Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Possible Intolerance?


chuckerychick

Recommended Posts

chuckerychick Newbie

I am a 22-year-old female who is considering the possibility of gluten intolerance or celiac as being one of my problems, and I was wondering if I explained my situation if anyone could advise me if my symptoms are consistent. Since I was 11, I have had digestive issues, with my most notable symptom being nausea; it feels like having the stomach flu several dozen times a year. Is it possible for nausea to be the foremost symptom of gluten intolerance? I also have had bloating, fatigue, loss of interest in life in general, and loss of hope. I also have cold hands and feet, and my skin is so dry it itches, despite my best effort to keep lotion on and such.

The past month I have been sticking to a gluten -free diet, at least as far as I know; I realize there can be hidden sources I may be missing. Within the first few days, my bloating and the uncomfortable feeling in my abdomen subsided and has stayed away. Last week, I was almost completely nausea free, but this week I am feeling ill again, as well as tired and very emotional, edgy, snippy, and feeling as though I may cry, and I am not a crier normally. I have kept my diet consistent, so I don't know of any sources that may have slipped in. Is any of this on par with anyone else's symptoms? Is it just going to take some time for this all to even out and my body to start functioning? Are these sort of "relapses" possible even if I am truly following the diet correctly? Thank you ahead of time to anyone who takes the time to read this and help me.

ChuckeryChick


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AliB Enthusiast
I am a 22-year-old female who is considering the possibility of gluten intolerance or celiac as being one of my problems, and I was wondering if I explained my situation if anyone could advise me if my symptoms are consistent. Since I was 11, I have had digestive issues, with my most notable symptom being nausea; it feels like having the stomach flu several dozen times a year. Is it possible for nausea to be the foremost symptom of gluten intolerance? I also have had bloating, fatigue, loss of interest in life in general, and loss of hope. I also have cold hands and feet, and my skin is so dry it itches, despite my best effort to keep lotion on and such.

The past month I have been sticking to a gluten -free diet, at least as far as I know; I realize there can be hidden sources I may be missing. Within the first few days, my bloating and the uncomfortable feeling in my abdomen subsided and has stayed away. Last week, I was almost completely nausea free, but this week I am feeling ill again, as well as tired and very emotional, edgy, snippy, and feeling as though I may cry, and I am not a crier normally. I have kept my diet consistent, so I don't know of any sources that may have slipped in. Is any of this on par with anyone else's symptoms? Is it just going to take some time for this all to even out and my body to start functioning? Are these sort of "relapses" possible even if I am truly following the diet correctly? Thank you ahead of time to anyone who takes the time to read this and help me.

ChuckeryChick

Hi. Your symptoms sound quite likely as a marker certainly for Gluten Intolerance, if not Celiac.

I haven't got quite as far as you as I have only been on it a weeks, but I would not be surprised for there to be odd reactions here and there. Your body is going through quite a radical change. It may also be hitting stages from time to time where it is having a clear-out of some of the toxins that have been languishing in the cells. If you have Candida, it might even be due to a die-off reaction where the change in diet has started to get the little beggars under control!

If you can't think of any way you have been 'glutened' then this may be a possibility, even a kind of 'Withdrawal'. The other possibility is that you may have inadvertently eaten or been in contact with something else other than Gluten to which you are unknowingly sensitive.

I have a slight theory as I have found that whilst I generally feel a lot better, there are one or two things that seem to have got worse, temporarily I hope. I am wondering perhaps that because my body is now starting to function more effectively it is demanding more nutrition, and deficiencies that were background whilst I was ill are now beginning to become more obvious. You may find that this you are experiencing is a temporary withdrawal phase and will pass - a bit like getting a plateau when you are dieting!

Sorry I can't give you anything concrete as a suggestion, but we are all different and have different responses. Hopefully there may be someone out there who has experienced this and may be able to shed a bit more light. I hope you manage to get past this phase.

chuckerychick Newbie

Thank you. When you mentioned that "I am wondering perhaps that because my body is now starting to function more effectively it is demanding more nutrition, and deficiencies that were background whilst I was ill are now beginning to become more obvious", it also made me think that maybe the rather strong hunger I've been experiencing can also be a part of all this.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    2. - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    3. - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    4. - Scott Adams replied to Aretaeus Cappadocia's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

    5. - Scott Adams replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,190
    • Most Online (within 30 mins)
      7,748

    Atl222
    Newest Member
    Atl222
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.