Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Why Am I Not Getting Better


jasonD2

Recommended Posts

jasonD2 Experienced

I was diagnosed with leaky gut and multiple food allergies and mild yeast overgrowth. I had extensive testing done back in October and have been on a very strict diet ever since. no gluten, soy, dairy, eggs and a whole list of other foods I tested positive for. Life has been very tough and im exhausted from constantly having to cook all my own food and its also putting a strain on my wallet since gluten-free foods are not cheap. I feel a touch better then I did before....my main symptoms were fatigue after meals and chronic constipation for 5 yrs. Now im having a BM pretty much every day, but I still have to strain to go cause my stools are a bit hard when they first come out. I guess im frustrated cause i am not experiencing dramatic relief, which is what i was hoping for. only supplements i take now are acacia fiber, probiotics and digestive enzyme supplements before meals which seems to at least guarantee a daily BM. i am sensitive to a lot of other supplements that i had to cut back on and am really just trying to keep it simple. Just not sure if all of this is worth it but I guess i will continue.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



scotty Explorer
I was diagnosed with leaky gut and multiple food allergies and mild yeast overgrowth. I had extensive testing done back in October and have been on a very strict diet ever since. no gluten, soy, dairy, eggs and a whole list of other foods I tested positive for. Life has been very tough and im exhausted from constantly having to cook all my own food and its also putting a strain on my wallet since gluten-free foods are not cheap. I feel a touch better then I did before....my main symptoms were fatigue after meals and chronic constipation for 5 yrs. Now im having a BM pretty much every day, but I still have to strain to go cause my stools are a bit hard when they first come out. I guess im frustrated cause i am not experiencing dramatic relief, which is what i was hoping for. only supplements i take now are acacia fiber, probiotics and digestive enzyme supplements before meals which seems to at least guarantee a daily BM. i am sensitive to a lot of other supplements that i had to cut back on and am really just trying to keep it simple. Just not sure if all of this is worth it but I guess i will continue.

what's acacia fiber?

hathor Contributor

Constipation issues seem to take much longer than 3 months to resolve. I've been reading this forum for quite a while now and I don't recall anybody, ever, reporting dramatic relief when C was the problem.

Have you tried taking magnesium? Not so much as to act like a laxative, just enough to soften your stools. (I think folks pretty much have to experiment to see how much is enough and how much is too much.)

I assume you are eating lots of fiber-rich foods?

mftnchn Explorer

Jason,

This does really sound difficult, especially when you don't see a lot of progress. With you having been faithful for several months, I would start to wonder if there is something else going on that is causing the multiple sensitivities.

There are several threads here of folks that have found help one way or another. Hopefully they'll post too.

Here's my suggestions: Just pop in (don't try to read it--its way too long) and post in the "OMG I think I might be on to something" thread, where there are a number of people who have not gotten better with very restrictive diets and have found other issues including infections, parasites, heavy metal toxicity, lyme disease, etc. etc. Just post your question again there and see what happens.

Also, I'd check out the lyme disease thread on this forum. Several who have now been diagnosed with lyme disease had a lot of digestive symptoms.

Hope you find some answers, and glad you keep asking here on this forum. Seems like there are such wonderful people resources here.

jasonD2 Experienced

Thanks - but i dont have lyme disease or heavy metal poisioning- all of my problems originated from antibiotics and gastroenteritis and not taking proper care of myself back when everything happened. also been tested for parasites and all the other goodies.

ravenwoodglass Mentor

Hi Jason, I have found something that seems to help me a great deal when I am dealing with C. It is sweet potatoes. I don't know why they seem to help regulate so well, I do know they are an 'ancient' oriental medicine 'cure' for C and D. If you like them try adding them to your diet, they seem to be rather soothing also.

It can take a while to heal and for your system to get used to working normally. You also mention being fatigued, you should add a good sublingual B12 and see if it helps. There are many different brands, I use country life. It may help a lot with the tiredness.

I hope you feel better soon.

sickchick Community Regular

Jason could I recommend trying a super potent pribiotic and some psyllium daily?

Just don't take them at the same time. Take the probiotics on an empty stomach.

My two cents :)

Be well

sickchick


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



confusedks Enthusiast

This is very interesting, but I am on all kinds of meds (antibiotics) and supplements and I was getting really constipated for a while. So, I took some psyllium fiber and it actually made me WAY more constipated and feel WAY worse!

Some people say it's best to take all supplements out and slowly add them back in one at a time to see if any are making you worse without realizing it.

LoriG Contributor

Jason,

I also know how you feel. I've been at this 5 months and have seen very little improvement. I also have symptoms of fatigue and constipation. What has helped me immensely with the constipation is a product called Natural Calm Magnesium. You mix it in a tea and can adjust the amounts.

I see a natural doctor who uses energy/biophysics to diagnose - hard to explain! I just saw him and he said I must have recently got some gluten in, which I knew based on the constipation coming back. So now I am calling every company about every product that goes in my mouth. I bought new pots etc. So maybe you might be getting a little bit in somewhere. Just a thought.

I keep hanging in there because I hope there is a light at the end of the tunnel. Take Care.

HappyMomof5 Newbie

Jason,

You should definitely check in to getting yourself a good gluten free vitamin with Magnesium, and/or get a 250 mg supplement of Mg. Magnesium is a natural muscle relaxer and will help you sleep as well as give a normal bowel movement within about 8 hours.

I take it about 30 minutes before bed and it its awesome since I have always had problems with those two issues.

It makes sense that you would be mineral deficient since your body has trouble absorbing nutrients right now. Also, 4 months seems like a long time when you're agonizing from day to day what to eat, but it really isn't that long in the whole scheme of things. I would give yourself at least a year. (I've only been gluten-free 3 weeks and would love to be where you are now! :) )

I have a Celiac friend who took 6 years to stop his IBS and diarrhea problem, and now at a restaurant even using a contaminated skillet to cook in sets him off. I think you'll heal up faster than him, though. It took him 40 years to catch his problem.

Good luck, and I hope this helps,

~Heather

hathor Contributor

Wow, I'd love it if I could take only 250 mg of magnesium and it acted in 8 hours. Unfortunately, I need much more over the course of a day and it takes longer.

Just to note that there are individual variations ...

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,019
    • Most Online (within 30 mins)
      7,748

    Wilson1984
    Newest Member
    Wilson1984
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.