Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

List Of Symptoms


Lisa16

Recommended Posts

Lisa16 Collaborator

After reading a number of posts, it occurs to me that one of the most common questions people have is "Can symptom x be gluten-related?" Could we start a list of symptoms actually experienced by people with gluten-sensitivity or celiac disease? This is where some of the expertise from older members could really come in handy for new folks-- it might save a little time and be reassuring. I sometimes found myself reading back a fair ways before finding what I was looking for. And it might help somebody who is trying to figure out what they have:

I can start with the ones I know and/or suspect are classic in adults. You can just put "chronic" in front of all of these--

-migraine headaches-- (no OTC pain reliever could touch these)

-skin problems that do not respond to the expected treatment (rashes, dermatitis, welts, unresponsive "shingles')

-whitish ulcers in the mouth

-white lines on fingers or hands and sunken fingerprints (see post below)

-recurring yeast infections in women

-insomnia

-joint pain (especially in knees and hips)

-muscle spasms/ pain

-nerve problems (tingling, numbness-- esp. in legs, hands and feet)

-depression, anxiety, panic attacks

-diarrhea-- mild to severe (and multiple episodes, even upwards of 25)

-stinky gas, bad cramping (think medieval torture), extreme bloating

-vomiting and nausea

-abdominal pain (left side for me-- you can feel like things are "rounding a corner.")

-a strong reaction within 30 minutes of eating somthing with gluten

-lethargy (low energy)

-feeling hungry all the time

-malabsorbtion (seeing floating bits of veggies or oil slicks in the wc)

-anemia

-underweight/ overweight (I saw here that 40% are overweight from malnutrition)

-infertility

-low libido

And I know this is just a start. I hope people will add (or subtract) and elaborate to make it more complete!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kenlove Rising Star

List is a great idea---

I would add:

night sweats or general sweating profusely

dry heaves

loss of muscle mass & hormones

no appetite

To the nerve problems I would add the shakes. I was treated for Parkinsons for 2 weeks before they figured out the celiac. Couldnt focus on my left leg it was shaking so much.

Ken

After reading a number of posts, it occurs to me that one of the most common questions people have is "Can symptom x be gluten-related?" Could we start a list of symptoms actually experienced by people with gluten-sensitivity or celiac disease? This is where some of the expertise from older members could really come in handy for new folks-- it might save a little time and be reassuring. I sometimes found myself reading back a fair ways before finding what I was looking for. And it might help somebody who is trying to figure out what they have:

I can start with the ones I know and/or suspect are classic in adults. You can just put "chronic" in front of all of these--

-migraine headaches-- (no OTC pain reliever could touch these)

-skin problems that do not respond to the expected treatment (rashes, dermatitis, welts, unresponsive "shingles')

-whitish ulcers in the mouth

-white lines on fingers or hands and sunken fingerprints (see post below)

-recurring yeast infections in women

-insomnia

-joint pain (especially in knees and hips)

-muscle spasms/ pain

-nerve problems (tingling, numbness-- esp. in legs, hands and feet)

-depression, anxiety, panic attacks

-diarrhea-- mild to severe (and multiple episodes, even upwards of 25)

-stinky gas, bad cramping (think medieval torture), extreme bloating

-vomiting and nausea

-abdominal pain (left side for me-- you can feel like things are "rounding a corner.")

-a strong reaction within 30 minutes of eating somthing with gluten

-lethargy (low energy)

-feeling hungry all the time

-malabsorbtion (seeing floating bits of veggies or oil slicks in the wc)

-anemia

-underweight/ overweight (I saw here that 40% are overweight from malnutrition)

-infertility

-low libido

And I know this is just a start. I hope people will add (or subtract) and elaborate to make it more complete!

missy'smom Collaborator

The Celiac Sprue Association website has a good starter list of symptoms. It was enough to convince me!

Lisa16 Collaborator
The Celiac Sprue Association website has a good starter list of symptoms. It was enough to convince me!

Thanks! I will transfer it here (below).

I am also hoping people will contribute some of the non-classic symptoms that they have experienced too. Just take a look at the question posted above this one! Somebody is asking about what the symptoms are. This forum is so important to people-- it would be nice to tap into the expertise here and have all the info in one place.

Celiac Sprue Association list of symptoms:

What are the symptoms? How long have they been present? How often do they occur?

Abdominal cramping/bloating

Feet (Reduced fat padding)

Abdominal distention

Flatus (Passing gas)

Acidosis

Gluten ataxia

Appetite (Increased to the point of craving)

Mouth sores or cracks in the corners

Back pain (Such as a result of collapsed lumbar vertebrae)

Muscle cramping (Especially in the hands and legs)

Constipation

Night blindness

Decreased ability to clot blood

Skin (Very dry)

Dehydration

Stools (Loose? Hard? Small? Large? Foul smelling? Floating? Clay, Light tan or Gray-colored? Highly rancid? Frothy?)

Diarrhea (See Stools below)

Tongue (Smooth or geographic - looks like different continents)

Edema

Tooth enamel defects

Electrolyte depletion

Weakness

Energy loss

Weight loss

Fatigue

B. The Patient's Emotional State

What is the patient's emotional state? Is it consistent throughout the day? When and for how long do the symptoms occur?

Depression

Disinterested in normal activities

Irritable

Mood changes

Unable to concentrate

C. Additional Conditions

What else is involved? Other diseases? Other organs?

Amenorrhea

Iron-deficiency anemia

Bone disease

Hyperparathyroidism

D. Symptoms in Children

How is the child developing?

Slowly

Not gaining weight

Losing weight

Under age three:

Growth failure

Diarrhea

Projectile vomiting

Abdominal bloating/distention

Older children:

Crankiness

Difficulty concentrating

Irritability

Personality changes

Poor memory

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,163
    • Most Online (within 30 mins)
      7,748

    Estee
    Newest Member
    Estee
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...