Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Here


Jodi Mills

Recommended Posts

Jodi Mills Apprentice

Hello My name is Jodi, I have been living with Celiac since I was well a toddler would be my guess. I was diagnosed at age 6, (dont know what tests were available, or if any testing was done). My mom put me on the gluten free diet and I improved. When I hit about 12 I started eating anything again, I was tired of being different, and didnt really understand the consequences. I got used to the bloating, rashes, naseau, I am now 23 and have been gluten free for about 3 months. I still have bloating, and other things, but not nearly as bad. I am new to this site, and looking for information on what and what not to do, eat, all that good stuff.

I did learn the hard way about shampoos though. So i have found a brand that works. I was using tresemee and clumps of hair were coming out.(I had bald spots) Now I am on sunsilk, and the spots are growing back. Talk about embarassing, I am 23 and and was losing my hair. :( Good thing my boyfriend knows my situation. :D

Now that everything is getting back on track, I am just wondering how long does it take for the healing to take place, I know it could take a long time, but is there anything I can do to help it along? I am also not seeing any doctors, I do not have insurance, and cannot really afford to rack up any more doctor bills.

Any and All advice would be greatly appreciated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



happygirl Collaborator

Jodi, Welcome you to the board. I hope you make yourself at home!

Jodi Mills Apprentice
Jodi, Welcome you to the board. I hope you make yourself at home!

Thank You, I am definately trying to. This site amazes me!

Ursa Major Collaborator

Hi Jodi, and welcome here. One piece of advice is, to eliminate all dairy and soy for at least three to six months, to allow your insides to heal. The dairy especially could be causing the continuing bloating.

Many people here can't tolerate dairy even after several months, but others are able to reintroduce it eventually. You'll have to figure it out for yourself.

Have you replaced contaminated things in the kitchen? You need a new toaster for just gluten-free bread, a new colander if your old one is out of plastic (you absolutely cannot get all the gluten out of a plastic colander that you have drained gluten pasta with), wooden cutting boards and cooking spoons need replacing, as well as any scratched non-stick cookware.

Also, toss dish brushes and sponges (if you haven't done that already) and buy new ones.

Make sure your vitamins are gluten-free as well. A lot of the time vitamin E is derived from wheat germ oil, and some vitamins will have wheat starch as a filler (and so will medications).

Some people find that taking a probiotic or enzymes will help them heal faster.

missy'smom Collaborator

Welcome. :) This board is a great resource.

Jodi Mills Apprentice

Thank You Thank You!!!

For the most part, I am dairy free, but I guess I will work hard on cutting out the cheese. if it wasnt for cheese i would be dairy free. thank you for the good advice, I am going to give this a try. Ohh and i dont use the toaster, bread is too expensive and I dont have a bread machine. For the most part everything has been replaced, well i got new, and he uses the old stuff. and we keep them in seperate areas. I do my dishes and he does his. He does understand the importance of all this "nonesense" as some people have told me. He is Lactose intolerant, so he has some insight on how it makes me feel, he just doesnt have the long term effects like me. And He does really good about eating gluten free dinners. I think if it werent for him,(my BF sean) I would be having a much harder time with all of this...

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,767
    • Most Online (within 30 mins)
      7,748

