Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I'm New...my First Real Test Is Feb. 14

Beckula

Recommended Posts

Beckula Newbie
Beckula
Posted

Hello,

I am 27 years old and have been diagnosed with IBS and Fibromyalgia for about 10 years. I have never thought anything of it until July. I ended up in the ER twice due to stomach pain, high fever and whatnot. They told me I had a UTI or kidney infection, but could not confirm this. I also have internal and external hemmorhoids, gas (belching and flatulence), bloating and other stuff. I already had a colonoscopy and abdomen ultrasound. Nothing really abnormal except "probable bilaterial renal calculi." I think that is kidney stones? I did not get a referral to see the gastro specialist, but I made an appointment and they will test me for lactose intolerance, Crohn's Disease, Peptic Ulcer Disease and Celiac Disease. I am really leaning towards this Celiac Disease, even though apparently I am within normal range for the blood test.

I am just not sure what what my blood test result means though. My test results read:

"Labs: TISS. TRANSGLUTAM. (82587) Normal, Mayo results."

Any clue what is going on? I did the lactose breath test so far and I was in a lot of pain all day after drinking the liquid. I can share more symptoms if needed. I am sure no one can diagnose me, I just want to know if it's a valid thought that I may have celiac disease.

ETA: I now looked up picky eating...is that connected??? My mom said at 3 years old all the sudden I was SOOooo picky. I have been making my own meals since I was 10 and never grew out of it!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mftnchn Explorer
mftnchn
Posted

Welcome, Beckula,

There are five blood tests for celiac that are recommended on this forum, looks like you just had one. If they do more blood tests, just know that you will need to be eating substantial amounts of gluten for those to be positive. That goes for the biopsy as well, if that is planned. Those are the two gold standard ways for diagnosing celiac. Beyond a celiac diagnosis, there are many here who are gluten sensitive and feel much better going gluten free. There seems to be more than one cause for gluten sensitivity.

Looking at your symptoms there could be more than one possibility. If you don't get a clear diagnosis and improvement in your symptoms, I hope you'll post more here. Sometimes it can be quite a journey to wellness. This forum is a great resource.

With IBS and fibromyalgia at such a young age of onset, plus your "picky" eating at a young age I would wonder about food sensitivities or allergies. Also it might be good to read the thread on this forum about lyme disease. There is a long list of symptoms posted there, and joint/muscle pain is so typical of lyme. It also attacks the GI tract in some people.

I hope you find and answer and start to feel much better soon.

Beckula Newbie
Beckula
Posted
  • Author
Welcome, Beckula,

There are five blood tests for celiac that are recommended on this forum, looks like you just had one. If they do more blood tests, just know that you will need to be eating substantial amounts of gluten for those to be positive. That goes for the biopsy as well, if that is planned. Those are the two gold standard ways for diagnosing celiac. Beyond a celiac diagnosis, there are many here who are gluten sensitive and feel much better going gluten free. There seems to be more than one cause for gluten sensitivity.

Looking at your symptoms there could be more than one possibility. If you don't get a clear diagnosis and improvement in your symptoms, I hope you'll post more here. Sometimes it can be quite a journey to wellness. This forum is a great resource.

With IBS and fibromyalgia at such a young age of onset, plus your "picky" eating at a young age I would wonder about food sensitivities or allergies. Also it might be good to read the thread on this forum about lyme disease. There is a long list of symptoms posted there, and joint/muscle pain is so typical of lyme. It also attacks the GI tract in some people.

I hope you find and answer and start to feel much better soon.

