Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):
    GliadinX



    Celiac.com Sponsor (A1-M):
    GliadinX


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Exactly Do The Symptoms Mean?


roddi

Recommended Posts

roddi Rookie

Hey everyone. I got some tests done, blood work, doc says, everything normal.

I went completely gluten-free, been feeling much much better..

here are some important questions i have been unable to answer, your help would be appreciated

1. many people say diarrhea is common for those with celiac disease. Now, being lactose intolerant, i know if i ingest lactose, i often head for the washroom within a short period of time. With celiac disease, is it the same, or is it, that one generally can go more often etc.. and have ibs symptoms, i.e. incomplete movements etc

2. pasta would always make me sick, ..running to the washroom eventually, yet, sometimes, most breads dont.. i can eat 10 buns in a row and be fine..

why is this? this confuses the hell out of me..

going gluten-free, i have less morning sickness.. i would always feel the urge to go to the washroom right in the morning.. is this common

3. healing process. one goes gluten-free.. sure, ive noticed improvements.. is there a common standard for the time it takes to see improvement, is 2 weeks to early..is 2 months too long etc. i understand it varies.. im just curious.

Has anyone seen progressive improvement over months, how so, i'd like to know

they thought it was ibs.. then had an ulcer.. im 29, had these probs since.. 21 or so.. more prevalent every year.

thanks for your time, your posts have really helped me.

rob

Toronto, ON

www.v2r.ca/me


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Daura Damm
Holidaily Brewing Co.



Celiac.com Sponsor (A8-M):
Holidaily Brewing Co.


darlindeb25 Collaborator
;) hi rob--so many questions and you will get just as many answers here----diarrhea is different for many--some had it all the time, some had it sometimes and some never did--as for going gluten-free and the speed at which we heal--that is different for everybody too--many feel a change right away, they feel less bubbly inside, a calm so to speak--depending on the damage already done can determine how long it takes to feel better--its not a perfect science--i can say, that the longer you are gluten free the faster you will know if you ate something with gluten--i hope i answered some of your questions :D deb and welcome to the forum
celiac3270 Collaborator

Remember that whether or not you have symptoms, it will still affect your body just as much to eat the rolls. Symptoms aren't always dependable or predictable--before being diagnosed, I would eat a huge bagel every morning and be fine, but if I ate a slice of pizza, I'd get really sick. The bagel still damaged my intestines just as much, but for some reason, it didn't provide external symptoms.

Two weeks is usually too soon to heal entirely, but some have their symptoms vanish after two weeks on the diet. I think most common is the 2-5 month range for symptoms to vanish if one had symptoms in the first place. It is not terribly uncommon, though, to follow a strict gluten-free diet and still have symptoms many months in--some take over a year to feel totally healed. I'm still feeling sick 10 months in....and I am ultra-paranoid about contamination and everything, as well.

Anyway, welcome to the boards.

-celiac3270

MySuicidalTurtle Enthusiast

1. Everyone is really different. I know my mother rushes to the bathroom after eating gluten but still has IBS symptoms and all where as my brother and I (all of us have Celiacs) don't have the IBS symptoms and such.

2. This is the same with me. Before being diagnosed I would eat chicken breasts on buns. My fav. where whole wheat ones and I'd get sick after eating them but then when I would use regular buns I wouldn't be ill at all or maybe have symptoms the next morning. I could eat regular white bread without being sick but then Saltines would go right though me. Our bodies react to different things in different times.

I was ALWAYS sick every morning. It was just how things were. It has takeb me a long time to get used to not being sick in the mornings. In High School (when I was most sick) I woud feel awful in first hour and would leave home early (so I wouldn't be caught in traffic) just so when I got sick I was near a restroom. If I had places to go I would be sure to wake up with plenty of time since I knew I'd be sick as soon as I woke.

3. I stopped getting sick right away. However, I was at the point where anything I ate made me sick. I had to go on a "Don't eat anything that makes you sick" diet and then could slowly introduce things like lettuce and tomato then cheese and so on and on and on. Now I can eat everything if I wanted (but I don't eat animals and try not using milk products). This way of doing it helped me a lot. I have been on the gluten-free died for over a year and a half.

Nice to meet you, Rob.

