Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hi. New Here- Varies Topics


fedora

Recommended Posts

fedora Enthusiast

hi. new here. Noticing people have lots of allergies, not just celiac. Is there a way anyone new it was something else and not just celiac. What about my children. One has no symptoms, but 2 might have some.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ridgewalker Contributor

Hi, and welcome to the board!

Yes, a lot of people have multiple intolerances. I don't know if multiple intolerances are more common in people with Celiac, or if Celiacs are just more AWARE of them.

It's hard to give you useful advice without more info--

Are you and all three of your children Celiac/gluten intolerant? When you say one of your kids has no symptoms, do you mean they are an asymptomatic Celiac (no symptoms when they get glutened, even though they're Celiac) or are they Celiac and are currently symptom-free only because they are gluten-free? Are the other two currently gluten-free and still having symptoms? Are you/your kids self-diagnosed or doctor-diagnosed? What happened when you all initially went gluten-free? Etc...

If gluten is the only problem, then symptoms should subside once gluten is completely removed from the diet. If there are still symptoms, or symptoms come back, then there are two possibilities. 1- Hidden gluten is sneaking into the diet. or 2-- There is an additional intolerance that needs to be addressed.

Other intolerances can generally be found by doing an elimination diet. This takes time and organization, but is the best way to do it. If you're interested in details, let us know and we can help you with that.

fedora Enthusiast

hi. I put up a large post with my medical history in the prediagnosis topics. I am a poster child of symptoms since 10- joint pain, dislocated joints due to muscles, diarhea, vomiting, constipation, rashes, anxiety, depression, fatigue, etc. I am 32 now. Luckily they having all happened at the same time, but rotated. I self diagnosed years after doctor suggested it. Wheat free diet beneficial for years, but still had problems. Now gluten free only over a week and already feeling better some.

DD- 6 years old, almost 7 still only 40.5 pounds. She is lean. She has weighed this for a long time. She gets mouth sores all the time, gets cranky for no reason at all. sometimes sad and weepy(though not too much), large poops

her twin- my DS- same age almost 7- severe leg pains(has happened during the day, but usually occurs at night- he howls), colic as baby, have seen him vomit cheese twice(He only eats it on store bought pizza???), spoke late, mild speech impediments, large poops

DS 10 yesterday- no symptoms but has Massive bms- read a post where a DR recognized that as a symptom.

I live in a liberal , community very open to natural healing. I have gone to Drs and said I have Wheat allergy, and they believed me. But my town is very small, no GI here.

kbtoyssni Contributor

I knew to start looking for another food intolerance when I started feeling sick again after ten months of feeling great being gluten-free. It was easy for me to track down - everytime I ate peanut butter I felt sick. Other food intolerances can be more of a challenge to figure out.

I guess it's up to you to know the health of your kids and if you think it's normal. If they don't have any reoccurring health issues, there's probably nothing to worry about.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      41

      My journey is it gluten or fiber?

    2. - cristiana replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      2

      Celiac support is hard to find

    3. - cristiana replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Newly diagnosed mam to coeliac 11 year old

    4. - tiffanygosci replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      2

      Celiac support is hard to find

    5. - trents replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,972
    • Most Online (within 30 mins)
      7,748

    NinaElaine
    Newest Member
    NinaElaine
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      So I have the Benfo, Thiamax, and Neuromag along with my Super B Complex. When I read the labels it says take 3/take 4 times a day but one pill a day is ok correct since its 4 pills at breakfast.
    • cristiana
      Hi @tiffanygosci Well done for reaching out,  fantastic you have found this forum. It sounds like you are managing the diet well, it can be overwhelming at first, but it will get easier.     I wonder if you have seen the short film 'Glutened'? - someone shared it on this forum a few months ago and it reminded me of how isolating it can be, particularly at first, when you don't know anyone with celiac disease.  *see link for film below. I realise now how blessed I was that when I was diagnosed two friends were also diagnosed around the same time, as we shared a lot of tips and recipes at the start.   Since then the number of people I know diagnosed with coeliac disease has grown and grown, there seems to be a much greater awareness of it among healthcare professionals and the public, at least this side of the Atlantic (I'm British).  I think in time you may find this, too. That said, those two coeliac buddies were 'straightforward' cases who seemed to recover very quickly when on a gluten-free diet - I struggled for some time.  So I found that I spent much more time discussing things with this online coeliac family. If you have any more questions, we're here for you.  I hope your event on 15th goes well.  Sounds like a good start!  I like you am not keen on Facebook, but perhaps setting up an account short-term might help? * https://vimeo.com/486284734 Cristiana     
    • cristiana
      You are very welcome @Dizzyma. Gastroenterologists are now following this rule in the UK more and more with children, so I am not surprised your daughter is not having an endoscopy.   Switching to a gluten free diet should begin to help, but also, even if you have to have testing done privately, it would be very helpful for you to find out if your daughter has vitamin and mineral deficiencies, which is highly likely,    In the UK tests are generally offered on the NHS for B12 and ferritin, and sometimes vitamin D.  Shortages in these can really cause any anxiety or depression or ramp it up. If you do end up supplementing, make sure your GP is aware as levels do need to be monitored, for example,  too much ferritin can cause huge health issues. Re: anxiety, definitely speak to a GP or another health care professional about this if it is an issue. Hopefully the Coeliac Society of Ireland will also be able to help. Cristiana  
    • tiffanygosci
      EDIT: I did find a monthly Zoom meeting for Celiacs through the Celiac Disease Foundation, so I'll be able to talk with some other people on January 15. And I also found a Celiac Living podcast on Spotify made by a celiac. I feel a little bit better now and I am still hoping I will find some more personal connections in my area.
    • trents
      Welcome to the celiac.com community, @mamaof7! It means for the one celiac disease antibody test that was ordered, she tested negative. However, other tests should have been ordered, especially for someone so young who would have an immature immune system where there would be a high probability of being IGA deficient.  The one test that was ordered was an IGA-based antibody test. It is not the only IGA antibody test for celiac disease that can be run. The most common one ordered by physicians is the TTG-IGA. Whenever IGA antibody tests are ordered, a "total IGA" test should be included to check for IGA deficiency. In the case of IGA deficiency, all other IGA tests results will be inaccurate. There is another category of celiac disease antibody tests that can be used in the case of IGA deficiency. They are known as IGG tests. I will attach an article that gives an overview of celiac disease antibody tests. All this to say, I would not trust the results of the testing you have had done and I would not rule out your daughter having celiac disease. I would seek further testing at some point but it would require your daughter to have been eating normal amounts of gluten for weeks/months in order for the testing to be valid. It is also possible she does not have celiac disease (aka, "gluten intolerance") but that she has NCGS (Non Celiac Gluten Sensitivity, or just "gluten sensitivity" for short) which is more common. The difference is that celiac disease is an autoimmune disorder that damages the lining of the small bowel whereas NCGS does not autoimmune in nature and does not damage the lining of the small bowel, though the two conditions share many of the same symptoms. We have testing to diagnose celiac disease but there are no tests for NCGS. To arrive at a diagnosis of NCGS, celiac disease must first be ruled out. A gluten free diet is the solution to both maladies.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.