Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Itching Not From Dh Or Psoriasis


mushroom

Recommended Posts

mushroom Proficient

Please help; this itching is getting more than I can bear.

I do have psoriasis (4 years), so know what that does. I do not have, as far as I can ascertain, from the descriptions and pictures, DH. I have no blisters or lesions, nothing that looks like chickenpox which the pictures show. This is a blanket red skin rash which is inflamed and seriously itches. It is worse in bed at night especially when I get overheated (it is summer here), almost like a heat rash).But I also itch in areas that have no redness, and I also have hives develop and disappear at random on various parts of my torso. To the best of my knowledge I have eliminated all gluten from my house and life--pantry, bathroom, cosmetics and cleaners. I have only eaten gluten out once in the last month and there was a little CC but not much. My major gluten symptoms have gone away, only to be replaced by this intolerable itching which is keeping me awake more than the gluten ever used to.

I have been advised by my ND to eat fish (I don't like farmed salmon so have been eating lots of canned tuna and sardines (almost every day), and am wondering if I am getting a metal toxicity reaction -- mostly New Zealand tuna and sardines. Any advice or help would be greatly appreciated. In the meantime these items are off the menu!!

Neroli


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

Have you looked into the possibility of a candida infection? I'd try caprylic acid capsules, and at the same time avoid all sugars, yeasts, vinegars, and fruit.

What was the reason that your doctor suggested fish? Is it was for the omega-3s, you could have flax seeds, walnuts, and chia seeds. This might actually supply more O-3s, at the same time as avoiding those heavy metals.

HTH

mushroom Proficient
Have you looked into the possibility of a candida infection? I'd try caprylic acid capsules, and at the same time avoid all sugars, yeasts, vinegars, and fruit.

What was the reason that your doctor suggested fish? Is it was for the omega-3s, you could have flax seeds, walnuts, and chia seeds. This might actually supply more O-3s, at the same time as avoiding those heavy metals.

HTH

Thank you, RiceGuy; I had not considered candida. Will have to look into that.

I was used to getting my O-3's from flaxseed but the ND felt I would be better off with the fish. I find we all have our preferences/prejudices when it comes to O-3 sources. I did not know about chia seeds (like you grow on the pottery ornaments??) Sure hope I don't sprout like that, I've got enough skin problems already!!

  • 1 month later...
mushroom Proficient

Hi all:

Just a quick update on the red itchy rash that was driving me nuts. I decided to do an elimination diet of sorts--soy, dairy (the rest like cheese and yogurt) and corn. I was really careful about the soy part because I had been diagnosed as sensitive to it years before with the skin test, but had never actually been bothered by it (or eaten much of it). I would avoid it if there were a choice but a little bit in a salad dressing, say, I would not worry too much about.

So when I went gluten free I could not give up my cookies so purchased gluten free cookies. Ate some chocolate, occasionally bought gluten free venison sausages, etc. Well, when I really started reading the labels on these products I had substituted in I discovered that when they took out the gluten they added soy!! Lots of it. In everything! So it turns out that the rash and itching were caused by the soy. When the soy went away so did the rash and itching. Now I can't even have chocolate anymore except the Lindt extra dark. I am doing that hard. :angry: Also had to give up even my "fake" ice cream. Seems like they put soya lecithin in almost everything.

I finally have some gluten free cookbooks and a pantry stocked with most things. Have been unable to find any sorghum (juar, jowar) flour down here yet, no Teff, etc.,so a lot of the recipes in Carole's and Bette's cookbooks are not on the menu yet. I think I will be back in Nevada in June so will have to carry an extra empty bag for baking supplies. Will also have to find a new airline to fly because Air New Zealand are limiting us to one 30 kg piece of luggage. Now who except superman can manage that? Certainly not an "older-looking" lady (as one of my docs too kindly put in a report) with rheumatoid arthritis! May have to fly to Sydney and try to pick up something from there as only ANZ and Qantas fly out of Auckland any more. And I hate Qantas as much as the koala bear does.

End of rant.

Cheers to all. Am feeling a bit happier, and am going to see a new rheumatologist next week. I think I will have to find a med. I am not intolerant of because being gluten free is not controlling the arthritis and it is really flaring up again. Pity because my hair is just growing back in at the front.