Kristina

roddi Rookie

Guys, wow. your posts/replies really were great, and really validated some of my thoughts. My blood work didn't show signs of celiac.. but i have been feeling better much better being gluten-free..

for people with celiac disease.. can other things still upset u.. i.e. i had mcdonalds fries last nite and have been so ill for 24 hours.. and i look on their site.. and well, nope.. no gluten in them! odd !!!

anyhow. i look forward to reading about your experiences and things. thanks for sharing.. it was really great!

rob

www.v2r.ca/me

akcandle Newbie

McDonald's Fry's...I can't eat them either. I am going out on a limb here, as I am new to this. However, all the research I have done points to the fact that it's difficult for gluten damaged intestines to digest fat, and the fry's are deep fried in Oil which would kind of "slide right through you".

I also can't eat their hamburgers. I react violently to them. I don't know if it's just the bun or a combo of the bun and whatever they put in their burger. I assume there is a ton of "filler" in them.

Just my newbie two cents.

Carla

Mosaics Collaborator

My children and I were diagnosed about 18 mos. ago and have been gluten-free since then. I've found that I learn something new about celiac disease almost every time I read on this board. One of the things I learned from reading this thread was that the morning sickness isn't unique to me and is just another strange symtom of celiac disease.

In high school and beyond, I used to frequently feel sick in the morning. I would have to get up and start to get ready for school/work, then have to lay down for a while, then get up for a little while longer, then lay down, etc. My 21 year old daughter has to do the same thing. I usually didn't eat breakfast because of it. But if I did...it would be toast. How ironic is that?

To answer some of the questions in the OP, my oldest bro. has celiac disease, but didn't find out until about the time I did. He was having terrible digestive problems and acid reflux so badly that he had a nodule on his vocal chords. Since we here on the celiac disease board tend to speak frankly about sensitive or personal health issues, I'll let you all know that he had an internal hemorhoid (sp?). It was causing so much pain that he could hardly eat anything for fear of the BM. Anyway, when he went on the gluten-free diet, he said he was 99% better within two days. And his acid reflux is gone.

I personally did not have any terribly bothersome symptoms, but I did have acid reflux enough so that I had to take Zantac frequently at bedtime. When I went gluten-free, I never had to take another Zantac and over the next few months, my acid reflux went away completely.

Also, you may find that things that you thought were normal or that you may not even have taken notice of will slowly get better or go away.

My brother told me this. When he went gluten-free, it was like a person who didn't know he was loosing his sight put on glasses and suddenly could see clearly. He thought that all his problems were just age related (he's 48 now) and something that he just had to endure.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
GliadinX
Tierra Farm



Celiac.com Sponsor (A8-M):
Little Northern Bakehouse


celiac3270 Collaborator
McDonald's Fry's...I can't eat them either. I am going out on a limb here, as I am new to this. However, all the research I have done points to the fact that it's difficult for gluten damaged intestines to digest fat, and the fry's are deep fried in Oil which would kind of "slide right through you".

I also can't eat their hamburgers. I react violently to them. I don't know if it's just the bun or a combo of the bun and whatever they put in their burger. I assume there is a ton of "filler" in them.

McDonalds fries are gluten-free, but you need to make sure that they're cooked in a designated oil...or only with hashbrowns. I don't know if every fastfood joint run by McDonalds runs the same way and I doubt it, so that's something to be careful of.

Fat is difficult on the system...my doctor suggested that I limit fats in my diet, as they are hard to digest.....just wanted to verify that :). For those with persistent diarrhea, try limiting or eliminating sugars, which can affect bowels. Acidic foods can be tough on the system as well, in addition to the particularly-hard-to-break-down-and-digest sugars of the watermelon and grape. Finally, the skin of an apple is something to avoid.

To my understanding, McDonalds burgers (w/o the bun) are gluten-free. When you say "I don't know if it's just the bun or a combo of the bun and whatever they put in their burger..." are you saying that you eat the bun? If so, there's your problem! :lol: That's pure gluten!! If you remove the bun or you think the burger touches a bun behind the counter before you get it, then that's still the problem--cross-contamination from the crumbs. The burger itself is supposedly gluten-free, so the problem has to be in the staff's handling or preparation of your food. If you think that there's a lot of filler in them or something, you shouldn't eat it, though.

I usually didn't eat breakfast because of it. But if I did...it would be toast. How ironic is that?

Lol...I know...if I was sick (from gluten, I now know), I'd eat saltines, toast, and cheerios! :lol:

-celiac3270

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):
    HomeFree Treats
    Holidaily Brewing Co.




