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Anyone Know Any Groups, Etc. In Richmond, Va?

rvagirl

By rvagirl
in Introduce Yourself / Share Stuff

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rvagirl Rookie
rvagirl
Posted

Hey y'all, just wondering if there are any groups in the Richmond, Virginia area. Please let me know if anyone knows anything. Thanks!

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happygirl Collaborator
happygirl
Posted

There is a really great group in the Richmond area.

Lots of involvement, and they have great speakers.

Richmond:

The West End Gluten Intolerance Group

dbmamaz Explorer
dbmamaz
Posted

I've been trying to get ahold of them but havent been able to. The website lists meeting time and place, but not DAY, and I emailed asking if the group was still alive and if they had lists of good doctors, and got no response. I'm in the far-west-end . ..

happygirl Collaborator
happygirl
Posted

Have you tried calling the branch manager?

dbmamaz Explorer
dbmamaz
Posted

No, I guess I should try that - i dont like the phone that much, I much prefer electronic communication - the kids can interupt me, i can do it when its convenient, its there when i'm ready for it. Plus, I'm waiting for the test results to come back, cuz I wasnt sure if they'd be open to me w/out any dx. So i'll try calling after I'm more sure . . .

rvagirl Rookie
rvagirl
Posted
  • Author

Thank you so much for the info! I just tried calling the branch manager but no one answered the phone. I'll also try emailing and see what comes of it. Since y'all are in the Richmond area, do you personally have any doctors, nutritionists, etc. that you know of to either recommend or avoid? Thank you!

  • 1 month later...
ar8 Apprentice
ar8
Posted
Thank you so much for the info! I just tried calling the branch manager but no one answered the phone. I'll also try emailing and see what comes of it. Since y'all are in the Richmond area, do you personally have any doctors, nutritionists, etc. that you know of to either recommend or avoid? Thank you!

Tina Shiver is an excellent nutritionist-- but she will likely try to give you the SCD diet book, it may help you, though it DIDN'T help me-- seems to help many people, though. You can find her at "tinashiver.com"

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happygirl Collaborator
happygirl
Posted

Open Original Shared Link

Meeting dates/location have been updated.

flourgirl Apprentice
flourgirl
Posted

Hi Virginia! My Dr. sent me to the University of Va in Charlottesville to see Dr. Sheila Crowe, who's supposed to be the area's expert. I saw a nutrionitst there, too. I got a lot more out of the nutrionist than I did anyone else! I had to wait a very long time to go......might be worth it to you. Good luck!

happygirl Collaborator
happygirl
Posted

VCU also has experienced GIs. They are participating in a Celiac research study.

  • 2 months later...
Guest LizzieO
Guest LizzieO
Posted
VCU also has experienced GIs. They are participating in a Celiac research study.

Could you recommend anyone in particular at VCU. My family doctor and dermatologist have both recommended I go for a GI work-up for ?able DH/celiac. The only MD I've found in VA specializing in these areas is Dr. Sheila Crowe at UVA...but can't get in with her until the end of July. Her office offered an appointment with a physicians' assistant in June; however, I'm a little reluctant to go to her vs. an MD. Do you have any suggestions?

LizzieO

  • 5 months later...
EmmBee66 Newbie
EmmBee66
Posted
Could you recommend anyone in particular at VCU. My family doctor and dermatologist have both recommended I go for a GI work-up for ?able DH/celiac. The only MD I've found in VA specializing in these areas is Dr. Sheila Crowe at UVA...but can't get in with her until the end of July. Her office offered an appointment with a physicians' assistant in June; however, I'm a little reluctant to go to her vs. an MD. Do you have any suggestions?

LizzieO

Dr. michael farrell with richmond gastrointestinal specialists diagnosed me and seems very aware of celiac and related issues. they have several offices and their web site is www.gastrova.com. Hope this helps! --emmbee

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    • knitty kitty
      My only proof

      By knitty kitty · Posted

      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
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    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
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