Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

Muzz

At The Risk Of Sounding Like A Slacker

Rate this topic

Recommended Posts

lol Are there degrees of Celiac disease/gluten-intolerance? What I mean is, are some ppl more intolerant and able to cheat sometimes( I sound fully comitted, don't I <_< ) I have only this weekend begun to be aware of gluten problems so please overlook if this seems goofy ;)

Share this post


Link to post
Share on other sites

This is my take, and i've only been hanging out on this forum for a few weeks and dont have a celiac dx. There are basically 3 different reasons to quit gluten (or mosty quit gluten): an allergy to wheat, celiac disease, or a gluten sensitivity that isnt celiac. the fuzziest thing is that some people who dont have celiac, still have the gene for celiac and could develop it. Some people dont have the gene, but still have trouble with gluten.

People with an actual allergy probaby shouldnt cheat at all since that sort of allergy (IgE, the kind that allergists test for) can cause death in extreme cases.

People with celiac shouldnt cheat because gluten causes damage to the cilia and that causes so many other problems. Many people on this forum who were misdiagnosed for over 10 years and were desperately ill cannot imagine cheating and are horrified at other people cheating too, becuase they have that visceral sense of how much illness can be caused by gluten

Many people with gluten or intolernces have such strong reactions to even small accidental gluten ingestion that they work strenuously to avoid it. For example, they may have instant D, spend 2 days curled up in bed with stomach cramps, get a migraine for a full day, or have 2 weeks of anxiety and depression, just from accidental ingestion. They, obviously, dont cheat.

Some people cheat. Heck, people do all sorts of things that are really bad for them. But if you have celiac or other serious symptoms, no one will recomend it.

If you have a mild non-allergic, non-celiac gluten or wheat reaction, you may want to try re-introducting gluten after a good 9 mo or so of being off of it, to see if your symptoms are gone. However, if you have celiac, thats not a good idea, because it could take months or years until you have enough damage to your cilia that you actually notice symptoms.

Share this post


Link to post
Share on other sites
Guest j_mommy

Muzz,

Don't feel that way! It's hard to "digest" and take it all in. It seems like alot at first. It's kind of overwhelming.

I'm sure there are people out there that think and feel that they can cheat occasionally. However for a celaic to heal and be healthy...100% gluten-free is the only way. If you have celiac you need to be gluten-free. I don't know much about gluten intolerance but I would think that it is the same way for that.

You almost need to go threw the grieving process for gluten...especially if you were like me and a bread junky! But as I have continued on teh diet and learned to cook, it's ALOT eassier. Now I have replacments for those things I missed and was craving or tempting me to cheat. Plus I know that I don't ever want to feel that way again.

Good Luck to you!

Jess

Share this post


Link to post
Share on other sites

TY for the info, I don't mean to come off sounding as if I'm making light of it :) This all brand-new, as in 2 days new to me, I don't have dx of celiac disease but I am so desperate to regain my health and this might be the answer. At the very least, it will make me eat better...lol Fortunatley, food is not my passion so it may not be as difficult for me, it's just going to take some getting used to being consious of what I eat .

Share this post


Link to post
Share on other sites
lol Are there degrees of Celiac disease/gluten-intolerance? What I mean is, are some ppl more intolerant and able to cheat sometimes( I sound fully comitted, don't I <_< ) I have only this weekend begun to be aware of gluten problems so please overlook if this seems goofy ;)

I asked the same question many times, but keep getting the answer that if you're celiac, you have to be 100% gluten free. I was only diagnosed through a biopsy 4 days ago, though I had a positive blood test months ago so I was fairly sure I had celiac. But unlike most people, I have almost no symptoms when I do eat gluten. The doctor only tested me as an afterthought when I was recovering from c.difficile. Its hard to accept when you're told eating gluten will make you sick, yet you feel fine when you eat it!!!

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • March 24, 2019 Until March 27, 2019
      0  
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 27, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 30, 2019 Until March 31, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
  • Member Statistics

    • Total Members
      86,830
    • Most Online
      4,125

    Newest Member
    slaphappy
    Joined
  • Forum Statistics

    • Total Topics
      112,072
    • Total Posts
      956,753
  • Who's Online (See full list)

  • Forum Discussions

    In addition to celiac & rheumatoid arthritis, I also have Reynaud's syndrome. Mine occurs mostly with my fingers. Sometimes my toes get affected if it's really cold.  The grocery store is the worst for me. I hardly ever go in the grocery store without the Reynaud's hitting my fingers. I've tried wearing winter gloves but they don't seem to make one shred of difference. I've also tried using the Hot Hands hand warmer packets in each pocket & putting my hands in my warm pocket with th
    Thank you everyone I went for a second opinion just to re do the blood work hoping I can find out a answer. Last week I had the upper stomach pain again but no celery juice since November so I’m at a loss 😭 but all of my celiac panel including the genetics were negative just that ema which the second doctor said 1:20 is on the low side not sure if that’s true 
It is not a rash, but hives and swelling.  Some doctors think it is a separate autoimmune disorder or that it piggybacks on to others.  It is more commonly associated with autoimmune thyroiditis.   My last bout lasted for six months.  They appeared (from my head to my soles of my feet) every afternoon around 4:00 pm and resolved by morning.  Oddly, they start with abdominal pain.  That is my first clue and next an itchy head.  I was on a cocktail of antihistamines and attempted a low histam
  • Blog Entries

  • ×
    ×
    • Create New...