-
Welcome to Celiac.com!
You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.
-
Celiac.com Sponsor (A1):
Celiac.com Sponsor (A1-M):
-
Get Celiac.com Updates:Support Our Content
Huncan Hines / Pillsbury Frostings
-
Get Celiac.com Updates:Support Celiac.com:
-
Celiac.com Sponsor (A17):
Celiac.com Sponsor (A17):
Celiac.com Sponsors (A17-M):
-
Recent Activity
-
-
-
- Scott Adams commented on Scott Adams's article in Diagnosis, Testing & Treatment4
A Future Beyond the Gluten-Free Diet? Scientists Test a New Cell Therapy for Celiac Disease (+Video)
Red meat is gluten-free, so I'm not sure why you would not be able to include that in your diet unless you had another health issue.- celiac disease
- cell therapy
- (and 8 more)
-
- Aretaeus Cappadocia commented on Scott Adams's article in Research Projects, Fundraising, Epidemiology, Etc.1Italy Tests Nationwide Screening to Catch Hidden Celiac Disease in Children
A broad screening program like this also has the potential to provide insight into the reasons why ~10% of people with HLA DQ2/DQ8 develop Celiac while the majority do not.- 1
-
- celiac disease
- children
- (and 8 more)
-
- Peace lily commented on Scott Adams's article in Winter 2026 Issue9Can You Really Trust Gluten-Free Menus? What Every Celiac Needs to Know Before Eating Out
Well for me if they don’t have a designated separate kitchen im not doing it. I tried they say gluten-free but low and behold I got sick again.cross contamination. I live in Rhode Island and I’m lucky to find a couple of places that specialize in a gluten-free kitchen . peace lily😊- 1
-
- cross contamination
- dining
- (and 8 more)
-
-
Celiac.com Sponsor (A19):
-
Member Statistics
-
Celiac.com Sponsor (A20):
-
Celiac.com Sponsor (A22):
-
Forum Statistics
-
Total Topics121.5k
-
Total Posts1m
-
-
Celiac.com Sponsor (A21):
-
Upcoming Events
-
0January 21, 2026 11:15 PM
Until
January 22, 2026 12:15 AM
-
0January 27, 2026 11:30 PM
Until
January 28, 2026 12:30 AM
-
0February 04, 2026 11:00 PM
Until
February 05, 2026 12:00 AM
-
Posts
-
Nope its just me because they can eat wheat and when we use same pans I found out last year thanks to you guys and the autoimmune website im learning,we are not to share though clean, same with sponge. I just wish doctors understood. I am with new gi and new pcp but im falling apart because blood work is fabulous.Im so ANGERY.I have reached out to my local representative, in Stanislaus but its just weekly stuff.Im going to need to physical go down there.Any recommendations on what to say and do because this is absolutely ridiculous. If I didn't have my husband though we are really hurting with one income, I would absolutely be one of the homeless population. Thats alarming begging to be heard about a diagnosis that was given as an adult and dealing with this, medical needs to stick to patients regardless of switching insurance or doctor.
-
By knitty kitty · Posted
If you haven't noticed a difference yet, bump up your Thiamax. Add in another Thiamax with breakfast and lunch. Increase the NeuroMag as well. You can add in another Benfotiamine, too. Thiamine is safe and nontoxic even in high doses. Taking more is fine. I had to bump mine up several times when first starting. It's a matter of finding what works for you. Everyone is different. Stick with it. Some of the health improvements are very subtle and gradual. Keep going! You're doing great! -
By knitty kitty · Posted
Hello, @hjayne19, About half of the people with Celiac disease react to the protein Casein in dairy the same as to gluten with the inflammation and antibodies and all. Reacting to Casein is not the same as lactose intolerance nor a dairy allergy. Damaged villi are incapable of producing lactAse, the enzyme that digests lactOse, the sugar in dairy. When the villi grow back, the villi can resume making lactase again. I react to casein. Keep in mind that part of the autoimmune response to gluten and casein is the release of histamine. Histamine causes inflammation, but it is also powerful excitory neurotransmitter, causing heightened mental alertness. Histamine release is what causes us to wake up in the morning. Unfortunately, excessive histamine can cause insomnia. Our bodies can make histamine, but foods we eat contain different amounts of histamine, too. Our bodies can clear a certain amount of histamine, but if overwhelmed, chronic high histamine levels can keep inflammation going and cause other health problems. I got very weary of playing Sherlock Holmes trying to deduce what I was reacting to this week, so I adopted the low histamine version of the Autoimmune Protocol diet, a Paleo diet designed by a doctor with Celiac, Dr. Sarah Ballantyne. Her book, The Paleo Approach, has been most helpful. The low histamine AIP diet cuts out lots of foods that are known to be irritating to the digestive tract. After a few weeks, when my system was calmer and healing, I could try adding other foods to my diet. It was much easier starting with safe foods, adding one thing at a time, and checking for reactions than trying to figure out what I was reacting to with so many variables. I learned to recognize when I had consumed too much histamine from different combinations of foods. Everyone is different and can tolerate different amounts of histamine in their food. B Vitamins help us make enzymes that break down histamine. Vitamin D helps regulate and calm the immune system. Supplementing with Thiamine helps prevent mast cells from releasing histamine. Keeping a food-mood-poo'd journal helps identify problematic foods. I hope you will consider trying the AIP diet. -
You may be cross reacting to the protein "casein" in dairy, which is structurally similar to gluten. People assume lactose intolerance is the only problem with dairy. It is not, at least for the celiac community.
-
Hi @knitty kitty Just revisiting this to get some help. I found after understanding the extent of my anxiety, my sleep got a little better. Flash forward to a few weeks later I have had a few bad sleeps in a row and I feel desperate for a good nights sleep. I understand worrying about it won’t help but one thing I had tied things too was dairy. Initially when I went gluten free I felt great for the first few weeks then started having some stomach pain. So thought maybe I was lactose intolerant. I started eating lactose free Greek yogurt and that did help take the cramping away I guess. Over the last few months I haven’t eaten it every single day and I went a few weeks without it. The last few nights I did have a small amount with breakfast and noticed that was the only new thing I’ve really added to my diet. I had seen a few other posts about this. Is it possible to still react to lactose free? Would this potentially be a dairy allergy? Or something else.
-
Recommended Posts
Archived
This topic is now archived and is closed to further replies.