    Kevin C
    Newest Member
    Kevin C
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @Levi, How are you doing?  Sorry I missed your posts.   How's your thyroid?  Did your Vitamin D stabilize?  Do you have long hauler syndrome after Covid? Consider switching to Vitamin D 3, the natural form of Vitamin D.  Vitamin D 2 is the synthetic form of Vitamin D which the body can have difficulty changing to an active form.  Also, Thiamine is needed to active Vitamin D.   Hypothyroidism can be caused by Thiamine deficiency.  The thyroid is an organ that uses lots of thiamine.  sometimes thyroid deficiency can also cause hyperthyroidism, or swings between both hyper- and hypo-thyroidism. We need more Thiamine when we're sick with an infection (like Covid) or injured.  We need more Thiamine when we're physically active.  We need more Thiamine when we're emotionally stressed or worried.  Our brain uses the more Thiamine just thinking than our muscles do while running a marathon.  Thiamine is extremely important in fighting infections.  Covid patients and long haulers have found taking Thiamine has improved their survival rate and long term symptoms.   Consider taking a Thiamine supplement like Benfotiamine which has been scientifically shown to promote intestinal healing.  Damaged villi need thiamine to grow back.   Be sure to take a magnesium supplement, too.  Thiamine and magnesium make life sustaining enzymes together.  You also need magnesium to keep calcium in the bones.  The thyroid regulates calcium.  A wonky thyroid can lead to reduced bone density.   Remember the B vitamins all work together in concert so adding a B Complex to Benfotiamine and magnesium supplements and Vitamin C would be great in improving absorption of nutrients while we're dealing with celiac disease. Namaste
    • lizzie42
      I'm looking for bars or non perishable snacks for my 2 kids. They are 5 and 3. The 3 year old seems sensitive to oats also. We do a lot of long hikes and bike rides. They eat mostly fresh foods but for these rides and hikes we need easy and non perishable. Also that taste good! We do a lot of larabars and freeze dried apples but those are getting old. Any ideas? 
    • knitty kitty
      Oh, @MagsM, Sorry you had that happen with Niacin.  500mg is the maximum amount of Niacin one should take.  Niacin works hand in hand with Thiamine, so a big influx like that can imbalance thiamine if not supplemented at the same time.  All the B vitamins work together in concert.  Niacin in doses at 500 mg or above have been used by doctors to lower triglycerides levels and raise HDL, the good cholesterol.  Pharmaceuticals to do the same thing are more expensive and thus more profitable for physicians. Has your doctor tested you for H. Pylori?  An infection by H. Pylori can be tested for by your doctor.  H. Pylori can cause low tTg IgA results, too.   I would hold off on the microbiome test for now.  Your microbiome is going to change when you go gluten free.  Your microbiome will change when you start taking Thiamine.  Thiamine supplementation influences which microbes grow in the intestines, encouraging beneficial bacteria and getting rid of the bad ones.  Thiamine in the form Benfothiamine promotes intestinal healing, too.  Adopting the Autoimmune Protocol Diet (by Dr. Sarah Ballantyne, a Celiac herself) after diagnosis will also change your microbiome.  This is the best diet to heal and recover, IMO.   If you're going to have more testing done for vitamin deficiencies, don't take vitamin supplements beforehand, otherwise the tests will measure the vitamin supplements in your bloodstream and give false results.  Same thing will happen if you take B vitamin shots.  The supplements you mentioned (Arterosil HP and Vascanox HP) are herbal support and do not contain all eight B vitamins.  There's no harm in taking them, but I prefer a B Complex that contains all the B vitamins in activated forms like Life Extension's Bioactive Complete B Complex.  All the B vitamins work together in concert.  Magnesium is important to supplement as thiamine and magnesium make life sustaining enzymes together.  Do not buy supplements containing Thiamine Mononitrate because it is not biologically active.  It is very hard for the body to utilize.  Most of it (70%) passes out unused.    Yes, my Meniere's disease has not returned.  I was deficient in Vitamin D.  I took high doses of Vitamin D 3 to correct the deficiency quickly.  I also took TTFD (tetrahydrofurfuryl disulfide) which is a form of thiamine different from Benfotiamine.  TTFD can cross the blood brain barrier without a carrier, so it can get into the brain very easily.  TTFD helps the Vagus nerve function.  The Vagus nerve regulates the ears and balance, and also the digestive system.  I like Allithiamine by Ecological Formulas.  I also like Thiamax by Objective Nutrients.  You should have improvements within a hour with TTFD.  TTFD is much stronger, so lower doses will give amazing benefits (50-200 mg).   I hope this helps give you some direction to take on your journey!
    • MagsM
      Thank you so much for this in depth analysis. I am currently taking Vit D3/K2 5000IU daily.i started taking a flushing Niacin but foolishly took a 500mg tab and nearly passed out! I have just ordered a gut microbiome genome test and it will be interesting to see what my current balance of microbes are. After I finish diagnosis I will definitely go gluten free. Diagnosis will inform exactly how strict I’ll need to be regarding cross contamination etc. my focus will be on healing the gut. I have also been focusing on the oral microbiome - cutting out FL and using more natural products as well as daily oil pulling. I read from some of your other forum entries about Benfothiamine and I’ll definitely order that. I’ll make sure my doc orders more detailed vitamin and mineral panel plus total IGA as well as the DGP-IGA and DGP-IGG tests. We will see if I can get the endoscopic biopsy done. Do you think I should request Vitamin B shots to get me started?  My daily vitamin protocol will likely be VitD/K2 5000IU, Benfothiamin 300x2, Niacin (flushing) 50mg working up to 300mg. I also take a EPA/DHA as well as some vascular support (Arterosil HP and Vascanox HP) as well as Magnesium at night. Which B complex brand do you like? I will see what the gut microbiome test comes back with. I’m sure they will try to sell me pre/probiotics and maybe some digestive enzymes. What are you thought on those? I’m curious if you managed to go into full remission from your Ménière’s disease? Thank you so much for your thoughtful insight. I know that building back up my gut health and immune health will help in so many ways as well as protecting me from many other major diseases as I go into my 60s and beyond. 
    • Scott Adams
      You are right! The logo the have on their packages got me confused--it looks like they are less than 20ppm, not certified GF. Thanks for catching that! My brain also zeroed in on this "less than 10ppm" but I should have seen the rest...
×
×
  • Create New...