Got Enterolab Results

[mama2two]

my daughter was having problems, mostly GI, celiac panel was inconclusive, did better on gluten free diet, so we are gluten free, for 8 months or so, and she was tested with enterolab and they recommended she be gluten free for life. She does have a gene predisposing her to celiac disease and one predisposing her to gluten sensitivity. Now we have tested my husband who has horrible GI problems that is better when he can manage to stay gluten free and I really thought he had celiac disease, well he is gluten intolerant and was recommended he and my son be gluten free, but neither of them have the genes that predispose you to celiac disease, so does that mean that my daughter had to get that celiac gene from me? I never really suspected that I was the one with celiac genes, but I guess no one ever really knows until they are tested. Has anyone tested with enterolab and gotten results saying that they tolerate gluten? Just wondering. also, it also showed that they all have positive anti-casein antibodies. I guess I am also wondering about the validity of enterolabs testing does anyone have any positive feedback, like dr's accepting it, or any negative? I mentioned it to my pedi once and she asked was it FDA approved and I emailed them with this question and they replied that the test they do is FDA certified or something like that. My pedi has said with my daughter's positive dietary response she figured she needed to be on the diet. Sorry for the lengthy posting, I guess the reality of all of us needing to be gluten free and the possiblity of my having celiac disease too, is just overwhelming me at the moment and I am questioning everything. Any input on any of my 20 questions would be appreciated. thanks!

[fedora]

Hi, I have been investigated this thouroughly. I have a wheat allergy. So don't know if the blood work would work for me since I consume lower amounts of gluten normally. I googled enterolab and searched on here. Yes, people have come up gluten ok on the tests. Not many, but most people looking have a large reason to suspect they have it to begin with. I read yesterday about a lady getting her kids tested cause they were related to someone with it. Her son came up ok for gluten. Good for him!!!

I think I will get the tests. Currently eating gluten free, but only for a few weeks. Then depending on the results I will get my kids checked. I NEVER want them to go thru what I have gone thru since I was 10. Also, if your daughter has 2 genes and your hubby had one of them, she would Have to get the other one from you. Gluten intolerance rears it's ugly head in many ways. Good luck

[ravenwoodglass]

One thing that is important to keep in mind with the gene testing is that gene knowledge is in it's infancy. At this point there are only two genes recognized in the US as celiac genes but there are some of us who have developed full blown celaic with the 'intolerant' genes. In my instance the main difference between being celiac and being gluten intolerant was the areas of the body that the antibodies chose to effect the worst. For me the damage to my neurological system and joints was present for over 25 years before GI problems were more than an very off and on thing. Folks with gluten intolerant genes need the diet just as much as true celiac defined genes. In addition genes that are not celiac genes in the US may be found to be recognized as such in other countries. My gene is defined as a rheumatiod arthritis gene here but in Japan it would result in a celiac diagnosis. There is still a lot to learn about genetics.

[surrender]

Has anyone tested with enterolab and gotten results saying that they tolerate gluten? Just wondering. also, it also showed that they all have positive anti-casein antibodies. I guess I am also wondering about the validity of enterolabs testing does anyone have any positive feedback, like dr's accepting it, or any negative?

There are five in our family and we tested my husband and son first as they were most suspect of the disease. Because they both came back positive for both DQ2 genes, we all got tested. Lo and behold, I was surprised that I have a main gene and sub-gene and so does my son. We both tested positive. My daughter, the youngest, tested for both DQ2 genes but came back negative...so far. I just ordered her yearly test, so we'll see if that's still the case.

As far as the drs, our allergy doc had never heard of Enterolab so we did some educating. Our pediatrician and GI looked at the results I emailed him from E-lab, and they accept the results.