Neroli

BRUMI1968 Collaborator

Look for coconut bliss ice cream. And check out Enjoy Life brand for soy-free stuff. Coconut blissssssssssssss.

  • 2 weeks later...
Graceanna Newbie
Look for coconut bliss ice cream. And check out Enjoy Life brand for soy-free stuff. Coconut blissssssssssssss.

I have psoriasis, psoriatic arthritis and coeliac. I recently cut out dairy and took soya milk instead. No problems. I read about soya lecithin as a supplement good for psoriasis as source of omega 3. Took this supplement and my feet are burning and toes inflamed. Could I be soy intollerant? Maybe I should be on rice milk. Interested in your thoughts. I never thought that soy could be a problem.

BRUMI1968 Collaborator

Soy is one of the highest allergen foods (soy, wheat, corn, dairy, eggs). I'm unaware if soy lecithin is a problem for most folks with soy problems.

I tested as positive to antibody response to soy in a stool analysis (meaning, my body creates antibodies to soy - acting as though it is the enemy) though I've never attributed any symptoms specifically to it. I don't touch it. There is also a decent bit of evidence that soy has other problems associated with it (blocks absorption of minerals, is estrogenic, etc.)

So I'm not sure what to say, other than that soy is a high allergen food, so it is certainly possible that the supplement bugged your system.

I wish I could be more help with the itching.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



missy'smom Collaborator
Thank you, RiceGuy; I had not considered candida. Will have to look into that.

I was used to getting my O-3's from flaxseed but the ND felt I would be better off with the fish. I find we all have our preferences/prejudices when it comes to O-3 sources. I did not know about chia seeds (like you grow on the pottery ornaments??) Sure hope I don't sprout like that, I've got enough skin problems already!!

You can get the omegas from fish oil. Carlson's is a very reputable brand that has good practices to be sure you're not getting the heavy metals. It doen't taste bad either. Some have a slight lemon flavor. I gave it to my son and figured I'd better try it too to make sure I wasn't torturing him. He never complained.

RiceGuy Collaborator

Another possible cause of skin problems is foods which are high in iodine, such as sea vegetables. So it is probably a good idea to avoid kelp and other things derived from seaweed. Iodine is known to have a tendency to make DH worse, because the immune system uses iodine to help heal the skin.

Guest Talia
Another possible cause of skin problems is foods which are high in iodine, such as sea vegetables. So it is probably a good idea to avoid kelp and other things derived from seaweed. Iodine is known to have a tendency to make DH worse, because the immune system uses iodine to help heal the skin.

I am also struggling with the skin problemsand celeiac I have had psoriasis, since birth,

scalp, bottom, . it moves around on my scalp. I itch so much,. I know it is food related.. i just have to be dilegent and write down everything I put in my mouth. reading this site is so amazing, the things I think are ok, end up beign disasters... like dream rice milk(had gluten) , which i didn't know unitl I read this.

I am tryint to stick with iodine free salt, I think I will just make up a little spice bottle to carry with me when we eat out.

Also has anyone had reactions to apples? Pectin maybe is an issue, I started eating an apple last night,, and alomost as soon as i started eating it , i was inflamed.

Good luck to you

talia

dally099 Contributor
I am also struggling with the skin problemsand celeiac I have had psoriasis, since birth,

scalp, bottom, . it moves around on my scalp. I itch so much,. I know it is food related.. i just have to be dilegent and write down everything I put in my mouth. reading this site is so amazing, the things I think are ok, end up beign disasters... like dream rice milk(had gluten) , which i didn't know unitl I read this.

I am tryint to stick with iodine free salt, I think I will just make up a little spice bottle to carry with me when we eat out.

Also has anyone had reactions to apples? Pectin maybe is an issue, I started eating an apple last night,, and alomost as soon as i started eating it , i was inflamed.

Good luck to you

talia

hi, i can totally sympathise, last year i had this on my feet and my hands, i wanted to take the cheese grater to them. i found out it was the soy in my diet, as well i now take a hantihystamine daily, and have special creams, get in to see an allergist again, as well as a skin docter, its probably something you are in injesting, take care!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,027
    • Most Online (within 30 mins)
      7,748

    EmmaGraceeee
    Newest Member
    EmmaGraceeee
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.