I'm New...my First Real Test Is Feb. 14

[Beckula]

Hello,

I am 27 years old and have been diagnosed with IBS and Fibromyalgia for about 10 years. I have never thought anything of it until July. I ended up in the ER twice due to stomach pain, high fever and whatnot. They told me I had a UTI or kidney infection, but could not confirm this. I also have internal and external hemmorhoids, gas (belching and flatulence), bloating and other stuff. I already had a colonoscopy and abdomen ultrasound. Nothing really abnormal except "probable bilaterial renal calculi." I think that is kidney stones? I did not get a referral to see the gastro specialist, but I made an appointment and they will test me for lactose intolerance, Crohn's Disease, Peptic Ulcer Disease and Celiac Disease. I am really leaning towards this Celiac Disease, even though apparently I am within normal range for the blood test.

I am just not sure what what my blood test result means though. My test results read:

"Labs: TISS. TRANSGLUTAM. (82587) Normal, Mayo results."

Any clue what is going on? I did the lactose breath test so far and I was in a lot of pain all day after drinking the liquid. I can share more symptoms if needed. I am sure no one can diagnose me, I just want to know if it's a valid thought that I may have celiac disease.

ETA: I now looked up picky eating...is that connected??? My mom said at 3 years old all the sudden I was SOOooo picky. I have been making my own meals since I was 10 and never grew out of it!

[mftnchn]

Welcome, Beckula,

There are five blood tests for celiac that are recommended on this forum, looks like you just had one. If they do more blood tests, just know that you will need to be eating substantial amounts of gluten for those to be positive. That goes for the biopsy as well, if that is planned. Those are the two gold standard ways for diagnosing celiac. Beyond a celiac diagnosis, there are many here who are gluten sensitive and feel much better going gluten free. There seems to be more than one cause for gluten sensitivity.

Looking at your symptoms there could be more than one possibility. If you don't get a clear diagnosis and improvement in your symptoms, I hope you'll post more here. Sometimes it can be quite a journey to wellness. This forum is a great resource.

With IBS and fibromyalgia at such a young age of onset, plus your "picky" eating at a young age I would wonder about food sensitivities or allergies. Also it might be good to read the thread on this forum about lyme disease. There is a long list of symptoms posted there, and joint/muscle pain is so typical of lyme. It also attacks the GI tract in some people.

I hope you find and answer and start to feel much better soon.

[Beckula]

Welcome, Beckula,

There are five blood tests for celiac that are recommended on this forum, looks like you just had one. If they do more blood tests, just know that you will need to be eating substantial amounts of gluten for those to be positive. That goes for the biopsy as well, if that is planned. Those are the two gold standard ways for diagnosing celiac. Beyond a celiac diagnosis, there are many here who are gluten sensitive and feel much better going gluten free. There seems to be more than one cause for gluten sensitivity.

Looking at your symptoms there could be more than one possibility. If you don't get a clear diagnosis and improvement in your symptoms, I hope you'll post more here. Sometimes it can be quite a journey to wellness. This forum is a great resource.

With IBS and fibromyalgia at such a young age of onset, plus your "picky" eating at a young age I would wonder about food sensitivities or allergies. Also it might be good to read the thread on this forum about lyme disease. There is a long list of symptoms posted there, and joint/muscle pain is so typical of lyme. It also attacks the GI tract in some people.

I hope you find and answer and start to feel much better soon.

Thanks. After my upper endoscopy (that is the test I am having done, and if that is normal, than I am getting some other test), I am planning to try going gluten-free, as I think my body craves it and I need to try and solve it. I have been tested many times for thyroid and lymes among other things, absolutely everything comes out normal.