Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

College Visits


HAK1031

Recommended Posts

HAK1031 Enthusiast

Yesterday I went to visit Hamilton College and Colgate University in New York. I went to Colgate first and I was talking to the chef who was making my (delicious!) omelette and asked how they accomadate special diets. He said he had other students on the diet, and pulled out Gillian's gluten-free pizza dough!! I knew I would be fine there. Then that afternoon, we went to Hamilton, and stopped by the dining hall on the tour and asked the guide the same question...turns out she has celiac herself!! And Hamilton is good about the diet as well according to her. We stopped for lunch at a little cafe where I got my boring dressing-less salad...then we left, drove a few miles down the road, and passed a pizza place. On their sign they had "Now serving gluten-free pizza!!!" I was so sad that we had already stopped ;) but I would say it was a good omen that eating in college won't be quite as scary as I thought...I may have to worry about the freshman 15 after all :lol:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



YoloGx Rookie
Yesterday I went to visit Hamilton College and Colgate University in New York. I went to Colgate first and I was talking to the chef who was making my (delicious!) omelette and asked how they accomadate special diets. He said he had other students on the diet, and pulled out Gillian's gluten-free pizza dough!! I knew I would be fine there. Then that afternoon, we went to Hamilton, and stopped by the dining hall on the tour and asked the guide the same question...turns out she has celiac herself!! And Hamilton is good about the diet as well according to her. We stopped for lunch at a little cafe where I got my boring dressing-less salad...then we left, drove a few miles down the road, and passed a pizza place. On their sign they had "Now serving gluten-free pizza!!!" I was so sad that we had already stopped ;) but I would say it was a good omen that eating in college won't be quite as scary as I thought...I may have to worry about the freshman 15 after all :lol:

this is fantastic. It gives me hope. Here in the San Jose area it seems very difficult to eat out. Maybe I just need to try harder.

MySuicidalTurtle Enthusiast

That's very cool.

dksart Apprentice

Yeah! Congratulations.

Guest LittleMissAllergy
this is fantastic. It gives me hope. Here in the San Jose area it seems very difficult to eat out. Maybe I just need to try harder.

I live by San Francisco and travel to San Jose all the time. I can't eat out either :( I thought the salad bar at Trader Joes in San Jose might be a good choice, but I even got sick from that! So I feel your pain :(

YoloGx Rookie
I live by San Francisco and travel to San Jose all the time. I can't eat out either :( I thought the salad bar at Trader Joes in San Jose might be a good choice, but I even got sick from that! So I feel your pain :(

Yes San Jose seems to be tough on all fronts. Everyone seems so selfish and "me first". I have run into the same thing in the arts. However I am going to start asking more and see what happens. I am hopeful that eventually it will help.

Meanwhile my own family of course thinks I am completely neurotic despite their own gastric etc. difficulties. For most of them they feel its not worth it to be vigilant about it--although my eldest sister is. She like me is accused of the being a Hypochondriac with a capital H. However now both of us have stronger joints and more energy and better overall health because of being more vigilant. Unfortunately however she is in southern CA so I have no close mates here on this issue.

Now I am thinking of refusing to go out to eat with my family--and just share gluten free dessert with them afterwards on special occasions and/or make dinner myself. Recently they ordered things at a restaurant willy nilly with gluten in them despite them knowing I have celiac as does my mother and brother with Down's syndrome. I can control the situation at home but not when we go out to eat--which is usually on someone's birthday (as this was--for my mother). I don't want to make a scene but maybe I need to? I am not giving up but it is a struggle.

lizard00 Enthusiast

I am so jealous of anyone that has a pizza place nearby that can get gluten-free pizza. Don't get me wrong, Amy's pesto w/soy cheese isn't bad, BUUTTT... it gets old really quickly. Sounds like a great place to be!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



peanut369 Newbie

I was traveling for the first time in a long, long time and had resigned myself to ordering a pasta plate without the pasta. As I usually do, I simply asked, "Can this be brought without pasta? I can't have the wheat." The waitress replied, "We have gluten free pasta. Would you like some?" I came so close to balling. All I could do was nod my head. Then she did it. She offered the choice of penne or fettucini! I told her my choice, so she would go without seeing my (way too) emotional reaction. I've never even heard of a restaurant offering gluten free choices before.

My friend who travelled with me had an awesome suggestion - suck it up and ask for gluten free products wherever we are out. If enough people keep asking for it, resuaurants will HAVE to get the idea.

The 'in' at this particular restaurant, I found out after, is that the chef has Celiac disease.

The problem with this place? It was a 3.5 hour drive from home, and we just happened to be traveling through. That was in Vermont. :o

dksart Apprentice
I was traveling for the first time in a long, long time and had resigned myself to ordering a pasta plate without the pasta. As I usually do, I simply asked, "Can this be brought without pasta? I can't have the wheat." The waitress replied, "We have gluten free pasta. Would you like some?" I came so close to balling. All I could do was nod my head. Then she did it. She offered the choice of penne or fettucini! I told her my choice, so she would go without seeing my (way too) emotional reaction. I've never even heard of a restaurant offering gluten free choices before.

My friend who travelled with me had an awesome suggestion - suck it up and ask for gluten free products wherever we are out. If enough people keep asking for it, resuaurants will HAVE to get the idea.

The 'in' at this particular restaurant, I found out after, is that the chef has Celiac disease.

