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Does Anyone Else Have These Symptoms

newceliac

By newceliac
in Coping with Celiac Disease

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newceliac Enthusiast
newceliac
Posted

I think I may have had an accidental glutening or I am casein intolerant.

I have been gluten free for about 4-5 months. I believe that I have other intolerances that I need to start trying to identify and working on.

In the past month, I have had this happen a couple of times and it will last several days. I get cramping, gas and pain on the mid left side just under the ribcage that will radiate under the ribs around to my back. It is even uncomfortable to lie on my left side. At the same time, I will have have very achy pains in my hamstring and calf on my left leg. The pain in my leg will keep me awake at night.

Has anyone else had this particular pain(s)? Could it be gluten? Since I am trying very hard to make sure I follow a strict gluten free diet, I am wondering if it is not casein intolerance. I have been trying to be casein free but it is so difficult. I had a brownie dessert with ice cream (from the gluten free menu at Outback) for Valentines. I also ate ice cream last night.

I believe I am going to order the casein intolerance test from Enterolab.

Any insight on this pain would be greatly appreciated.

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oceangirl Collaborator
oceangirl
Posted

Hi, welcome,

The pain you describe sounds very similar to some of the pain I had before being gluten-free. I could not possibly sleep on my left side at night it was so excruciating. I didn't have the pain in my hamstring (had horrible pain in my left hip though). I know OUTBACK is supposed to have a gluten-free menu but, frankly, I haven't eaten out in 2 and a half years because I only trust myself and Michael to make food for me. Cross-contamination if you are highly sensitive or reactive seems tricky to avoid. Just a thought.

You might try cutting out all dairy while you heal. I had no dairy for two years and find now I'm fine especially with a hard cheese like cheddar. (no lactose anyway)

Hopefully others will post with their thoughts.

Good luck and feel better!

lisa

mrsry Rookie
mrsry
Posted

I'm not as knowledgable as I should be on lactose/casein, so I can't help you rule that out. But the pain that radiates to the back is definitely something I've had before. It really baffled my doctors, who tried treating me for different things but it just wouldn't go away. Finally, after I started being more conscious of gluten, I noticed that it happened during a particularly miserable glutening. Now that I am more careful I am free from that kind of pain, for the first time in years.

Guest Lore
Guest Lore
Posted

I have that sharp pain in my hamstring too. It seems to "pop" whenever I try to bend over and touch my toes. Up until a month or so ago, after being gluten-free for 6 mos, I was very athletic. Now I have pain touching my toes because of the sharp pains in my hamstrings. I have read other places that muscle aches are attributed to Celiac, and I stretch every day and drink a lot of water, but the pain has been there for over a month now. I think it has to be either accidental gluten intake, or other allergies to food as you mentioned. Something I've come to accept is that Celiac Disease is a constant battle and that it takes time and patience to rule everything out and to get it under control.

Guest Lore
Guest Lore
Posted
I think I may have had an accidental glutening or I am casein intolerant.

I have been gluten free for about 4-5 months. I believe that I have other intolerances that I need to start trying to identify and working on.

In the past month, I have had this happen a couple of times and it will last several days. I get cramping, gas and pain on the mid left side just under the ribcage that will radiate under the ribs around to my back. It is even uncomfortable to lie on my left side. At the same time, I will have have very achy pains in my hamstring and calf on my left leg. The pain in my leg will keep me awake at night.

Has anyone else had this particular pain(s)? Could it be gluten? Since I am trying very hard to make sure I follow a strict gluten free diet, I am wondering if it is not casein intolerance. I have been trying to be casein free but it is so difficult. I had a brownie dessert with ice cream (from the gluten free menu at Outback) for Valentines. I also ate ice cream last night.

I believe I am going to order the casein intolerance test from Enterolab.

Any insight on this pain would be greatly appreciated.

By the way, I just posted a reply, but I just re-read what you originally posted and my hamstring pain is ALSO in my left leg- weird!

HAK1031 Enthusiast
HAK1031
Posted

I get that rib pain, exactly as you described! I think it's where the beginning of the intestine is.

ive Rookie
ive
Posted

It might be your pancreas as well. Also abdominal pain that radiates to back and lasts for several days can be a symptom of pancreatitis attack.

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RiceGuy Collaborator
RiceGuy
Posted

I found magnesium worked wonders an all my body pains. That's about all I can add to that, but dairy intolerance is common, and it is often suggested to eliminate dairy at least for a while. If you get a craving for ice cream, there are companies which make ice creams from coconut oil and other wholesome things. You can also make your own, but that's probably easier to do without dairy as a sorbet.

Nancym Enthusiast
Nancym
Posted

Dairy gives me awful muscle spasms. Good luck figuring this out! I also want to suggest you might have a kidney infection. See your doctor!

Welda Johnson Newbie
Welda Johnson
Posted

Hi,

I am 63 and have had symptoms of Celiac since age 8. It took a long time to realize that all grains, all milk & dairy, egg whites, yeast, casein and whey were detrimental to my health. Recently I stopped all meats as well, since I would wheeze with Asthma after eating them (this is always how I know I've gotten glutened, because within 15 minutes I will have an Asthma attack). I read labels religiously, eat mostly natural foods, avoid eating in restaurants (it is easy to learn to take along your own food and supplement it with their offerings that you have proven to be safe over time). Hope this helps. Welda

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    • Jsingh
      Son's legs shaking

      By Jsingh · Posted

      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
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      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
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