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Irritable Bowel And Celiac

mela14

By mela14
in Related Issues & Disorders

Recommended Posts

mela14 Enthusiast
mela14
Posted

Before I found out I had a gluten intolerance most GI drs diagnosed me with IBS and prescribed different meds. The Levsin type drugs did nothing for me besides give me migraines and make me tired. Then they came out with motility drugs and they seem to help with the bloating and move things along. They took Propulsid off the market and put me on Dom Peridone(Motilium)...I got it from out of the country. Then came Zelnorm which has helped with the bloating tremendously. I use it when things get really out of control. Like when my intestines are angry at me and react to everything! I'm curious what the feelings are on this drug and if anyone has taken it for their IBS.

I haven't even checked if it gluten-free but it never bothered me in that way so I'm thinking that it is. B)

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debmidge Rising Star
debmidge
Posted

My huband who is new celiac, was given Zelnorm by primary care Dr. but never took it, was scared. I did however contact manufacturer NOVARTIS and it is gluten-free.

I wondered if it worked for anyone else with celiac. Since he's been gluten-free he's now on the constipated side.

Also, I read your post very rapidly and mistook Dom Peridone for Dom Perrigone (the champagne) for a split second. I got a chuckle at that. Heck, I consider champagne as a medication.

mela14 Enthusiast
mela14
Posted
  • Author

When I first used it, it gave me diahrea. It's one of the side effeets that goes away after a few days. It helped get rid of a lot of GAS though! I had to stop because of intestinal adhesions..(i've had soooooooooo many surgeries) it was causing me more pain...tugging ang pulling on the adhesions. I had my last adhesion surgery in Germany this past July and did not take it while I was healing. Of course, not yet being diagnosed with gluten intolerance I continued to get sick and bloated. Eventually I used it again to help me thorugh a bad episode and stopped. I had to cut the pills in half as the original dosage was too strong for me and limited it to once a day instead of twice. A few days ago, I decided to try it again and it really helped get the gas out....you actually feel things moving around and out! I don't like to rely on it all the time but at times like this when I'm reacting to most anything it helps. I'm hoping that as I heal I'll be able to tolerate a lot more.

As for the Dom Peridone.....champagne med would be nice!

BamBam Community Regular
BamBam
Posted

I have been taking Zelnorm since October 21st, and it seems to be helping me a lot. I have such screwed up bowels, I never know what is gonna happen when, and my system has been very quiet and almost normal. It's kinda scary. My IBS would be constipation for up to six days and then diarrhea for several days, very hard to work, travel, and lead a normal life. The Zelnorm has quieted things down a lot, I get some abdominal discomfort, but not much. I started the gluten free diet in August, and I think the two together are working well. I am more normal, with bowel movements every day for every other day.

BAM

mela14 Enthusiast
mela14
Posted
  • Author

That's good to hear BamBam,

do you take 6 mg twice a day? I cut them in half and take 3mg but have limited it to once a day. I think I will have to go back to twice. Everything is an uproar and I am reacting to everything that I eat or drink. I am having a cup of tea right now(marhmallow root trea tea) and am already bloated and cramping! I am afraid to eat at this point! I've been gluten-free almost a month but have noticed other intolerances so I am trying to deal with that. Have you been on the Zelnorm continuosly or did you take a break from it? I have taken breaks form it when things calmed down and then resumed when the IBS acted up.

Do you take Zantac or any acid reducers too?

darlindeb25 Collaborator
darlindeb25
Posted

morning mel----try some peppermint tea--maybe that will help--deb

astyanax Rookie
astyanax
Posted

i'm on zelnorm.. have been taking it for about a month for stomach bloating. in the past week i've noticed my bloating has gotten better some days (some days are just normal bad bloating) but i'm not sure if that's the zelnorm or the fact i haven't been eating much cos of finals.

how long did it take people who are on zelnorm for it to affect you ? and how do you take it with food, right before you eat or like maybe a half hour or hour before you eat?

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BamBam Community Regular
BamBam
Posted

Hello again:

I take 6 mlg zelnorm in the morning and before bedtime. I take with some other meds, after I have eaten. I was taking my meds on an empty stomach and it caused some upset, so I do take them after I have eaten. I take it twice every day with no interruptions. It has helped dramatically in my system. Prior to Zelnorm, everything I ate caused an uproar, plus I would be constipated for a week, then diarrhea for several days and times where if I didn't find a bathroom quickly I was in trouble. Since going totally gluten free and taking zelnorm, I have had a very quiet system, plus a more normal routine.

BamBam

mela14 Enthusiast
mela14
Posted
  • Author

Good for you Bambam,

I take the Zelnorm right before I eat....sometimes i forget to take it so I actually take it while I am eating dinner. I just started taking it again before breakfast.

When I stay away from it and then start using it again...i can actually feel things moving along and OUT! It's a wild feeling. After being on it a few days thing seem to get back into sync and you are right....a lot more regular!

So between that and going gluten-free I'm sure things will get better.

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