi damage. The results just came back (see my other post re: endoscopy results) but the biopsies determined no villi damage but a high white blood cell count - doctor suspects small intestine bacterial overgrowth (which if left untreated, patients also can see a great response to going gluten free since the bacteria is feeding off of the gluten) - or if it's not bacteria, then very early celiac. I am now on antibiotics (xifaxan) to see if it is a bacteria issue and 3 days in I am feeling really good (I have been gluten-free since 12/22 but the antibiotics made me get more energy in the AM- which was surprising), so it's posible I am not gluten intolerant after all. I will remain off gluten and will also take some probiotics for a month or two before attempting to challenge any gluten but I honestly had not expected this possibility (I thought I was for sure genetically gluten sensitive and was ready to be off of gluten forever). Now I'm just taking things a day at a time. Assuming I will be able to ingest gluten again I'll probably remain gluten-free but not fear accidental glutenations (they suck- I was out of commision for a day and a half after accidentally having a corn tortilla that touched a flour tortilla).

So for me I am glad I did the biopsy. I have been trying to undersatnd my other health issues (infertility) and really wanted to get as much information as possible and the biopsy was part of my quest for answers.

I've had a lot of procedures as part of my infertility and the endoscopy was one of the simplest for me - the worst part was the preparation prior to it (I did a colonoscopy at the same time and was on the liquid diet for a day plus all the laxatives) - I barely remember the procedure itself and had no pain/effects afterwards.

Gina

Share this post


Link to post
Share on other sites

Thanks to each of you for your responses.

Is there a type of blood test I should be asking for specifically? Or is there only one that needs to be done?

Share this post


Link to post
Share on other sites
Thanks to each of you for your responses.

Is there a type of blood test I should be asking for specifically? Or is there only one that needs to be done?

These are some or all of the tests your doctor may order:

IgG Antigliadin

IgA Antigliadin

tTG Antigliadin

IgG Tissue Translutaminase

IgA Tissue Transglutaminase

Total IgA

Share this post


Link to post
Share on other sites

The tests that you want run are: http://www.celiacdiseasecenter.columbia.ed...C05-Testing.htm

Anti-gliadin antibodies (AGA) both IgA and IgG

Anti-endomysial antibodies (EMA) - IgA

Anti-tissue transglutaminase antibodies (tTG) - IgA

Total IgA level.

If you are IgA deficient, they will often run the tTG IgG.

Share this post


Link to post
Share on other sites
These are some or all of the tests your doctor may order:

IgC Antigliadin

IgA Antigliadin

tTG Antigliadin

IgC Tissue Translutaminase

IgA Tissue Transglutaminase

Total IgA

You mean:

IgG Antigliadin

IgA Antigliadin

tTG Antigliadin

IgG Tissue Translutaminase

IgA Tissue Transglutaminase

Total IgA

:)

Share this post


Link to post
Share on other sites
You mean:

IgG Antigliadin

IgA Antigliadin

tTG Antigliadin

IgG Tissue Translutaminase

IgA Tissue Transglutaminase

Total IgA

:)

Oooops, I'll go back and change it. Thank you ladies.

Share this post


Link to post
Share on other sites
These are some or all of the tests your doctor may order:

IgG Antigliadin

IgA Antigliadin

tTG Antigliadin

IgG Tissue Translutaminase

IgA Tissue Transglutaminase

Total IgA

`

Hi,

Do you need to be still eating gluten to have these tests show a proper DX?

Share this post


Link to post
Share on other sites
`

Hi,

Do you need to be still eating gluten to have these tests show a proper DX?

Yes, it's recommended to eat the equivalent of 3-4 slices of bread for at least two months.

Share this post


Link to post
Share on other sites
I had an endoscopy w/ biopsies last month despite negative blood work- I did blood tests one week after a 2 week gluten-free trial and was fearing a false negative. I responded so well to my gluten-free trial in November I really wanted to know if I had villi damage. The results just came back (see my other post re: endoscopy results) but the biopsies determined no villi damage but a high white blood cell count - doctor suspects small intestine bacterial overgrowth (which if left untreated, patients also can see a great response to going gluten free since the bacteria is feeding off of the gluten) - or if it's not bacteria, then very early celiac.

You may want to have a look at this http://coeliac.info/suppboard/viewtopic.ph...;highlight=sibo.

It's a link to a write up on SIBO and a few messages from a UK based Coeliac forum.

Best Wishes in you endeavour to find out what is causing your problems.

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • March 20, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 24, 2019 Until March 27, 2019
      0  
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 30, 2019 Until March 31, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
  • Member Statistics

    • Total Members
      86,777
    • Most Online
      4,125

    Newest Member
    Sdceliac
    Joined
  • Forum Statistics

    • Total Topics
      112,052
    • Total Posts
      956,601
  • Who's Online (See full list)

    There are no registered users currently online

  • Forum Discussions

    I am celiac and eat gluten-free, DF, SF and sunflower free because I'm highly reactive to all 4. I discovered about a year and a half ago that I would have severe and immediate GI reactions, similar to as if I ate dairy, to anything with sunflower/safflower products in it, but I think that's when using the oil became more prevalent too. Strange because I loved sunflower seeds as a kid. I've also linked it to places I've eaten out where everything was fine and then discovered they started using s
    So i recently had a baby and 3 months postpartum I started celery juicing and after juicing my stomach would be in so much pain. So I stopped it for a while and a whole month no pain or issues. I made an apt with a GI doctor to just get my blood work checked everything came back great except the Ema it was 1:20 he said it was strange because all the other Celiac panel test were negative my Ttg and the genetic screening even. So I made an apt with another doctor for second opinion she stated that
Potatoes are good for breakfast! Your concoction sounds pretty good. K, how about this? Peel & dice potatoes, fry them in just enough olive oil to keep them from sticking in a skillet until they begin getting crispy. Toss in diced sweet peppers or maybe chili peppers, onions to soften. I know you're not doing egg yolks b/c of iodine but you can do the whites. Pour egg white on top until the white is done. If you have a steak or some leftover steak, you can heat that on the side. YUM!
  • Blog Entries

  • ×
    ×
    • Create New...