Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutened Myself On Purpose


chgomom

Recommended Posts

chgomom Enthusiast

Hi everyone,

It's been awhile since I have been on. For a while I was doing really well, then in December my mother passed away. The 9th to be exact and her funeral was the 12th. If you don't remember, my father died in 2005 two days after Christmas. I am also working out a marital issue. So there is lots of stress and thats something I am addressing separate to what I just did yesterday.

Yesterday, after a night of long conversation with my husband, and on my way home from work, I stopped at Wendy's got a frosty (which is gluten-free) but then I added fries, and a baconater without the bread but their mayo and ketchup (this was abotu 3 pm)

Last night at about 8, I started having a panic attack where I felt like something was going to happen to me. Then it subsided and I was burping. Then last night I woke up, heart pounding, with a sick stomach and burping. Then this morning the D is coming, I had another one of those doom and gloom panicky things like something bad was going to happen to me, and I feel like I've been beaten with a bat and I know I am going to have D. Because last night it was normal, this morning it was softer and now I can feel another one coming (sorry for being gross). I am even getting these little pings of pain in different spots all over.

I feel like such a loser, I've been gluten free since June 06. Has anyone ever done this, or am I the lone ranger on this. How stupid could I be!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



darlindeb25 Collaborator

Feel better and start over! Don't beat yourself up. It happened, it's over, tomorrow is a new day! Yes, we have all made mistakes. I usually do not make mistakes with food, sometimes I say things I want to take back, which can hurt someone else worse and I wish I had glutened me instead of hurting them.

If you would like to talk, feel free to email me, my door is always open--ok.

Deb

Tim-n-VA Contributor

I read this originally in the context of weight loss but...

Think about those navigation systems you have in your car. If you miss a turn it doesn't tell you to drive through people's yards and it doesn't say "You missed your turn, drive off of a bridge". It figures a way to get you back on track.

We all make mistakes, some intentional, some not. The key is to get back on track.

ravenwoodglass Mentor

I am so sorry about your Mom and Dad. It sounds like you are under a lot of stress right now. Please don't beat yourself up over this, your body is doing that enough for you. I haven't done this with gluten but I have with my casein issue. Sometimes I just get into this mindset, usually when depressed, that it just isn't fair. So much has been taken away from me and why does this have to go too. Then I get angry and will at times just say 'screw it' and grab some cream cheese or a chocolate bar with milk. As much as I hate to admit it I have been doing just that the last couple of days. And yes I do pay for it also, I woke at 3 am this morning feeling like someone was twisting my intestines and then knifing them. Am I sorry I did it? Yes of course I am. Do I understand why I did it? Yea, I have been under extreme stress lately, nothing compared to what you are going through, but still lots of stress. Will I do it again? I don't know, I will try not to, the cost is too dear. But I also realize I am human, and you are to. You can't change what you did yesterday. Don't punish yourself for it. Please be sure to keep in mind that the intense emotions you are feeling are being intensified by the gluten reaction. Try to pamper yourself if you can and keep in your mind that those intense feelings will fade to a more tolerable level once the gluten effects have passed. Hang in there and big

(((((((((((((HUGS)))))))))))))

chgomom Enthusiast

Yeah...this reaction has me feeling like I am losing my mind.

I never thought it would be that intense.

Is that normal? Like paranoid, achy...holy cow.

jerseyangel Proficient

I'm so sorry about your dad and now your mom :( You're under so much stress right now, so please don't be upset with yourself for this one lapse. It really sounds to me like you went right to the point of glutening yourself, but from the choices you made--stopped short. Of course, the CC got you, but you did show restraint ;)

None of us are perfect--I've not ever cheated with gluten--but I do push my other intolerances from time to time. I had some stress last year--major surgery and a move. I can't say that I felt in control at all times, but I did my best. That's really all we can expect of ourselves.

You questioned the panic--I get this, too when accidently glutened. It's like a heightened sense of anxiety. I think, no--I know, I hate that more than the physical symptoms.