The problem with this place? It was a 3.5 hour drive from home, and we just happened to be traveling through. That was in Vermont. :o

I know I would cry right there in front of the waitress. I almost cried just reading this!

What restaurant was it for anyone who might be heading that way?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      My journey is it gluten or fiber?

    2. - JoJo0611 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Yeast extract

    3. - trents replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Labs ? Awaiting in person follow up with my GI

    4. - Seabeemee posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Labs ? Awaiting in person follow up with my GI

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,166
    • Most Online (within 30 mins)
      7,748

    rgfeeg
    Newest Member
    rgfeeg
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      Thanks bumped it up and now take all 3 vitamins 2 capsules each with the super b complex at breakfast. I will give it some time to see if I notice a difference. I am going to track my eating daily diary on a myfitness pal app to see if the "claimed" gluten free foods bother me or not.
    • JoJo0611
      Please can anyone help. I was diagnosed on 23rd December and I am trying my best to get my head around all the things to look out for. I have read that yeast extract is not to be eaten by coeliacs. Why? And is this all yeast extract. Or is this information wrong. Thanks. 
    • trents
      Welcome to the celiac.com community, @Seabeemee! The fact that the genetic testing shows you do not have either of the two genes associated with the potential to develop celiac disease (HlA DQ2 and HLA DQ8) pretty much ensures that you do not have celiac disease and the biopsy of the small bowel showing "normal villous architecture" confirms this. But you could have NCGS (Non Celiac Gluten Sensitivity) which would not damage the villous architecture. You could also have SIBO (Small Intestine Bacterial Overgrowth) or H. Pylori infection. Both of these conditions would thrive on carbs and you do say you feel better when you don't eat a lot of carbs. And with your resection of the small bowel, that could be causing it's own problems like you describe. When was that surgery done? You have had over 1 foot of your small bowel removed by that surgery in 2022 so that would certainly challenge digestion and nutrient absorption.  Edited
    • Seabeemee
      My Doctor messaged me that I have no sign of Celiac disease so until I meet with her next week I don’t know what the labs mean. I am being evaluated by my new GI for Celiac disease because of digestive issues (bloating, distention, fullness in mid section, diarrhea).  I also have been diagnosed with GERD and some associated issues hence the endoscopy. I also was diagnosed with NAFLD after an abdominal CT scan in December - which surprises me because I gave up alcohol 5 years ago, workout 5 days a week, cardio / weights and cook from scratch every night. Anecdotally,  I do feel better when I do not eat a lot of carbs and have been staying away from gluten 95% of the time until my follow up.  History: I had an emergency bowel obstruction operation in August 2021 for a double closed loop obstruction, open surgery removed 40 cm of my small intestine, my appendix, cecal valve and illeocectomy. Beside the fact that this put me in the situation of no longer being able to absorb Vitamin B12  from my diet and having to  inject Vit B 12 2x a month, I also became Iron deficient and am on EOD iron to keep my levels high enough to support my Vitamin B12 injections, as well as daily folic acid. I tested positive for pernicious anemia in 2022 but most recently that same test came back negative. Negative Intrinsic Factor. My results from the biopsies showed 2nd part of Duodenum, small bowel Mildly patch increased intraepithelial lymphocytes with intact villious architecture. Comment: Duodenal biopsies with normal villous architecture and increased intrepithelial lymphocytes (Marsh I lesion) are found in 1-3% of patients undergoing duodenal biopsy, and an association with celiac disease is well established however the specificity remains low. Similar histologic findings may be seen in H pylori gastritis, NSAID and other medication use including olmesartan, bacterial overgrowth, tropical sprue and certain autoimmune disorders. So my GI ordered Labs for Celiac confirmation: Sorry I couldn’t upload a photo or pdf so typed below: TEST NAME                               IN RANGE and/or RESULTS RESULTS:  IMMUNOGLOBULIN A :           110 GLIADIN (DEAMIDATED) AB (IGG, IGA)                            <1.0 GLIADIN (DEAMIDATED) AB (IGA)                                     <1.0 GLIADIN (DEAMIDATED) AB (IGG)                                    <1.0 TISSUE TRANSGLUTAMINASE ANTIBODY, IGG, IGA TISSUE TRANSGLUTAMINASE AB, IGG                                     <1.0 TISSUE TRANSGLUTAMINASE AB, IGA                                     <1.0 INTERPRETATION: <15.0 ANTIBODY NOT DETECTED  > OR = 15.0 ANTIBODY DETECTED RESULTS: HLA TYPING FOR CELIAC DISEASE INTERPRETATION (note The patient does not have the HLA-DQ associated with celiac disease variants) More than 97% of celiac patients carry either HLA-DQ2 (DQA1*05/DQB1*02) or HLA-DQ8 (DQA1*03/DQB1*0302) or both. Genetic counseling as needed. HLA DQ2 : NEGATIVE HLA D08: NEGATIVE HLA VARIANTS DETECTED: HLA DA1* : 01 HLA DA1* : 05 HLA DQB1*: 0301 HLA DQB1*: 0501 RESULTS REVIEWED BY: Benjamin A Hilton, Ph.D., FACMG I appreciate any input, thank you.         
    • trents
      Let me hasten to add that if you will be undergoing an endoscopy/biopsy, it is critical that you do not begin efforts to reduce gluten beforehand. Doing so will render the results invalid as it will allow the small bowel lining to heal and, therefore, obscure the damage done by celiac disease which is what the biopsy is looking for.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.