Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lasted A Week

misulli

By misulli
in Coping with Celiac Disease

Recommended Posts

silk Contributor
silk
Posted
Grocery list.....something I started a long time ago (because I blamed the brain fog on just being too busy and couldn't remember anything for more than 2 minutes) .....is a perpetual list that stays on the counter by the fridge. Anytime I am any where near the end of anything it goes on the list. If I'm looking at recipes, what I need goes on the list. If I shop and don't pick up something on the list, it gets written on the new list.

I keep all of my gluten-free baking supplies in clear plastic tubs, and put the label on the edge where I can see what it is without taking everything out of the cupboard. Any "mixes" that I make before hand have their own tub marked with marker. Organization helps me out a lot. I started a recipe box for gluten-free stuff that I try (seperate from the "real food recipe box". I don't add any recipes to the box until I have made it and dubbed it worthy of a place there. That way the box doesn't get filled with recipes that I'll never use again.

Hope some of this helps. I'm too scatter brained without these helpful tools. Hoping the fog will lift sometime soon. I USED to be a genius! :lol:

I do the list too. It's really helpful. The only problem is that I need to make a list to remind me to take my list when I go to the store. :huh: If I go without a list and only need one thing, I come out with every thing but what I went in for. It's like AADD. Once I walk through those doors, there is so much to look at and see that I can't focus on the reason that I'm there. I usually remember what I originally wanted two blocks from home. :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Wonka Apprentice
Wonka
Posted

If you are interested and want to p.m. me, I would be happy to get the recipe to you.

Not MNBeth but I'd love the recipe.

RiceGuy Collaborator
RiceGuy
Posted
Organization helps me out a lot. I started a recipe box for gluten-free stuff that I try (seperate from the "real food recipe box".

Interesting. I thought the gluten-free stuff was real food! Everything else is poison, no matter how tasty it might be.

And yes, gluten-free bread is better homemade. I'm still experimenting, but since my fav was always biscuits, not sandwiches (except for the PB&J), it seems a bit easier.

For those interested in the site about marshmallow peeps, here it is: Open Original Shared Link. Just make sure you're not eating when you go there. I don't relish the idea of making someone choke from laughter.

ravenwoodglass Mentor
ravenwoodglass
Posted
For those interested in the site about marshmallow peeps, here it is: Open Original Shared Link. Just make sure you're not eating when you go there. I don't relish the idea of making someone choke from laughter.

I haven't laughed so hard in a long time. Thanks for posting the link

silk Contributor
silk
Posted
If you are interested and want to p.m. me, I would be happy to get the recipe to you.

Not MNBeth but I'd love the recipe.

I'm sorry Wonka, I'm not sure who your question was intended for. I offered to provide a recipe for someone earlier in this thread but I'm not sure if someone else made the same offer??? If I am the person you were requesting the recipe from, I would be happy to help you. If not, I'm not sure that it's clear who you are talking to. :) Also, if it is me, I have talked about recipes for a Farmhouse White Loaf bread and a recipe for homemade ravioli. Which were you interested in?

Morrisun Newbie
Morrisun
Posted
Hey all,

So the bread drama. I am also a bread adict and this diet is killing me. I can't find one I like either. The closest I have come is Pamela's Bread mix. I tried Kinnkinnick and HATE it. I feel like a freek saying taht because everyone else loves it. The texture, fact that it doesn't turn color when you toast it, ahh just everythign was all wrong for me. The other thing I am struggling with is pizza dough. I have tried gluten free pantry and Pamela's. I hated both. Both have either no texture or are a pain to make. Grr the frustration, I dont think I will ever feel happy again, like I did when I ate regular bread!

Have you tried the Chebe pizza crust mix?? That's my favorite so far, although I haven't tried a ton of different kinds.

Wonka Apprentice
Wonka
Posted
I'm sorry Wonka, I'm not sure who your question was intended for. I offered to provide a recipe for someone earlier in this thread but I'm not sure if someone else made the same offer??? If I am the person you were requesting the recipe from, I would be happy to help you. If not, I'm not sure that it's clear who you are talking to. :) Also, if it is me, I have talked about recipes for a Farmhouse White Loaf bread and a recipe for homemade ravioli. Which were you interested in?

It was your recipe for Farmhouse White Loaf Bread that I was interested in but I'd happily accept a ravioli recipe as well. I love to cook and love to receive already tried and loved recipes. I do find this forum a bit harder to follow regarding who posts are directed at than the food forum I also hand out in (fine cooking). Each post is numbered and the responses tell you which post # the response is for. Very user friendly.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


silk Contributor
silk
Posted
It was your recipe for Farmhouse White Loaf Bread that I was interested in but I'd happily accept a ravioli recipe as well. I love to cook and love to receive already tried and loved recipes. I do find this forum a bit harder to follow regarding who posts are directed at than the food forum I also hand out in (fine cooking). Each post is numbered and the responses tell you which post # the response is for. Very user friendly.

I agree with you Wonka. Because people use 'interesting' names for their posts, I usually have to check the spelling at least once before I reply.

I will be happy to send you the recipes. As I explained to someone else, the bread recipe is from a cookbook that I had checked out from the library and I had to return it. And because I have ordered it for myself, did not think to make a photo-copy of the recipe. The book should be here by Monday so I will be happy to send both recipes to you then.

Wonka Apprentice
Wonka
Posted
I agree with you Wonka. Because people use 'interesting' names for their posts, I usually have to check the spelling at least once before I reply.

I will be happy to send you the recipes. As I explained to someone else, the bread recipe is from a cookbook that I had checked out from the library and I had to return it. And because I have ordered it for myself, did not think to make a photo-copy of the recipe. The book should be here by Monday so I will be happy to send both recipes to you then.

Thankyou very much. I hope you enjoy your new purchase (I love new cookbooks).

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748
    Tara M
    Newest Member
    Tara M
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Celiac and dermatitis herpetiformis has taken Me from Me

      By trents · Posted

      Is this man the father of your children?
    • Jillian83
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Jillian83 · Posted

      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      Ibuprofen

      By cristiana · Posted

      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      Knowing what to do when feeling unwell.

      By Me,Sue · Posted

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.