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Migraine - Gluten Withdrawal Symptom?

Lux

By Lux
in Coping with Celiac Disease

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Lux Explorer
Lux
Posted

Hey there,

I am recently diagnosed with celiac disease, and have been gluten-free for five days. Overall, I have been feeling an amazing improvement - all but for last night when I experienced what can only be described as a migraine aura, without the head pain (okay, so there was a little pain). I couldn't read or write coherently; was seeing weird, "spots" of light which partially obscured my vision, and, later on, my mouth started "buzzing" and tingling. I was terrified. The thing is, I have never before experienced problems with migraines - or even any neurological symptoms such as those described. Is it common,for these to suddenly arise due to the *elimination* of gluten??

Curious...

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loco-ladi Contributor
loco-ladi
Posted

Yes, some people go thru withdrawal symptoms.... the list is too long to list but headaches are one of them...

mftnchn Explorer
mftnchn
Posted

Yes, it could be a symptom of adjustment. Allergies to wheat could lead to this type of symptom as well. Just hang in there, it may clear up and be fine. Please keep us posted.

Lux Explorer
Lux
Posted
  • Author

I guess the reason it seems to stand out as so strange is that, even amidst all my other symptoms, never before have I experienced anything remotely like this. Prior to diagnosis, it was all GI related. I've never had a migraine before in my life before last night...

loco-ladi Contributor
loco-ladi
Posted
I guess the reason it seems to stand out as so strange is that, even amidst all my other symptoms, never before have I experienced anything remotely like this. Prior to diagnosis, it was all GI related. I've never had a migraine before in my life before last night...

Well, just remember eventually it will go away, and if your lucky you will still be sane afterwards ;)

Wonka Apprentice
Wonka
Posted
Hey there,

I am recently diagnosed with celiac disease, and have been gluten-free for five days. Overall, I have been feeling an amazing improvement - all but for last night when I experienced what can only be described as a migraine aura, without the head pain (okay, so there was a little pain). I couldn't read or write coherently; was seeing weird, "spots" of light which partially obscured my vision, and, later on, my mouth started "buzzing" and tingling. I was terrified. The thing is, I have never before experienced problems with migraines - or even any neurological symptoms such as those described. Is it common,for these to suddenly arise due to the *elimination* of gluten??

Curious...

I get auras without the headache and headache without the aura. I'm less freaked out when they happen because now I know that both are migraine symptoms. I get migraines on day 2 of my period (so this may be related to my hormones and not celiac) and when I travel or get glutened. I take a med called Zomig when I get the migraine and it is brilliant at helping me become functional again (although it's expensive about $16 a pill so I work hard at not getting glutened).

Lux Explorer
Lux
Posted
  • Author
I get auras without the headache and headache without the aura. I'm less freaked out when they happen because now I know that both are migraine symptoms. I get migraines on day 2 of my period (so this may be related to my hormones and not celiac) and when I travel or get glutened. I take a med called Zomig when I get the migraine and it is brilliant at helping me become functional again (although it's expensive about $16 a pill so I work hard at not getting glutened).

Thank-you; I will definitely look into this! Why do you think it is that you get them when you travel? I will be travelling to the UK in April, so any recommendations for preventative meds would be gratefully received...

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      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
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      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
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