Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Rash Question

bird0705

By bird0705
in Dermatitis Herpetiformis

Recommended Posts

bird0705 Newbie
bird0705
Posted

I am new to this board and have a question. I recently discovered that I am gluten intolerent through alot of reading and research. i try to be very carefull with what I eat and for the most part do ok, but my question is about DH. Last month I noticed a spot on my upper thigh, I thought it was a pimple but it dident go away. It ended up looking like a dime sized patch of red,scaley skin. Then I got another on my shoulder, then another 4 more on my upper thighs. Is this DH?? Does it go away? I go to the doctor next month and will ask, but in the mean time this is really bothering me. Any help would be appreciated.

Robin.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lovegrov Collaborator
lovegrov
Posted

The way you describe it, it doesn't sound like DH to me. My DH looked like blisters filled with clear fluid. And they itched so bad I'd scratch them til they bled.

richard

darlindeb25 Collaborator
darlindeb25
Posted
;) hi robin--i get those same kind of patches--maybe not DH, but i am willing to bet its still related to gluten intoerance in some way--i just went through a bout of this myself--i got the 1st spot on one elbow, then the other followed in a few days--finally going away after 2 weeks now--i have a dry patch like that on my leg now too--usually for me, it is just dry patches, this last time i had raised spots that itched a lot--just keep gluten free and do the best u can--watch your lotions and soaps for gluten too--deb
cdford Contributor
cdford
Posted

My daughter got some of those patches. They have a name, but I can't remember it. It is a side symptom of the celiac and can also be caused by recurrent EBV (that's how we learned about them then segued into the celiac/dh diagnosis).

Most of our "celiac bumps" are the pus pocket things that look more like chicken pox or poison ivy, but what you are describing sounds like Jenn's first outbreak.

Donna

cdford Contributor
cdford
Posted

Okay, so it drove me crazy until I went and got the info...

The name was pityriasis lichenoides (PLEVA is a form of it). It it hard to find info on it because it is not a real common form of rash. I got the info from our dermatologist who got it off a sit called emedicine.com. There was another site from New Zealand that had good info.

At any rate, what I remember of it was that it comes and goes and usually clears up on its own unless it is a side symptom of another illness (guess what it was for us). Then, it only clears up completely when the trigger clears.

Don't know if it is what you are looking for, but at least it may give you a place to start researching.

Donna

bird0705 Newbie
bird0705
Posted
  • Author

Thank you all for the information! I go to the doctors on the 6th, but it's nice to have some information ahead of time.

Take care,

Robin.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams commented on Scott Adams's article in Additional Concerns
      4

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

      Researchers are working on T cell modification therapy that could one day let celiacs eat gluten.
    2. chrisinpa
      - chrisinpa commented on Scott Adams's article in Additional Concerns
      4

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

      It's like a double edged sword.......we do one thing to improve a problem and cause another problem. I'd like to think the ultimate cure might be something that would train or modify the body to prevent the damage that gluten causes.
    3. Flash1970
      - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

      You might try Heallix. It's a silver solution with fulvic acid. I just put the solution on with a cotton ball. It seemed to stop the nerve pain. Again, not in your eyes or ears. Go to heallix.com to read more about it and decide for yourself Also, I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out...
    4. trents
      - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being...
    5. Roses8721
      - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,493
    • Most Online (within 30 mins)
      7,748
    JJC01
    Newest Member
    JJC01
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Flash1970
      Shingles - Could It Be Related to Gluten/ Celiac

      By Flash1970 · Posted

      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      GI DX celiac despite neg serology and no biopsy

      By trents · Posted

      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      GI DX celiac despite neg serology and no biopsy

      By Roses8721 · Posted

      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Shingles - Could It Be Related to Gluten/ Celiac

      By Ginger38 · Posted

      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      Help

      By Scott Adams · Posted

      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.