It will pass, and you will feel well again :)

Best of luck with everything, you're not alone--come back and post anytime!

ravenwoodglass Mentor
Yeah...this reaction has me feeling like I am losing my mind.

I never thought it would be that intense.

Is that normal? Like paranoid, achy...holy cow.

Yes this is normal. It will go away but it may make some situations difficult when it is present. I feel so hopeless and scared when this happens, but telling myself it is the gluten not the world around me helps me to cope. I hope it goes away quickly for you.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Aves Newbie

I just went gluten free in May of 2007. I first knew something was wrong because I became terribly depressed, and then when I began to stop eating gluten (it was a process since I didn't know where it was hidden) the first sign that I had gluten was feeling free floating anxiety and mild paranoia. Sometimes it took me awhile to find where it was hidden, but Voila! it would always be something-- blue cheese, those nice little potato chips, whatever...

The best thing out of all of this is that when I am gluten free I'm so calm! That constant anxiety in my life was definitely a sign of a gluten reaction.

Yeah...this reaction has me feeling like I am losing my mind.

I never thought it would be that intense.

Is that normal? Like paranoid, achy...holy cow.

chgomom Enthusiast

Yep....like anxiety but to the next level.

And it reminded me of when I went gluten free. Those first couple of months where you go up and down, and realized just how sick I was then. I guess thats why I am so disappointed with myself.

Each day is a new day, and a new opportunity to start again though.

jerseyangel Proficient
Each day is a new day, and a new opportunity to start again though.

Exactly! :D

chgomom Enthusiast

OMG...still today I feel like I am going to throw up.

I have yellow BM's, and I am nauseaus.

What the heck did I do to myself.

JNBunnie1 Community Regular
OMG...still today I feel like I am going to throw up.

I have yellow BM's, and I am nauseaus.

What the heck did I do to myself.

Hey, when I get bad glutened, it lasts for a month. Don't put any limits on yourself for when you think you're 'supposed' to feel better by. Just pamper yourself for now with mint tea and gentle foods. If your poo continues to be funkified colors, I would consider that there was some other kind of food contamination, as in food-borne illness, and don't allow yourself to get dehydrated. I always had bad nausea with glutening but never threw up, too.

I have some good stress-time treats you can get anywhere. I actually do milkshake therapy sometimes. After my father died, from leukemia, I had lots of sex with my boyfriend. I know that sounds strange, but the whatever chemicals orgasm releases kept me from getting too depressed. (well, you can't get that anywhere) And chocolate. And baking keeps me calm, for some reason. Even when it doesn't come out good, I love baking. I've got a bunch of cakes and cookies in the freezer, even a pie.

loco-ladi Contributor
What the heck did I do to myself.

I believe we shall call this proof positive you are not losing yoru mind ;)

You just got the best (if not most comfortable) proof you need to stay gluten-free

been there done that myself, and if I am not mistaken not a single one of us here can say they havent done the same thing so heck welcome to the club we are a large but friendly group :D

Keep your chin up it will end eventually.

dksart Apprentice

Hi,

I hope you are feeling better.

I got cc'd at Chick fil A right before Christmas and it turned into an ear infection that lasted two weeks and screwed up my equilibrium. That turned into a hell of a sinus infection for another week until I got the flu. That totally kicked my butt until New Years when I got a relapse that was even worse. Not to mention all of the belly issues, headaches and arthritis/swollen joint problems that lingered for weeks after that.

I have been sick for over a month straight, just feeling better as of yesterday. Still struggling with brain fog and a slight depression.

If I ever eat at a fast food restaurant again, it won't be through a drive-thru window. I will go in and speak with a manager and explain the necessity of clean work surfaces, new gloves and no condiments etc. that could have been cc'd. I am still kicking myself for being in too much of a rush to eat good food.

Good Luck,

Debbie

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    2. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    3. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    4. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    5. - Scott Adams replied to Russ H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Anti-endomysial Antibody (EMA) Testing

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,870
    • Most Online (within 30 mins)
      7,748

    KABoston
    Newest Member
    KABoston
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
    • Scott Adams
      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.