    Celiac.com Sponsors (A17-M):

    Food for Life



  • Recent Activity

    1. - lmemsm posted a topic in Gluten-Free Recipes & Cooking Tips
      0

      bread

    2. - Scott Adams replied to MMeade's topic in Coping with Celiac Disease
      6

      Gluten Allergy

    3. - Rejoicephd replied to Rejoicephd's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      33

      Struggling to get into a good pattern

    4. - FayeBr posted a topic in Coping with Celiac Disease
      0

      Major Glutening

    5. - knitty kitty replied to MMeade's topic in Coping with Celiac Disease
      6

      Gluten Allergy


  • Celiac.com Sponsor (A19):
    Little Northern Bakehouse



  • Member Statistics

    • Total Members
      131,424
    • Most Online (within 30 mins)
      7,748

    DesireeDawn
    Newest Member
    DesireeDawn
    Joined

  • Celiac.com Sponsor (A20):
    Lakefront Brewery


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):
    GliadinX




  • Celiac.com Sponsor (A21):
    Lakefront Brewery



  • Upcoming Events

  • Posts

    • lmemsm
      Wanted to tell someone, I finally made an edible gluten free bread.  It took me several hours to make and it didn't taste like what I was trying to make, but it did taste like a bread.  Was looking all over for bread machine recipes and I ran across this one on the Internet:  https://www.snapcalorie.com/recipes/gluten_free_oat_challah_bread_machine.html  Used it as a starting point, but I swapped out the tapioca with arrowroot and the xanthan gum with guar gum and glucomannan.  I also made it using the gluten-free pizza mode on my Panasonic bread machine and then took the batter out and put it in a bread mold to give it some shape.  I let it rise another 20 minutes and baked it at 350 degrees Fahrenheit for 20 minutes in the oven.
    • Scott Adams
      The concept of "over-methylation" as a common clinical condition is not supported by mainstream medicine. While methylation is a crucial biochemical process, the idea that people frequently become "over-methylated" and that this is linked to B6 deficiency is a speculative theory, not an established fact. 
    • Rejoicephd
      Oh cool! We have similar stories! I’m a microbiologist with an interest in metabolism. Been getting more and more fascinated by nutrition in recent years.    I will check out your blog . Thanks !
    • FayeBr
      Hi to all I am 4 years Celiac now. I have Ataxia too from gluten and it’s been a major learning curve and adjustment. But my query is about a recent set back. I was Glutened and started an OTC medicine to cope with a symptom. It stated it was free from gluten specifically. But in the following weeks I was getting more ill and couldn’t fathom what was wrong. I had gastritis which is awful and lots of other neuro and body symptoms that I get when Glutened. I always find it difficult to think straight too because of the brain fog and fatigue so this wasn’t helping me think logically. And then the lightbulb moment of the medication. I emailed the company in my gluten haze (by this time the symptoms were awful and reminded me of my pre gluten free days) and they responded saying although it states ‘this product does not contain gluten’ they could not guarantee it didn’t have gluten in it from manufacturing processes etc etc. I stopped it just over 2 weeks ago. I had been taking it for 6 weeks. So in the last few weeks I have started to improve from being bedridden with fatigue and aches/pains,  gastritis, abdominal pain and GI problems, brain fog, mental health symptoms, pins and needles, migraines and much more to just about functioning. I feel I have done so much damage to my body and it’s such a set back. But my question is has anyone else had a major episode like this and how long did it take to recover? I still have symptoms now and it’s been over 2 weeks. I’m afraid I have made my Ataxia worse and the panic attacks and anxiety are through the roof. I’d forgotten what that was like. But any thoughts or experiences would help. Thank you. 
    • knitty kitty
      @MMeade, People who get over-methylated are frequently low in Pyridoxine Vitamin B6.  Pyridoxine helps regulate the methylation process so it doesn't run amok.  P-5-P is the active form. All eight essential B vitamins work in concert together.  Just taking one or two can throw the rest out of balance.  If you have malabsorption as occurs in Celiac, then all the B vitamins will be poorly absorbed.  Taking a B Complex in addition to extra thiamine (Benfotiamine) is safe.  The B vitamins and Vitamin C are water soluble.  Any excess is urinated out.  I took a B 50 Complex twice a day to increase absorption.   Try taking Magnesium Threonate (Neuro-Mag by Life Extension).  Magnesium Threonate can get into the brain easily.  The brain needs magnesium, too, but other forms don't cross the blood-brain barrier as well.   The first time I took Magnesium Threonate, it felt like my brain relaxed.  I highly recommend it.   How's your Vitamin D level?  
×
×
  • Create New...