Thanks. After my upper endoscopy (that is the test I am having done, and if that is normal, than I am getting some other test), I am planning to try going gluten-free, as I think my body craves it and I need to try and solve it. I have been tested many times for thyroid and lymes among other things, absolutely everything comes out normal.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Francis M
      - Francis M replied to Francis M's topic in Gluten-Free Restaurants
      2

      The Happy Tart review

      When my wife attempted to open the online card in the store with a cashier, it would not work. We then showed the owner the link to the card, the online receipt that I got upon purchase, and even my bank statement confirming the purchase. That did not satisfy her, since she said she needed the link to open to reveal the gift ID num. They even admitted they...
    2. trents
      - trents replied to Francis M's topic in Gluten-Free Restaurants
      2

      The Happy Tart review

      Was the card itself lost or just the record or both?
    3. Francis M
      - Francis M posted a topic in Gluten-Free Restaurants
      2

      The Happy Tart review

      We were flabergasted that the owner would not acknowledge a $50 e-gift card I purchased for my celiac wife. My wife tried to open it in the store and was informed there had been a system change and they could not find the record. No worries, she was told, just talk to management. Six months later, and numerous absurd back and forths, and the owner literally...
    4. trents
      - trents replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Ibuprofen

      Yes, some people do get withdrawal from gluten but gluten withdrawal doesn't usually cause gut pain. Maybe more like general body aches and discomfort. We have articles on gluten withdrawal on this forum. You might do a search for them. Applesauce is very acidic and some brands have added vitamin C (ascorbic acid) which makes them more acidic. This can...
    5. Colleen H
      - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Ibuprofen

      Do you or anyone know alot about ibuprofen I wasn't sure if I was eating too much apple sauce. Something is making my pain so much worse I'm referring to the intense pins and needles in my feet and lower legs. Jaw actually has tardive dystonia and muscle spasms throughout my back Almost like an opposite effect that a pain reliever...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,850
    • Most Online (within 30 mins)
      7,748
    TonyP27
    Newest Member
    TonyP27
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Francis M
      The Happy Tart review

      By Francis M · Posted

      When my wife attempted to open the online card in the store with a cashier, it would not work. We then showed the owner the link to the card, the online receipt that I got upon purchase, and even my bank statement confirming the purchase. That did not satisfy her, since she said she needed the link to open to reveal the gift ID num. They even admitted they had a systems problem around that time.
    • trents
      The Happy Tart review

      By trents · Posted

      Was the card itself lost or just the record or both?
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      We were flabergasted that the owner would not acknowledge a $50 e-gift card I purchased for my celiac wife. My wife tried to open it in the store and was informed there had been a system change and they could not find the record. No worries, she was told, just talk to management. Six months later, and numerous absurd back and forths, and the owner literally informs me there have been "bad actors", so she can't make good on this lost gift card. In other words, she accused me of lying and committing fraud... over $50! Please be careful with your orders and purchases here.
    • trents
      Ibuprofen

      By trents · Posted

      Yes, some people do get withdrawal from gluten but gluten withdrawal doesn't usually cause gut pain. Maybe more like general body aches and discomfort. We have articles on gluten withdrawal on this forum. You might do a search for them. Applesauce is very acidic and some brands have added vitamin C (ascorbic acid) which makes them more acidic. This can damage the stomach lining if you eat it too often. Especially if your stomach lining is already compromised. Ibuprofen inhibits the body's ability to rebuild the stomach's protective mucosal lining. That's why it can cause peptic ulcers. As strange as it may sound, low level irritation/inflammation stimulates the body to rebuild the stomach lining. There are two steps in this rebuilding process known as COX 1 and COX 2. Ibuprofen represses both COX 1 and COX 2. Celecoxcib, a prescription anti inflammatory, inhibits only COX 2, making it less likely to cause damage to the gut lining.
    • Colleen H
      Ibuprofen

      By Colleen H · Posted

      Do you or anyone know alot about ibuprofen  I wasn't sure if I was eating too much apple sauce.   Something is making my pain so much worse  I'm referring to the intense pins and needles in my feet and lower legs.  Jaw actually has tardive dystonia and muscle spasms throughout my back Almost like an opposite effect that a pain reliever would do. I'm fairly new to this. Whatever is going on seems to be worsening  Do people get a withdrawal effect from gluten?  It's extremely painful 😖  I'll post that question or research on the site  Thank you everyone for responding 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.